A5058318978- Childhood Cancer Survivors' Quality of Life
- Electronic Health Records Systems
- Clinical practice guidelines implementation
- Adolescent and Pediatric Healthcare
- Acute Lymphoblastic Leukemia research
- Respiratory Support and Mechanisms
- Sepsis Diagnosis and Treatment
- Neonatal Respiratory Health Research
- Mobile Health and mHealth Applications
- Palliative Care and End-of-Life Issues
- Nursing Diagnosis and Documentation
- COVID-19 and Mental Health
- Family Support in Illness
- Health Sciences Research and Education
- Emergency and Acute Care Studies
- Diabetes Management and Education
- Social and Educational Sciences
- Health Policy Implementation Science
- Healthcare Systems and Technology
- Chronic Disease Management Strategies
- Survey Methodology and Nonresponse
- Intensive Care Unit Cognitive Disorders
Princess Máxima Center
2021-2023
Amsterdam University Medical Centers
2022
University of Amsterdam
2011-2016
Human Factors (Norway)
2016
Amsterdam UMC Location University of Amsterdam
2011-2016
Cancer Center Amsterdam
2014
To investigate whether the use of think-aloud method with propositional analysis could be helpful in design a Clinical Decision Support System (CDSS) providing guideline recommendations about long-term follow-up childhood cancer survivors.The was used to gain insight into healthcare professionals' information processing while reviewing paper-based guideline. A total 13 professionals (6 physicians and 7 physician assistants) prepared 2 fictitious patient consults using Propositional analyze...
Abstract Background Childhood cancer survivors are at risk for developing long‐term adverse health outcomes. To identify the of and factors specific outcomes, well‐established cohorts needed with detailed information on childhood diagnosis, treatment, We describe design, methodology, characteristics, data availability Dutch Cancer Survivor Study LATER cohort (1963–2001) part 1; questionnaire linkage studies. Methods The includes 5‐year survivors, diagnosed in period 1963–2001, before age 18...
Clinical Decision Support Systems (CDSS) have been shown to improve clinical performance and patient outcomes, but the failure rate of such systems is still over 50 percent. To contribute a wider understanding issues surrounding CDDS acceptance, we performed systematic review studies that evaluated CDSS implementations in care determine factors are associated with acceptance by physicians. The were found categorized according HOT-fit framework. mapping concerning on framework revealed gaps...
This multi-center cohort-study examined late mortality among 6,165 Dutch five-year childhood cancer survivors diagnosed 1963–2001. Clinical details and cause of death were based on medical records. Mortality was 12-fold that the general population, with 51.3 additional deaths per 10,000 person-years (21.9 yrs median follow-up). Cumulative 15 post-diagnosis 6.9%, predominantly from recurrences; thereafter absolute contribution other health outcomes increased. all-cause recurrence-related...
Abstract Background Hospitalized pediatric oncology patients are at risk of severe clinical deterioration. Yet Pediatric Early Warning System (PEWS) scores have not been prospectively validated in these patients. We aimed to determine the predictive performance modified BedsidePEWS score for unplanned intensive care unit (PICU) admission and cardiopulmonary resuscitation (CPR) this patient population. Methods performed a prospective cohort study an 80‐bed hospital Netherlands, where has...
Pediatric oncology patients who require admission to the pediatric intensive care unit (PICU) have worse outcomes compared their non-cancer peers. Although multi-organ dysfunction (MOD) plays a pivotal role in PICU mortality and morbidity, risk factors for MOD not yet been identified. We aimed identify at new or progressive (NPMOD) during first week of stay.This retrospective cohort study included all aged 0 18 years admitted between June 2018 2021. used recently published PODIUM criteria...
Introduction Hospitalised paediatric oncology patients are at risk to develop acute complications. Early identification of clinical deterioration enabling adequate escalation care remains challenging. Various Paediatric Warning Systems (PEWSs) have been evaluated, also in but mostly retrospective or case–control study designs. This protocol encompasses the first prospective cohort with aim evaluating predictive performance a modified Bedside PEWS score for non-elective intensive unit (PICU)...
Abstract We compared psychosocial functioning of children with cancer and their caregivers in several phases the coronavirus disease 2019 (COVID‐19) pandemic to before COVID‐19. One or more questionnaires on health‐related quality life (HRQoL) fatigue distress was available from 1644 families. In cancer, HRQoL stable throughout COVID‐19 pandemic. Fatigue slightly lower sleep somewhat better during than before. Caregiver first phase, but increased pre‐COVID‐19 levels later phases, indicating...
Background: Questionnaires are widely used in survey research, especially cohort studies. However, participation questionnaire studies has been declining over the past decades. Because high rates needed to limit risk of selection bias and produce valid results, it is important investigate invitation strategies which may improve participation.
Guidelines on cardiac rehabilitation (CR) state that a patient-tailored, comprehensive CR programme should be constructed for each patient based structured needs assessment procedure. We performed usability evaluation with seven end-users of the MediScore CARDSS 2.0 system which implements such procedure Dutch guidelines. The analysis showed users deviated strongly from predefined data entry order; could not complete all subtasks procedure, and needed more navigation actions than minimally...
The Dutch Childhood Oncology Group (DCOG) has developed evidence-based guidelines for screening childhood cancer survivors possible late complications of treatment. These paper-based appeared to not suit clinicians' information retrieval strategies; it was thus decided communicate the through a Computerized Decision Support (CDS) tool. To ensure high usability this tool, an analysis cognitive strategies in retrieving from used as requirements elicitation method. An processing model think...
Background: Hospitalized pediatric oncology patients are at risk of severe clinical deterioration. Yet early warning system (PEWS) scores have not been prospectively validated in these patients. We aimed to determine the predictive performance modified BedsidePEWS score for unplanned intensive care unit (PICU) admission and cardiopulmonary resuscitation (CPR) this patient population.Methods: performed a prospective cohort study an 80-bed hospital Netherlands, where has nationally...
We compared psychosocial functioning of children with cancer and their caregivers in several phases the COVID-19 pandemic to before COVID-19. One or more questionnaires on health-related quality life (HRQoL) fatigue distress was available from 1644 families. In cancer, HRQoL stable throughout pandemic. Fatigue slightly lower sleep somewhat better during than before. Caregiver first phase, but increased pre-COVID-19 levels later phases, indicating that length consequences may be weighing them.