A5055244895- Palliative Care and End-of-Life Issues
- Mechanical Circulatory Support Devices
- Family and Patient Care in Intensive Care Units
- Chronic Disease Management Strategies
- Cardiac Arrest and Resuscitation
- Ethics in Clinical Research
- Geriatric Care and Nursing Homes
- Mobile Health and mHealth Applications
- Health Systems, Economic Evaluations, Quality of Life
- Social Media in Health Education
- Heart Failure Treatment and Management
- Respiratory Support and Mechanisms
- Grief, Bereavement, and Mental Health
- Pressure Ulcer Prevention and Management
- HIV-related health complications and treatments
- Pneumocystis jirovecii pneumonia detection and treatment
- Airway Management and Intubation Techniques
- Healthcare Policy and Management
- HIV/AIDS Research and Interventions
- Childhood Cancer Survivors' Quality of Life
- Healthcare Decision-Making and Restraints
- Patient Dignity and Privacy
- Intensive Care Unit Cognitive Disorders
- Health Policy Implementation Science
- Anesthesia and Sedative Agents
Johns Hopkins University
2021-2024
Cicely Saunders International
2023-2024
King's College London
2023-2024
Johns Hopkins Medicine
2021-2023
UC Davis Health System
2021
University of California, Davis
2021
Bidwell Memorial Presbyterian Church
2021
International Society for Heart and Lung Transplantation
2021
National Institute of Nursing Research
2021
Abstract Aims To elicit experiences of patients, family caregivers, and healthcare professionals in intermediate care units (IMCUs) an academic medical centre Baltimore, MD related to the challenges intricacies multimorbidity management inform development a symptom toolkit. Design Experience‐based co‐design. Methods Between July October 2021, patients aged 55 years older with admitted IMCUs at Maryland, USA were recruited interviewed person. Interdisciplinary working IMCU virtually....
We aimed to disseminate reliable COVID-19 information the Black and Latino communities of Baltimore City, Maryland, between July 2020 December 2022. With community partners, we disseminated evidence-based via grassroots digital strategies, including Hopkins Opportunity for Participant Engagement, connected volunteers research. Using a multimodal approach facilitated dissemination raised awareness research; evaluation trust is ongoing. Robust, strategies are needed foster equity among diverse...
Despite the common occurrence of extracorporeal membrane oxygenation (ECMO)-associated acute ischemic stroke (AIS) and intracranial hemorrhage (ICH), there are little data to guide optimal anticoagulation management. We sought describe antithrombotic therapy management after outcomes.A retrospective analysis was conducted venoarterial (VA) venovenous (VV) ECMO patients treated at a tertiary care center from June 2016 February 2021. Patients with image-confirmed diagnosis AIS or ICH while...
Women are underrepresented in cardiovascular (CV) clinical trials, which may contribute to disease management and health equity barriers.1Cho L Vest AR O'Donoghue ML Ogunniyi MO Sarma AA Denby KJ Lau ES Poole JE Lindley Mehran R Cardiovascular Disease Committee Leadership CouncilIncreasing participation of women trials: JACC council perspectives.J Am Coll Cardiol. 2021; 78: 737-751Crossref PubMed Scopus (30) Google Scholar Despite the National Institutes Health (NIH) Food Drug Administration...
Abstract Background: The Coronavirus Disease 2019 (COVID-19) pandemic has had substantial global morbidity and mortality. Clinical research related to prevention, diagnosis, treatment of COVID-19 is a top priority. Effective efficient recruitment challenging even without added constraints pandemic. Recruitment registries offer potential solution slow or difficult recruitment. Objectives: purpose this paper describe the design implementation digital registry optimize awareness participant...
Palliative care (PC) is a model of centered around improving the quality life for individuals with life-limiting illnesses. Few studies have examined its impact in patients on extracorporeal membrane oxygenation (ECMO). We aimed to describe demographics, clinical characteristics, and complications associated PC consultation adult requiring ECMO support. analyzed data from an registry, including aged 18 years older who received either venoarterial (VA)- or venovenous (VV)-ECMO support between...
Caregivers of persons with heart failure (HF) navigate complex care plans, yet support strategies often focus solely on meeting the needs patients. We conducted a randomized waitlist control trial ( N = 38) to test feasibility and gauge initial effect size Caregiver Support intervention quality life, caregiver burden, self-efficacy among HF caregivers. The includes up five remote, nurse-facilitated sessions. Components address: holistic assessment, life purpose, action planning, resources,...
Palliative care demands in the United States are growing amid a comparatively small workforce of palliative clinicians and researchers. Therefore, determining research clinical practice priorities is essential for streamlining initiatives to advance science practice.
Background Veno-venous extracorporeal membrane oxygenation (VV-ECMO) has been used in patients with COVID-19 acute respiratory distress syndrome (ARDS). We aim to assess the characteristics of delirium and describe its association sedation in-hospital mortality. Methods retrospectively reviewed adult on VV-ECMO for severe ARDS Johns Hopkins Hospital ECMO registry 2020–2021. Delirium was assessed by Confusion Assessment Method ICU (CAM-ICU) when scored−3 or above Richmond Agitation-Sedation...
Background Vital components of communicating goals care and preferences include eliciting the patient caregiver's definition quality life, understanding meaningful activities relationships, exploring wishes for at end life. Although current literature suggests framing conversations regarding life through lens meaning there is limited dyadic congruence surrounding these important constructs among patients with ventricular assist devices (VADs) their caregivers. Objectives The purpose this...
Efficient and effective participant recruitment is key for successful clinical research. Adolescent emerging adult into trials can be particularly challenging, especially when targeting underrepresented groups. This study aimed to determine the most strategies from those employed during a pediatric trial testing efficacy of behavioral intervention on adiposity cardiovascular disease risk.We determined effectiveness, cost, diversity final research population by each method utilized in EMPower...
Introduction: The COVID-19 pandemic has required urgent scientific response to investigate the disease, its prevention and treatment interactions with cardiovascular conditions. Consequently, a centralized workflow was needed effectively recruit, screen connect volunteers research opportunities. Objective: To create registry match eligible interested ≥18 years outpatient studies at an academic health system. Methods: Key stakeholders, including researchers participant advocates, collaborated...