A5064821363- Misinformation and Its Impacts
- Infant Development and Preterm Care
- Child Development and Digital Technology
- Patient-Provider Communication in Healthcare
- Childhood Cancer Survivors' Quality of Life
- Sepsis Diagnosis and Treatment
- Family and Patient Care in Intensive Care Units
- Adolescent and Pediatric Healthcare
- Epilepsy research and treatment
- Mobile Health and mHealth Applications
- Pediatric Pain Management Techniques
- COVID-19 and Mental Health
- Attachment and Relationship Dynamics
- Ethics and Legal Issues in Pediatric Healthcare
- Communication in Education and Healthcare
- Telemedicine and Telehealth Implementation
- Emergency and Acute Care Studies
- Diet and metabolism studies
- Children's Rights and Participation
- Healthcare Technology and Patient Monitoring
- Child and Adolescent Health
- Neonatal and Maternal Infections
- Neonatal Respiratory Health Research
- SARS-CoV-2 detection and testing
- Qualitative Research Methods and Applications
Edge Hill University
2018-2025
The aim of this study was to examine aspects children's health literacy; the information sources they were accessing, their preferences, perceived understanding and reported needs in relation COVID-19. An online survey for children aged 7-12 years age parent/caregivers from UK, Sweden, Brazil, Spain, Canada Australia conducted between 6th April 1st June 2020. surveys included demographic questions both closed open focussing on access COVID-19 information. Descriptive statistics qualitative...
Abstract Objective To explore experiences, benefits and concerns associated with remote (telephone/video) consultations from the perspectives of children young people juvenile idiopathic arthritis (JIA), their parents health professionals who were members a multidisciplinary team in paediatric rheumatology setting. Methods Qualitative design (Interpretive Description) utilizing observation follow-up interviews (7–18 years) JIA, professionals. The setting was tertiary clinic hospital...
Children continue to experience harm when undergoing clinical procedures despite increased evidence of the need improve provision child-centred care. The international ISupport collaboration aimed develop standards outline and explain good procedural practice rights children within context a procedure. rights-based for tests, treatments, investigations, examinations interventions were developed using an iterative, multi-phased, multi-method multi-stakeholder consensus building approach. This...
Objectives: To gain insight into children’s health-related knowledge and understanding of Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV2) COVID-19, measures adopted to mitigate transmission. Design: A child-centred qualitative creative element embedded in an online mixed-methods survey children aged 7–12 years. Setting: Children participated the study six countries – UK, Australia, Sweden, Brazil, Spain Canada. Method: component, survey, prompted draw label a picture. were...
The COVID-19 pandemic altered the way many people worked. Remote and creative ways were favoured utilised for consultation activities. In this paper, we draw attention to how have used methods over teleconferencing platform 'ZOOM' consult with children their parents when unable them face-to-face. We document a clear timeline of worked together co-create an animation information sheet about receiving outpatient parenteral antimicrobial therapy (OPAT). identify opportunities challenges faced.
Chronic pain (≥3 months) creates pain-related challenges that may negatively affect how young adults perceive themselves, and, indeed, they often report feeling different compared to peers and prospective romantic partners. Most studies of relationships in living with a long-term condition (including pain), do not consider the perspective their partner. We present findings qualitative, exploratory interview study (Phase 2 mixed methods study). This qualitative phase aimed explore chronic...
To describe how children in Sweden accessed and perceived information about SARS-CoV2 Covid-19 during the first phase of outbreak.This study is a substudy an international cross-sectional online mixed methods survey examining elements children's health literacy relation to Covid-19. The included multiple-choice questions, open-ended questions drawings collected from 50 Swedish (7-12 years). Data were analysed concurrently on descriptive level using statistics content analysis. Quantitative...
This paper emerges from a multidisciplinary research project called “Brews and Brows: Shaping Stories Eyebrows to Scousebrows” that entailed gathering stories about eyebrow grooming women men the city of Liverpool, UK, creating new taxonomy where none currently exists. The point departure for this is challenge negative commentary on Scousebrow in press social media by engaging people discussions surrounding personal significance shaping styling. In challenging denigration, uses data in-depth...
Failure to recognize and respond clinical deterioration in a timely effective manner is an urgent safety concern, driving the need for early identification systems be embedded care of children hospital. Pediatric warning (PEWS) or PEW scores alert health professionals (HPs) signs deterioration, trigger review escalate as needed. scoring allows HPs record child's vital other key data including parent concern. This study aimed explore experiences perceptions parents about acceptability newly...
The aim of this study was to scope communication curriculum reported as currently being delivered within undergraduate children's nursing programmes across the Republic Ireland and United Kingdom. Communication between a nurse child/young person influences person's healthcare experience. Despite an identified need for comprehensive effective nursing, there is notable gap understanding delivery content training curricula. A mixed method, online anonymous self-report survey design adopted....
<h3>Objectives</h3> Sepsis is a leading cause of deterioration to unplanned transfer critical care (UTCC) in hospitalised children, but there are few published studies evaluating the predictive performance severity scores outside care. We aimed compare eight different predicting UTCC and multiple organ dysfunction syndrome (MODS) children treated for sepsis. <h3>Methods</h3> Eligible inpatients who were sepsis before having UTCCs identified prospectively between 1 March 2018 28 February...
Aims & Objectives: The recognition of sepsis in children remains difficult. Our aim was to determine if implementation electronic PEWS (Careflow Vitals) and a secure encrypted communication system Connect), with proactive screening bundle prompts, would lead reduction the number unplanned transfers critical care (UTCC) due sepsis. Methods: An age-specific paediatric early warning (PEWS) implemented tertiary children's hospital. software prompted pro-active monitoring. When suspicion is...
Introduction Sleep and epilepsy have an established bidirectional relationship yet only one randomised controlled clinical trial has assessed the effectiveness of behavioural sleep interventions for children with epilepsy. The intervention was successful, but delivered via face-to-face educational sessions parents, which are costly non-scalable to population level. Changing Agendas on Sleep, Treatment Learning in Epilepsy (CASTLE) Sleep-E addresses this problem by comparing...
<h3>Aims</h3> We aim to showcase how we engaged with children and their parents via a teleconferencing platform (Zoom) using the power of illustration trigger recall going home on outpatient parenteral antimicrobial therapy (OPAT). This co-creative consultation work was conducted address need, identified by in previous research study, for enhanced preparation information about OPAT. <h3>Methods</h3> Children (n=4) who had received OPAT were invited participate clinicians team at children's...
Abstract Background Paediatric early warning systems (PEWS) alert health professionals to signs of a child’s deterioration with the intention triggering an urgent review and escalating care. They can reduce unplanned critical care transfer, cardiac arrest, death. Electronic may be superior paper-based systems. The objective study was critically explore initial experiences perceptions about acceptability DETECT e-PEWS, what factors influence its acceptability. Methods A descriptive...
Background Paediatric early warning systems (PEWS) are a means of tracking physiological state and alerting healthcare professionals about signs deterioration, triggering clinical review and/or escalation care children. A proactive end-to-end deterioration solution (the DETECT surveillance system) with an embedded e-PEWS that included sepsis screening was introduced across tertiary children’s hospital. One component the implementation programme sub-study to determine understanding in terms...
This study aimed to understand the role that parents play in sharing or limiting their child’s access information about coronavirus disease 2019 (COVID-19). A subset of data from an international mixed methods online survey was analysed elucidate findings Brazil. An survey, conducted between April and June 2020, gathered closed open text views children aged 7–12 years old. Quantitative were using descriptive statistics. Qualitative three stages Bardin content analysis framework: pre-analysis...
Electronic early warning systems have been used in adults for many years to prevent critical deterioration events (CDEs). However, implementation of similar technologies monitoring children across the entire hospital poses additional challenges. While concept such is promising, their cost-effectiveness not established use children. In this study we investigate potential direct cost savings arising from DETECT surveillance system.Data were collected at a tertiary children's United Kingdom. We...
<h3>Introduction</h3> Children and young people (CYP) with epilepsy consult clinicians for management of their seizures but may require advice support a range broader topics, including sleep. However, understanding clinicians' perspectives providing this is limited. This study aimed to identify, from clinicians, the extent which they are asked about sleep in clinical appointments by CYP parents/carers and, further, establish how equipped feel families around topic. <h3>Method</h3> As part...
Background and purposeChildren young people (CYP) with epilepsy see healthcare professionals (HCPs) for management of their seizures but may require information, advice support a range broader topics. The purpose the survey was to identify from HCPs, which topics CYP parents/carers ask about other than seizure management, how adequately HCPs feel able them these topics.MethodA cross-sectional online used collect data. Adverts included link were shared via social media channels, professional...