A5035138291- Adolescent and Pediatric Healthcare
- Dialysis and Renal Disease Management
- Renal Transplantation Outcomes and Treatments
- Childhood Cancer Survivors' Quality of Life
- Organ Donation and Transplantation
- Birth, Development, and Health
- Renal Diseases and Glomerulopathies
- Renal and Vascular Pathologies
- Pregnancy and Medication Impact
- Organ Transplantation Techniques and Outcomes
- Chronic Kidney Disease and Diabetes
- Obesity, Physical Activity, Diet
- Global Health Care Issues
- Global Maternal and Child Health
- Blood Pressure and Hypertension Studies
- Indigenous Health, Education, and Rights
- Primary Care and Health Outcomes
- Chronic Disease Management Strategies
- Metabolism and Genetic Disorders
- Autoimmune Bullous Skin Diseases
- Health Systems, Economic Evaluations, Quality of Life
- Child Nutrition and Water Access
- Health Sciences Research and Education
- Health Policy Implementation Science
- Organ and Tissue Transplantation Research
The University of Sydney
2013-2025
Children's Hospital at Westmead
2015-2025
Kidney Health Australia
2023-2024
Westmead Institute
2024
Westmead Hospital
2022
National Center for Emerging and Zoonotic Infectious Diseases
2020
Centers for Disease Control and Prevention
2020
UNSW Sydney
2019
Sydney Children's Hospital
2019
Sydney Children’s Hospitals Network
2012-2013
Treatment decisions in kidney transplantation requires patients and clinicians to weigh the benefits harms of a broad range medical surgical interventions, but heterogeneity lack patient-relevant outcomes across trials makes these trade-offs uncertain, thus, need for core outcome set that reflects stakeholder priorities.We convened 2 international Standardized Outcomes Nephrology-Kidney Transplantation consensus workshops Boston (17 patients/caregivers; 52 health professionals) Hong Kong (10...
The aim was to compare quality of life (QoL) among children and adolescents with different stages chronic kidney disease (CKD) determine factors associated changes in QoL.Cross-sectional.The Kids CKD study involved five eight paediatric nephrology units Australia New Zealand.There were 375 (aged 6-18 years) CKD, on dialysis or transplanted, recruited between 2013 2016.Overall domain-specific QoL measured using the Health Utilities Index 3 score, a scale from -0.36 (worse than dead) 1...
Significance Statement In children with kidney failure, little is known about their treatment trajectories or the effects of failure on lifetime survival and years life lost, which are arguably more relevant measures for children. this population-based cohort study 2013 who developed in Australia New Zealand, most were either transplanted after initiating dialysis (74%) had a preemptive transplant (14%). Life expectancy increased older age at but spent than functioning transplant. The...
The impact of reduced kidney function in children is substantial. End-stage disease (ESKD), the most severe form chronic (CKD), a devastating illness associated with substantially increased mortality, impaired growth and psychosocial maladjustment children. Understanding how to address complex causes mortality morbidity CKD requires explicit information about risk factors that lead adverse outcomes. In addition biological influences, socioeconomic circumstances caregivers may play...
Few data exist on the cognitive and academic functioning of children with chronic kidney disease (CKD) over trajectory their illness. We aimed to determine association between CKD stages performance in time.We included 53 participants (aged 6-18 years) 1-5 (n = 37), dialysis 3), or transplant 22) from three units Australia 2015 2019. Participants undertook a series psychometric tests were invited for repeated assessments annually. used linear regression mixed models investigate effect stage,...
Children and adolescents in families of lower socioeconomic position (SEP) experience an inequitable burden reduced access to healthcare poorer health. For children living with chronic kidney disease (CKD), disadvantaged SEP may exacerbate their considerable burden. Across the life-course, CKD also compromise young people, leading accumulating health disadvantage. This narrative review summarizes current evidence on relationships care among from a life-course approach, including impacts...
Chronic kidney disease (CKD) is a devastating illness associated with increased mortality, reduced quality of life, impaired growth, neurocognitive impairment and psychosocial maladjustment in children. There growing evidence socioeconomic disparities health outcomes among children CKD. Patient navigators are trained non-medical personnel who assist patients chronic conditions journey through the continuum care transit across different settings. They help vulnerable underserved populations...
Background Atypical haemolytic uraemic syndrome (aHUS) accounts for ∼10% of all cases HUS and is often due to complement dysregulation. The short-term outcomes this disease are established, but there limited long-term data. a comprehensive nationwide cohort children with aHUS presented here. Methods Australian Paediatric Surveillance Unit prospectively collected data on in seen by paediatricians between 1994 2001. Patients were followed-up written questionnaire the treating clinician at 1...