A5084215271- Diabetes Management and Research
- Childhood Cancer Survivors' Quality of Life
- Patient-Provider Communication in Healthcare
- Adolescent and Pediatric Healthcare
- Writing and Handwriting Education
- Ethics in Clinical Research
- Educational and Psychological Assessments
- Diabetes Management and Education
- Social Media in Health Education
- Family and Patient Care in Intensive Care Units
- Empathy and Medical Education
- Child and Adolescent Health
- Discourse Analysis in Language Studies
- Family Support in Illness
- Health and Lifestyle Studies
- Cultural Competency in Health Care
- Family and Disability Support Research
- Child Abuse and Trauma
- Diabetes Treatment and Management
- Obesity and Health Practices
- Psychosocial Factors Impacting Youth
- Infant Health and Development
- Identity, Memory, and Therapy
- Patient Satisfaction in Healthcare
- Interprofessional Education and Collaboration
Nemours Children's Health System
2022-2025
Wilmington University
2014
Nemours Children's Clinic
2008-2011
Nemours Children’s Clinic
2005-2011
University of Southern Mississippi
2005
Wysocki T, Buckloh LM, Antal H, Lochrie A, Taylor A. Validation of a self-report version the diabetes self-management profile. Inadequate treatment adherence impedes achievement glycemic control targets in type 1 (T1D). Valid and reliable measurement is prerequisite to rigorous evaluation pertinent interventions. The profile (DSMP), structured interview measure T1D adherence, valid but it requires trained interviewers, labor intensive administer burdensome for research participants. We...
Youth with type 1 diabetes face long-term risks of health complications the disease. Little is known about patients' and parents' knowledge, acquisition information, family communication regarding these complications. This paper reports qualitative analyses parental focus-group discussions this topic.A total 47 participants (30 mothers, 14 fathers, 3 others) representing 33 children between ages 8 18 years participated in 13 focus groups. Open-ended questions focused on amount information...
Previously, we studied clinicians' and parents' perspectives about what, when, how youth with type 1 diabetes (T1D) parents should be taught major complications (MC) of T1D. Results showed that this topic creates considerable anxiety among parents, there is a perceived need to tailor these experiences each patient's circumstances, variability in opinions appropriate MC education. Prior studies did not measure youths' or actual knowledge complications, they cope knowledge, variables relate...
Background Burnout may lead to increased medical errors, which increases burnout and decreases quality of care. Peer support programs have evolved into key well-being initiatives. Methods We describe the structural design initial three-year experience a peer program across children's health care system. To assess program's impact, our biannual patient safety culture survey quantified how often staff were offered after adverse events, data used test associations between being incidence...
Obesity is the most prevalent chronic disease in childhood. There are many comorbidities associated with excess weight that preventable improved health. Prevention of medical obesity critical and should begin early, particularly childhood preadolescen
Audio-video recording of pediatric clinic visits could generate observational reactivity, affecting measures communication among patients, parents, and clinicians.We measured reactivity in a direct observation study during 155 for any 5 chronic conditions by coding camcorder awareness behaviors self-report questionnaires. We analyzed associations between behavior visit quality.Directly observed (634 events) comprised 0.59% all coded events (n = 107,668). Younger children displayed these more...
Avoiding complications is paramount in diabetes management, but little known about how, when, and what professionals disclose to parents youths this topic.Pediatric experts (n = 534) were surveyed their practices attitudes regarding informing youth long-term diabetic complications.Professionals reported giving more information parents, older children, children with longer duration than younger or newly diagnosed children. Principal components analysis was completed identify measurement...
This study evaluated insulin injection coping by parental report and video observation in children 3 to <11 years old with diabetes.Caregivers of 61 youth type 1 diabetes completed the Diabetes Injection Distress-Parent Report Form (DID-PRF); a subsample (n = 19; 30%) submitted recordings their children's injections.The DID-PRF demonstrated acceptable internal consistency moderately correlated recordings. Half parents 31; 51%) reported child's history distress; 30% reportedly experienced...
This Internet study surveyed 321 parents of youth with type 1 diabetes about family education regarding long-term complications (LTC). Parents reported their LTC learning experiences and opinions the amount/timing education. intense worry LTC, but focused initially on daily management. Most want input into children’s endorsed diverse methods to motivate self-care. felt that younger children should be deferred for several months after diagnosis adolescents begin soon diagnosis. A flexible...
To see if writing about former abuse reduced depression, somatic, and sleep complaints, 664 undergraduates were screened for past physical or sexual abuse. Of those abused, 88 consenting students randomly assigned to no-writing control (20 minutes on 4 different days) trivial topics. All completed pre-, post-, 4-week follow-up testing. At follow-up, all reported significantly less depression fewer somatic complaints; groups not different. For reporting abuse, interacting with professionals,...
Research participants often misunderstand the required elements of informed consent information, whether provided in written or oral format. Informed instruments with embedded evidence-based learning theory principles administered multimedia electronic formats may improve comprehension and retention.This study aims to determine information retention using an interactive video process was noninferior after in-person face-to-face interaction a conventional document for caregivers adolescents...
Objectives: Learning objectives: Define differences between integrated versus rotating team-based models of care Identify tools to assess professional fulfillment, burnout, and clinical efficiency Understand the impact on team members well-being Project objective/background: Team-based healthcare improves patient access, billable services, recruitment/retention (1). The staff roles tasks impacts working top license (2) which likely contribute fulfillment at work. However, measures comparing...