A5058300948- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Gastrointestinal motility and disorders
- Family Support in Illness
- Child Nutrition and Feeding Issues
- Eosinophilic Esophagitis
- Intestinal Malrotation and Obstruction Disorders
- Gastroesophageal reflux and treatments
- Healthcare Policy and Management
- Health Literacy and Information Accessibility
- Innovations in Medical Education
- Appendicitis Diagnosis and Management
- Gastrointestinal disorders and treatments
- Prenatal Substance Exposure Effects
- Infant Health and Development
- Celiac Disease Research and Management
- Inflammatory Bowel Disease
- Microscopic Colitis
- Pharmaceutical studies and practices
- Child and Adolescent Health
- Diet and metabolism studies
- Social Media in Health Education
- Congenital heart defects research
- Hepatitis B Virus Studies
- Gastrointestinal Tumor Research and Treatment
Boston Children's Hospital
2016-2025
Harvard University
2015-2024
Lemuel Shattuck Hospital
2023
Boston Children's Museum
2006-2022
University of California, Los Angeles
2019
Mednax (United States)
2018
Children's Hospital
2014
Boston University
2010
University of Connecticut
2010
Beth Israel Deaconess Medical Center
2007
ABSTRACT Objectives: Transition of patients with inflammatory bowel disease (IBD) from pediatric to adult providers requires preparation. Gastroenterologists for (“adult gastroenterologists”) may have expectations that are different those patients. We sought explore the perspectives gastroenterologists caring adolescents and young adults IBD, improve preparation transition. Materials Methods: A survey sent 1132 IBD asked physicians rank importance patient competencies thought necessary in...
Objective: Patients gradually assume responsibility for self-management. This study sought to determine whether adolescents with inflammatory bowel disease (IBD) have developed key skills of self-management prior the age at which many transfer adult care. and Methods: Adolescents aged 16 18 years old in Children’s Hospital Boston IBD database (94 total) received a mailed survey assessing knowledge confidence their own health information behaviors. Results: Respondents (43%) could name...
PURPOSE: To determine patients' and parents' perceptions regarding the delivery of transition education perceived barriers to transfer adult oriented care. METHODS: A self-report survey was administered a convenience sample patients (16–
Pediatric oncologists are responsible for ensuring that adolescent and young adult (AYA) childhood cancer survivors have the knowledge skills necessary to manage their follow-up care in healthcare systems.To describe transition practices barriers transfer, we electronically surveyed U.S. Children's Oncology Group members: 507/1449 responded (35%) 347/507 (68%) met eligibility criteria.Of 347 respondents, 50% male, median years practice 10 (range 5-22), 37% freestanding children's hospitals....
The cyclical nature of chronic illness requires that children with inflammatory bowel disease be transitioned to the adult medical system as much continuity care possible. Transition from pediatric continues present significant barriers. philosophy transition centers on a process, actual transfer point along this clinical pathway. Concrete steps can taken help patients prepare for new responsibilities. aim review is propose and developmental timeline both their team, including specific...
Abdominal x-rays are used diagnostically in the evaluation of children with constipation. However, their clinical utility has not been established. The aim study was to assess accuracy different methods identifying functional constipation (FC) or nonretentive fecal incontinence (NRFI).Retrospective review abdominal which colonic transit (CT), Barr, Leech, and loading (FL) scores were blindly measured by blinded pediatric gastroenterologists a radiologist. Children classified priori as FC...
Outcomes following transition can be poor; many young adults are ill prepared to take responsibility for their health care, older adolescents report incomplete understanding of medications, and parents remain largely responsible care. Good patient-provider relationships associated with better adherence; however, the role relationship between post-transition patients providers has not been explored. The current study aimed understand inflammatory bowel diseases (IBD), impact paediatric what...
Abstract Objectives Sulfasalazine (SZ) and 5‐aminosalicylates (5‐ASA) have been widely used treatments for ulcerative colitis (UC). Although some studies suggest SZ may be superior, limited data exists comparing the two in children. This study aimed to describe real‐world on their comparative safety efficacy children impact of switching between 5‐ASA before treatment escalation. Methods We retrospectively reviewed electronic medical records diagnosed with UC June 1999 December 2019 at Boston...
Social media is commonly used among the adolescent and young adult population, including those with chronic diseases. For adults, these platforms have been shown to be a major source of health information. Our aims were explore how youth inflammatory bowel disease (IBD) use social for (1) information gathering, (2) provider communication, (3) sense belonging IBD community, (4) self-expression around IBD, (5) management/monitoring. An anonymous voluntary survey was administered patients age...
Transition and transfer to adult-oriented health care is an important yet challenging task for adolescents young adults with chronic medical conditions. practices vary widely, but a paucity of data makes determination best difficult. We described North American pediatric gastroenterologists' preferences present transition practice patterns explored whether experience affected providers' perspectives.An online survey was distributed via e-mail members the Society Pediatric Gastroenterology,...
During 2003, 2004, and 2005, the role of 70 tutors was changed from that facilitator to discussion leader, in a preclinical PBL learning course, Gastrointestinal Pathophysiology, by use three key business school teaching strategies: questions, summaries, schematics. The purpose this study learn what difference new approach made.During each years, 171 (2003), 167 (2004), 170 (2005) students were given Likert-scale attitudinal questionnaires rate whether their encouraged student direction...
Adolescents with chronic illness need to develop skills independently manage their own health. Knowledge of medication is an early step in this process. We explored which factors affect acquisition knowledge adolescents inflammatory bowel disease (IBD).Consecutive patients IBD older than 10 years received a confidential survey at outpatient visit including questions regarding name, dose, and adverse effects. Results were compared the medical record. Demographic characteristics obtained...
ABSTRACT Objectives: Gender equality in the workplace has not been described pediatric gastroenterology. Methods: An electronic survey that explored perceptions of career parity, work–life balance, and harassment was sent to all members North American Society for Pediatric Gastroenterology, Hepatology, Nutrition. Reponses were anonymous. Results: Of 303 respondents (21%), there an even distribution across geographic region, age, gender (54% men). affected perception salary promotion; 46% men...
Patients with chronic health needs are expected to gradually assume responsibility for maintenance behavior as they move toward adulthood. We sought evaluate the influence of factors such age, duration disease, and gender by examining self-reported behaviors adolescents inflammatory bowel disease (IBD).Confidential voluntary surveys were administered all IBD outpatients over age 10 during a 4-month period. Questions addressed medication, provider visits, communication. Likert scales measured...
ABSTRACT Objective: Adolescent patients with chronic health conditions must gradually assume responsibility for their health. Self‐management skills are needed a successful transfer from adolescent to adult care, but the development of these could be resource intensive. Pediatric providers already instrumental in teaching about and may improve skills. The aim study was evaluate whether informal education pediatric regarding transition improves inflammatory bowel disease (IBD) patient...
The authors share twelve practical tips on writing a case that engages learners in active learning and discussion. They first advise that, during the initial preparation of case, should (1) identify goals objectives, (2) level learners. When (3) use colorful language; (4) patients' own descriptions rather than medical (5) allow to interpret data themselves; (6) for natural discovery presenting information chronologically; (7) be realistic about interruptions patient care. In addition, pay...
In the US, 25% of youths have a chronic medical condition (CMC). Alcohol use is prevalent among with CMC and associated treatment nonadherence, simultaneous exposure to contraindicated medications, poor self-care, elevated rates progression heavy problem by young adulthood. Preventive interventions targeting these are scarce lack evidence about longer-term risk-stratified effects.
To compare the characteristics of children with encopresis referred to a single clinic over course 20 years, including symptoms, previous diagnostic and therapeutic interventions, parental attitudes.A retrospective study was conducted an at tertiary care pediatric hospital. Questionnaires initial evaluation elicited information about bowel habits, soiling, evaluations, treatments, attitudes.In 503 encopresis, average age referral dropped from 115 months during earliest 5 years 77 most recent...
To evaluate the frequency of predisposing factors for encopresis before and during toilet training, comparing children with primary secondary encopresis.In this retrospective study, questionnaires from initial evaluation at an clinic a tertiary care pediatric hospital were reviewed presence or absence in first 2 years life, training practices, disruptive events process. Children younger than 48 months those organic defecation disorders excluded.In 411 encopresis, reported included...