- Diabetes Management and Research
- Diabetes Management and Education
- Childhood Cancer Survivors' Quality of Life
- Adolescent and Pediatric Healthcare
- Child and Adolescent Psychosocial and Emotional Development
- Family Support in Illness
- Family and Patient Care in Intensive Care Units
- Child and Adolescent Health
- Diabetes Treatment and Management
- Obesity and Health Practices
- Ethics and Legal Issues in Pediatric Healthcare
- Social and Intergroup Psychology
- Psychosomatic Disorders and Their Treatments
- Migraine and Headache Studies
- Global Health Workforce Issues
- Pediatric Pain Management Techniques
- Grief, Bereavement, and Mental Health
- Adipokines, Inflammation, and Metabolic Diseases
- Patient Satisfaction in Healthcare
- Diabetes and associated disorders
- Regulation of Appetite and Obesity
- Family and Disability Support Research
- Eating Disorders and Behaviors
- Hyperglycemia and glycemic control in critically ill and hospitalized patients
- Nursing care and research
Nemours Children's Clinic
2005-2011
Nemours Children’s Clinic
2005-2011
University of Kansas
1996-2001
Washington University in St. Louis
2000
Behavioral family systems therapy (BFST) for adolescents with diabetes has improved relationships and communication, but effects on adherence metabolic control were weak. We evaluated a revised intervention, BFST (BFST-D).One hundred four families randomized to standard care (SC) or 12 sessions of either an educational support group (ES) BFST-D over 6 months. Family relationships, adherence, glycosylated hemoglobin (HbA1c), health utilization measured at baseline after treatment.BFST-D...
OBJECTIVE—Studies showing that family communication and conflict resolution are critical to effective management of type 1 diabetes in adolescents have stimulated interest evaluating psychological treatments targeting these processes. Previous trials shown Behavioral Family Systems Therapy (BFST) improved parent-adolescent relationships but not treatment adherence or glycemic control. This study evaluates a revised intervention, BFST for Diabetes (BFST-D), modified achieve greater impact on...
OBJECTIVE: The authors developed and validated a semi-structured interview; the Diabetes Self-Management Profile (DSMP), to measure self-management of type 1 diabetes. DSMP includes following regimen components: exercise, management hypoglycemia, diet, blood glucose testing, insulin administration dose adjustment. RESEARCH DESIGN AND METHODS: Families youths with diabetes (n = 105) who were entering controlled trial intensive therapy (IT) versus usual care (UC) administered Analyses assessed...
OBJECTIVE—This study assesses the effects of insulin pump therapy on diabetes control and family life in children 1–6 years old with type 1 diabetes. RESEARCH DESIGN AND METHODS—Twenty-six for ≥6 months were randomly assigned to current (two or three shots per day using NPH rapid-acting analog) continuous subcutaneous infusion (CSII) 6 months. After months, subjects offered CSII. Changes HbA1c, mean blood glucose (MBG), hypoglycemia frequency, diabetes-related quality (QOL), parental...
The aims of this study are to examine in children: (i) obesity‐related alterations satiety factors such as leptin, ghrelin, and obestatin; (ii) the link between cardiometabolic risk factors; (iii) impact a physical activity‐based lifestyle intervention on levels these obese. We studied total 21 adolescents (BMI percentile, 99.0 ± 0.6 for 15 obese 56.2 1.1 6 lean). subjects underwent 3‐month randomized controlled intervention. Leptin, soluble leptin receptor (sOB‐R), obestatin were determined...
Wysocki T, Buckloh LM, Antal H, Lochrie A, Taylor A. Validation of a self-report version the diabetes self-management profile. Inadequate treatment adherence impedes achievement glycemic control targets in type 1 (T1D). Valid and reliable measurement is prerequisite to rigorous evaluation pertinent interventions. The profile (DSMP), structured interview measure T1D adherence, valid but it requires trained interviewers, labor intensive administer burdensome for research participants. We...
Youth with type 1 diabetes face long-term risks of health complications the disease. Little is known about patients' and parents' knowledge, acquisition information, family communication regarding these complications. This paper reports qualitative analyses parental focus-group discussions this topic.A total 47 participants (30 mothers, 14 fathers, 3 others) representing 33 children between ages 8 18 years participated in 13 focus groups. Open-ended questions focused on amount information...
Previously, we studied clinicians' and parents' perspectives about what, when, how youth with type 1 diabetes (T1D) parents should be taught major complications (MC) of T1D. Results showed that this topic creates considerable anxiety among parents, there is a perceived need to tailor these experiences each patient's circumstances, variability in opinions appropriate MC education. Prior studies did not measure youths' or actual knowledge complications, they cope knowledge, variables relate...
Objective This article evaluated whether deviation from developmentally appropriate self-care autonomy moderated the effects of intensive therapy (IT) or usual care (UC) on glycosylated hemoglobin (HbA1C) in 142 youths with diabetes. Methods Youths received an autonomy/maturity ratio (AMR) score at baseline that was a standardized scores measures to psychological maturity and were categorized by tertile split into low, moderate, high AMR. Results Higher AMR associated higher HbA1C for IT UC....
Obesity is the most prevalent chronic disease in childhood. There are many comorbidities associated with excess weight that preventable improved health. Prevention of medical obesity critical and should begin early, particularly childhood preadolescen
This study evaluated the effectiveness of a multidisciplinary group appointment model for pediatric headaches. Eighty-one patients ages 10 to 18 were randomly assigned Traditional Clinic Model (TCM) or Headache (HCM) initial neurological appointment. In addition evaluation, HCM included educational session describing stressors contributing pain, pharmaceutical and behavioral treatments, guided relaxation skills practice. demonstrated greater gains in headache knowledge required slightly less...
Avoiding complications is paramount in diabetes management, but little known about how, when, and what professionals disclose to parents youths this topic.Pediatric experts (n = 534) were surveyed their practices attitudes regarding informing youth long-term diabetic complications.Professionals reported giving more information parents, older children, children with longer duration than younger or newly diagnosed children. Principal components analysis was completed identify measurement...
This Internet study surveyed 321 parents of youth with type 1 diabetes about family education regarding long-term complications (LTC). Parents reported their LTC learning experiences and opinions the amount/timing education. intense worry LTC, but focused initially on daily management. Most want input into children’s endorsed diverse methods to motivate self-care. felt that younger children should be deferred for several months after diagnosis adolescents begin soon diagnosis. A flexible...
To examine child and pediatric psychologists' ethical beliefs attitudes toward managed mental health care.In a survey mailed in spring 1997, 252 psychologists responded to three vignettes depicting dilemmas related working with care (confidentiality, restriction of services, misdiagnosis). Data were collected about choices reasons given for choices, care, the extent which affected decision making, level involvement.Differences found made regard what participants thought they should do, would...
This comment responds to an article by Range and Cotton (1995) on reporting of parental permission child assent procedures in published articles for 4 psychology journals. Issue is taken with the assumptions, methodology, interpretations, implications listing researchers article. There no evidence failed their ethical obligations or that children were put at risk. Reporting permission/assent publications not requirement. Listing as "failing" do something part code lamentable. Too many...