A5026935191- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- BRCA gene mutations in cancer
- Family Support in Illness
- Cancer-related cognitive impairment studies
- Patient-Provider Communication in Healthcare
- Nonmelanoma Skin Cancer Studies
- Economic and Financial Impacts of Cancer
- Memory Processes and Influences
- Advanced Breast Cancer Therapies
- Cancer Genomics and Diagnostics
- Cutaneous lymphoproliferative disorders research
- Aging and Gerontology Research
- Digital Mental Health Interventions
- Genomics and Rare Diseases
- Simulation-Based Education in Healthcare
- Advances in Oncology and Radiotherapy
- Health Literacy and Information Accessibility
- Cognitive Abilities and Testing
- Menopause: Health Impacts and Treatments
- Identity, Memory, and Therapy
- Medication Adherence and Compliance
- Women's cancer prevention and management
- Personality Traits and Psychology
- Pathogenesis and Treatment of Hiccups
Brighton and Sussex Medical School
2016-2025
University of Brighton
2025
University of Sussex
2016-2025
Royal Marsden NHS Foundation Trust
2015
Florida Atlantic University
2009
Abstract Purpose The IMPACTOR study (IMPact of AbemaCiclib on patienTs’ rOles and Responsibilities–ISRCTN17281696) was developed to capture experiences women with MBC being treated abemaciclib in a real-world setting. primary aim explore changes quality life over time our secondary understand these detail via qualitative interviews, as presented here. Methods A singular interview offered participants who had expressed an interest at the point consent. These were all conducted remotely using...
The aim of this study was to explore the impact extended cancer survival on broader aspects life and wellbeing such as occupational, financial family for patients with advanced their nominated informal caregivers. In-depth qualitative interviews were transcribed verbatim. A thematic framework developed from an initial process open coding tested iteratively new data collected. Twenty-four patient-caregiver dyads ovarian (9), melanoma (9) or lung (6). Patients aged 39–84 (median 62 years)...
To determine the experiences, information, support needs and quality of life women in UK living with metastatic breast cancer (MBC) to provide content for educational materials.An online survey, hosted 3 months on a MBC charity website, comprised sections covering issues such as communication about treatment management, helpful less things that healthcare professionals, family friends did or said completion Patient Roles Responsibilities Scale (PRRS).A total 143 patients participated;...
When remembering an event, it is important to remember both the features of event (e.g., a person and action) connections among who performed which action). Emotion often enhances memory for stimulus features, but relationship between emotion binding in unclear. Younger older adults attempted events negative, positive or neutral action. Memory action was enhanced by emotion, did not enhance ability participants Older were more likely than younger make errors they incorrectly remembered...
Abstract Objective: Sexual well-being can contribute significantly to the overall quality of women's lives. This qualitative study aimed examine sexual activity, functioning, and satisfaction in a large sample postmenopausal women from UK Collaborative Trial Ovarian Cancer Screening (UKCTOCS) Methods: Thematic analysis was used evaluate free-text data Fallowfield Activity Questionnaire (FSAQ) completed by UKCTOCS participants at baseline before annual screening. Results: A total 24,305 FSAQ...
The use of technology in medical education has been increasing with more students exposed to some form online learning or tutorials, under the umbrella virtual (VL). Many programmes, particularly those involving reality, have centred on practical skills, such as surgical techniques anatomical knowledge, rather than communication. study presented here examined feasibility and acceptability a VL module developed aid communication when handling angry patients their relatives. Participants were...
Objective Explaining gene expression profiling (GEP) test results to patients can be challenging. We examined the utility of two 8 min films about Oncotype DX and Prosigna aid knowledge decision-making women with early-stage oestrogen receptor positive (ER+) breast cancer. Methods analysis Patients awaiting GEP completed an anxiety questionnaire intolerance uncertainty scale (IUS) before randomisation divided into Group A (standard verbal and/or written hospital information) or B information...
<title>Abstract</title> <bold>Background</bold> Ascites remains the most common complication of cirrhosis and a frequent reason for hospitalisation in advanced chronic liver disease (ACLD). is associated with significant symptom burden, caregiver workload poor health-related quality life (HRQoL). Once refractory to treatment, median survival poor. Many ascites (RA) will neither receive transjugular intrahepatic portosystemic shunt (TIPS) nor transplant. Palliative care underutilised...
ABSTRACT Background People living with metastatic breast cancer (MBC) may have different support requirements to those early stage (EBC). These differences can be substantial, particularly as care pathways and information are often designed around the latter. There is limited understanding of how these discrepancies impact patients MBC. Aims In LIMBER study (Living Metastatic Breast Cancer), we explored distinct unmet needs people Methods collaboration MBC healthcare professionals (HCPs),...
Abstract Background Mainstreaming of germline testing demands that all healthcare professionals have good communication skills, but few genetic and counselling experience. We developed evaluated educational workshops—Talking about Risk & UncertaintieS Testing IN Genetics (TRUSTING). Contents included: presentations exercises, an interview with a geneticist BRCA testing, screening prevention implications, filmed interactions between surgeons, counsellor geneticists fictitious family...
The caregiver roles and responsibilities scale (CRRS) was developed to facilitate formal assessment of broad life impacts for informal (i.e. unpaid) caregivers people with cancer. Here we report the development initial validation. CRRS from thematic analysis two interview studies cancer patients (stage III-IV breast, gynaecological, lung or melanoma) caregivers. In evaluation studies, participants completed alongside Caregiver Quality Life—Cancer, main criterion measure concurrent validity,...
The Patient Roles and Responsibilities Scale (PRRS) was developed to enable a broader evaluation of the impact cancer treatment, measuring 'real world' roles responsibilities such as caring for others financial employment responsibilities. Here, we report development initial validation.The 29-item PRRS from thematic analysis two interview studies with patients caregivers. In study, participants completed alongside Social Difficulties Inventory (SDI), main criterion measure concurrent...
Gene expression profiling (GEP) test scores calculate risks of recurrence and likely benefit adjuvant chemotherapy in ER-positive, HER2-negative, early-stage breast cancer. As health literacy numeracy skills the general population are poor, healthcare professionals (HCPs) require a wide repertoire communication to explain clearly risk (RSs) uncertainty. We developed evaluated an educational program for HCPs discussing GEP results treatment.Eight-hour workshops contained elements aimed at...
527 Background: We developed two 8 min films to aid patients’ understanding about gene expression profiling (GEP) tests (Oncotype DX or Prosigna) in breast cancer. A previous study of 120 women without cancer demonstrated significantly better knowledge after film viewing compared that reading written materials (1). present results an RCT testing the films’ utility when given clinics with early HR+ for whom benefit chemotherapy was uncertain. Methods: Standard information policies GEP differ,...
To compare participants' knowledge about gene expression profiling (GEP) tests and recurrence risks after reading an information leaflet with that following viewing of film.Using a randomised cross-over design, at time-point one (T1), women aged 45-75 years without breast cancer either read leaflets or watched films Oncotype DX Prosigna tests. Participants answered nine questions assessing (maximum score 18). Next-day in the opposite modality was provided re-assessed. Additional probed which...
Key points To explore the COVID‐19 experiences of UK postgraduate research students (PGRs), British Psychosocial Oncology Society (BPOS) conducted an online survey Twenty‐three respondents' qualitative data were analysed thematically and summarised using strengths, weaknesses, opportunities, threats (SWOT) framework offered opportunities to develop skills, resilience, adaptability, whilst opening wellbeing conversations PGRs reported practical difficulties, social isolation, unhealthy...
218 Background: In the PROACT study, we developed two scales measuring wide-ranging life impacts of cancer and treatment for patients (pts) caregivers (cgs). Qualitative work in development phase produced rich data on concerns both groups. Here explore one specific topic, uncertainty, contrast pts' cgs' experience. Methods: In-depth qualitative interviews with pts advanced their informal cgs about impact extended survival broader aspects well-being. Interviews were transcribed verbatim. A...
To explore patients' expectations and experience of Supportive Self-Management (SSM)/ Patient Initiated Follow Up (PIFU) following breast cancer treatments over a 12-month period.In total, 32/110 (29%) patient participants in the PRAGMATIC (Patients' experiences suppoRted self-manAGeMent pAThway In Cancer) study were interviewed at baseline, 3, 6, 9 12 months. Interviews this sub-study used mix-methods approach to understanding pathway, confidence self-management, triggers seek help and/or...