A5049778017- Childhood Cancer Survivors' Quality of Life
- Cancer survivorship and care
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Hematopoietic Stem Cell Transplantation
- Cancer-related cognitive impairment studies
- Acute Lymphoblastic Leukemia research
- Adolescent and Pediatric Healthcare
- Sexual function and dysfunction studies
- Multiple Myeloma Research and Treatments
- Neurological Complications and Syndromes
- LGBTQ Health, Identity, and Policy
- Hemoglobinopathies and Related Disorders
- Renal Transplantation Outcomes and Treatments
- Music Therapy and Health
- Brain Metastases and Treatment
- Musculoskeletal Disorders and Rehabilitation
- Prenatal Screening and Diagnostics
- Statistical Methods in Clinical Trials
- Economic and Financial Impacts of Cancer
- Innovations in Medical Education
- Hip disorders and treatments
- Multiple Sclerosis Research Studies
- Blood transfusion and management
- Optimism, Hope, and Well-being
University of Calgary
2018-2025
Alder Hey Children's Hospital
2025
University of Liverpool
2014-2025
Alberta Health Services
2016-2023
University of Ottawa
2011-2017
Fear of cancer recurrence (FCR) is a frequently cited and unmet need survivors. While the relation between age FCR well documented, mechanisms that may explain this phenomenon remain to be investigated. This study examined four possible FCR: motherhood, severity (defined as stage chemotherapy), anxiety, illness intrusiveness.3,239 women with breast (mean time since diagnosis: 6.6 years) completed Concerns About Recurrence Scale (CARS), State Trait Anxiety Inventory (STAI), Illness...
Fear of cancer recurrence (FCR) is a common concern among survivors. Identifying survivors with clinically significant FCR requires validated screening measures and clinical cut-offs. We evaluated the Cancer Recurrence Inventory-Short Form (FCRI-SF) cut-off in 2 samples.Level study 1 participants (from an Australian randomized controlled trial: ConquerFear) was compared FCRI-SF scores. Based on biopsychosocial interview, clinicians rated as having nonclinical, subclinical, or FCR. Study...
BACKGROUND To evaluate the impact of depression before autologous and allogeneic hematopoietic cell transplantation (HCT) on clinical outcomes post‐transplantation. METHODS We analyzed data from Center for International Blood Marrow Transplant Research to compare after (n = 3786) or 7433) HCT adult patients with hematologic malignancies an existing diagnosis pre‐HCT requiring treatment versus those without depression. Using Cox regression models, we compared overall survival (OS) between...
Advances in allogeneic hematopoietic cell transplantation for sickle disease have improved outcomes, but there is limited analysis of healthcare utilization this setting. We hypothesized that, compared to late transplantation, early (at age
Allogeneic hematopoietic cell transplantation (alloHCT) is offered in a limited number of medical centers and associated with significant direct indirect costs. The degree to which social geographic barriers reduce access alloHCT unknown. Data from the Surveillance, Epidemiology End Results Program (SEER) Center for International Blood Marrow Transplant Research (CIBMTR) were integrated determine rate unrelated donor (URD) acute myelogenous leukemia (AML), lymphoblastic (ALL),...
Introduction Surgical washout of the hip can be a life-saving procedure in management septic arthritis. Due to its time-sensitive nature, transfer tertiary paediatric centre may not always possible, requiring proficiency from all trauma and orthopaedic surgeons. Limited training opportunities, however, present challenges achieving proficiency. Cadaveric demonstration serve as relatively low-cost building block bridge this gap. This study evaluates effectiveness cadaveric teaching tool for...
Abstract Background Adolescents and young adults (AYAs; ages 15–29 years) diagnosed with cancer are increasingly recognized as an oncology population distinct psychosocial needs. However, few specialized interventions for AYAs currently exist. This study reports on the development of a novel group‐based psychotherapy intervention to address needs AYAs. The objective was evaluate acceptability, feasibility, preliminary effects intervention. Methods manualized group program is delivered...
Survivors of lung or head and neck cancers often change tobacco alcohol consumption after diagnosis, but few studies have examined other positive health changes (PHCs) their determinants in these groups. The present study aims to: (a) document PHCs survivors (n = 107) 99) (b) examine behavioural self-blame stigma as PHCs. We hypothesised that: would make a variety PHCs; for the disease positively predict making (c) negatively PHCs.Respondents self-administered measures PHC, self-blame,...
Follow-up is integral for hematopoietic cell transplantation (HCT) care to ensure surveillance and intervention complications. We characterized the incidence of predictors being lost follow-up. Two-year survivors first allogeneic HCT (10,367 adults 3865 children) or autologous (7291 467 malignant/nonmalignant disorders between 2002 2013 reported Center International Blood Marrow Transplant Research were selected. The cumulative follow-up (defined as having missed 2 consecutive reporting...
Background The association of community factors and outcomes after hematopoietic cell transplantation (HCT) has not been comprehensively described. Using the County Health Rankings Roadmaps (CHRR) Center for International Blood Marrow Transplant Research (CIBMTR), this study evaluated impact health status on allogeneic HCT outcomes. Methods This included 18,544 adult recipients reported to CIBMTR by 170 US centers in 2014‐2016. Sociodemographic, environmental, indicators were derived from...
Controversy surrounds the question of whether clinical trial participants have better outcomes than comparable patients who are not treated on a trial. We explored this using recent large, randomized, multicenter study comparing peripheral blood (PB) with bone marrow transplantation from unrelated donors, conducted by Blood and Marrow Transplant Clinical Trials Network (BMT CTN). compared characteristics (n = 494) nonparticipants 1384) appeared eligible received similar treatment without...
Adolescents and young adults (AYAs; 15–39 years) diagnosed with cancer have unique medical psychosocial needs. These needs could be better addressed through research that is focused on the topics matter most to them. However, there currently no patient-oriented agenda for AYA in Canada. This manuscript describes early development project protocol a priority-setting partnership (PSP) establishing top 10 priorities follows PSP methodology outlined by James Lind Alliance (JLA) engage patients,...
Abstract Objective Hematopoietic stem cell transplantation (HSCT) is a demanding treatment. Spouses of HSCT patients assume caregiving responsibilities that can induce feelings burden and disrupt relationship equity. On the basis equity theory, we propose conceptual framework examining individual dyadic experience their caregivers. The model includes inequity, patient self‐perceived burden, caregiver distress. Methods spousal caregivers were recruited prior to between March 2011 September...