Chandana Guha
A5039661272- Dialysis and Renal Disease Management
- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Health Systems, Economic Evaluations, Quality of Life
- Mental Health and Patient Involvement
- Patient-Provider Communication in Healthcare
- Delphi Technique in Research
- Renal Transplantation Outcomes and Treatments
- Healthcare cost, quality, practices
- Renal and Vascular Pathologies
- Central Venous Catheters and Hemodialysis
- Organ Donation and Transplantation
- Palliative Care and End-of-Life Issues
- COVID-19 and healthcare impacts
- COVID-19 Clinical Research Studies
- Primary Care and Health Outcomes
- Geriatric Care and Nursing Homes
- Global Health Care Issues
- Chronic Disease Management Strategies
- Ethics in Clinical Research
- Family Caregiving in Mental Illness
- Clinical practice guidelines implementation
- Restless Legs Syndrome Research
- Frailty in Older Adults
- Family and Patient Care in Intensive Care Units
The University of Sydney
2020-2025
Children's Hospital at Westmead
2019-2025
The University of Queensland
2024
Westmead Institute
2024
Westmead Hospital
2021
RELX Group (United States)
2020
Many outcomes of high priority to patients and clinicians are infrequently inconsistently reported across trials in chronic kidney disease (CKD), which generates research waste limits evidence-informed decision making. We aimed generate consensus among patients/caregivers health professionals on critically important for CKD prior failure the need replacement therapy, describe reasons their choices.
The COVID-19 pandemic has challenged the delivery of health services. Telehealth allows care without in-person contacts and minimizes risk vial transmission. We aimed to describe perspectives kidney transplant recipients on benefits, challenges, risks telehealth. conducted five online focus groups with 34 who had experienced a telehealth appointment. Transcripts were thematically analyzed. identified themes: minimizing burden (convenient easy, efficiency appointments, reducing exposure risk,...
Objective To describe the perspectives on life participation by young adults with childhood-onset chronic kidney disease (CKD). Design Semi-structured interviews; thematic analysis. Setting Multiple centres across six countries (Australia, Canada, India, UK, USA and New Zealand). Participants Thirty aged 18 to 35 years diagnosed CKD during childhood. Results We identified themes: struggling daily restrictions (debilitating symptoms side effects, giving up valued activities, impossible attend...
Background and objective Patients with early chronic kidney disease (CKD) face challenges in accessing healthcare, including delays diagnosis, fragmented speciality care lack of tailored education psychosocial support. Patient navigator programmes have the potential to improve process outcomes. The this study is describe experiences patients on communication, access self-management their perspectives patient CKD. Design, setting participants We convened a workshop Australia 19 CKD (all...
Children and adolescents with chronic kidney disease (CKD) are at risk of depression other mental health conditions, which can impair quality life, the capacity for self-management adherence to treatment, overall health. This study aimed describe perspectives patients caregivers on in children across all stages CKD. Qualitative study. A secondary analysis a consensus, multi-stage inclusive process designed establish core outcomes CKD [Standardised Outcomes Nephrology-Children Adolescents...
Abstract Background Globally, over 1.2 million people die from chronic kidney disease (CKD) every year. Patients with CKD are up to 10 times more likely prematurely than progress failure requiring replacement therapy. The burden of symptoms and impaired quality life in may be compounded by comorbidities treatment side effects. However, patient-important outcomes remain inconsistently infrequently reported trials patients CKD, which can limit evidence-informed decision-making. Standardised...
Diminished mental health is associated with increased morbidity and mortality may contribute to loss of independence motivation in patients receiving dialysis their caregivers. Increased understanding the patient perspective on triggers, impacts strategies for managing inform ways address conditions this population.
Children and adolescents in families of lower socioeconomic position (SEP) experience an inequitable burden reduced access to healthcare poorer health. For children living with chronic kidney disease (CKD), disadvantaged SEP may exacerbate their considerable burden. Across the life-course, CKD also compromise young people, leading accumulating health disadvantage. This narrative review summarizes current evidence on relationships care among from a life-course approach, including impacts...