A5013817896- Cancer survivorship and care
- BRCA gene mutations in cancer
- Patient-Provider Communication in Healthcare
- Childhood Cancer Survivors' Quality of Life
- Palliative Care and End-of-Life Issues
- Family Support in Illness
- COVID-19 and healthcare impacts
- Economic and Financial Impacts of Cancer
- Health Systems, Economic Evaluations, Quality of Life
- Cancer-related cognitive impairment studies
- COVID-19 and Mental Health
- Interprofessional Education and Collaboration
- Ovarian cancer diagnosis and treatment
- Focus Groups and Qualitative Methods
- Aging and Gerontology Research
- Pancreatic and Hepatic Oncology Research
- Geriatric Care and Nursing Homes
- Intraperitoneal and Appendiceal Malignancies
- Ethics in Clinical Research
- Pelvic floor disorders treatments
- Medical Malpractice and Liability Issues
- Nutrition and Health in Aging
- Social Media in Health Education
- Patient Satisfaction in Healthcare
- Health Literacy and Information Accessibility
Dana-Farber Cancer Institute
2017-2025
Harvard University
2022-2025
Lemuel Shattuck Hospital
2023
Northeastern University
2017-2022
Creative Commons
2019
Universidad del Noreste
2017
University of Massachusetts Boston
2017
Boston College
2013
GTx (United States)
2013
Recruitment of health research participants through social media is becoming more common. In the United States, 80% adults use at least one platform. Social platforms may allow researchers to reach potential efficiently. However, online methods be associated with unique threats sample validity and data integrity. Limited has described issues quality authenticity recruitment media, sources low-quality fraudulent in this context are poorly understood.The goal was describe explain integrity...
Background Loneliness and social isolation are significant public health problems that being exacerbated during the coronavirus disease 2019 pandemic. Little is known about associations between loneliness symptom burden in oncology patients before Study purposes include determining prevalence of a sample patients; evaluating for differences demographic, clinical, characteristics lonely nonlonely which were associated with membership group. Methods A convenience (n = 606) completed online...
No information is available on cancer patients' knowledge of and experiences with COVID-19. We undertook an evaluation differences in COVID-19 symptom occurrence rates, testing clinical care activities, COVID-19, use mitigation procedures between patients who were not receiving active treatment.Patients enrolled > 18 years age; had a diagnosis cancer; able to complete the emailed study survey online.Of 174 participated, 27.6% (n = 48) treatment, 13.6% unemployed because 12.2% been tested for...
To identify distinct morning and evening fatigue profiles in patients with gynecologic cancers evaluate for differences demographic clinical characteristics, common symptoms, quality-of-life outcomes. Outpatients (N = 233) were recruited before their second or third cycles of chemotherapy at four cancer centers San Francisco Bay New York. The Lee Fatigue Scale was completed six times over two the evening. Latent profile analysis used to profiles. Four classes identified. Common risk factors...
The aims of this study were to characterize patients' distress, psychological symptoms, and resilience during the COVID-19 pandemic, evaluate differences in experiences, resilience, symptoms patients with without distress. Convergent parallel mixed-methods. Semistructured interviews structured questionnaires. Interview transcripts analyzed using content analysis. Differences demographic clinical characteristics, depression, anxiety, identified chi-square, Fisher's exact, independent sample t...
Abstract Background People with advanced ovarian cancer and their caregivers report unmet supportive care needs. We developed a Collaborative Agenda-Setting Intervention (CASI) to elicit patients’ caregivers’ needs through the patient portal before clinic visit communicate these clinicians using electronic health record. Objective aimed assess usability acceptability of CASI identify barriers facilitators its implementation. Methods recruited English- Spanish-speaking patients, caregivers,...
In this article, the authors describe development and pilot testing of an electronic bedside communication center (eBCC) prototype to improve access health information for hospitalized adults their family caregivers. Focus groups were used identify improvements initial eBCC developed by research team. Face-to-face interviews questions presented while patients usability drive further development. Qualitative methods within iterative, participatory approach supported that was considered both...
To describe ratings of symptom occurrence, severity, and distress for 38 symptoms to identify compare the number types clusters identified using these ratings. Although patients with gynecologic cancer experience multiple co-occurring symptoms, little is known about how cluster together.Eligible (N = 232) had were receiving chemotherapy.Symptoms assessed Memorial Symptom Assessment Scale. through exploratory factor analysis. Geomin-rotated loadings absolute values 0.3 or greater considered...
Background Patients with gynecologic cancer undergoing chemotherapy experience multiple co-occurring symptoms. Understanding how symptom clusters change over time is essential to the development of interventions that target Objective The aim this study was assess relative stability across a cycle in patients cancer. Methods This longitudinal, descriptive study. Eligible (n = 232) were English-speaking adults (≥18 years old) Data collected week before patients' second or third (T1) and at 1...
AbstractA growing population of older adults is living alone, yet little known about their need to maintain a sense autonomy. In this study, an interdisciplinary team design, nursing, and marketing researchers examined the patterns adults' autonomy proposed service assist life transitions. The objectives include: (1) exploring principle as core value design case study for adults; (2) identifying daily needs in relation autonomy; (3) improving aging by implementing human-centred approach...
Purpose: To describe the cancer care process as it is perceived by women with ovarian cancer. Participants & Setting: 18 English-speaking adult were recruited from an advocacy organization for patients and gynecologic oncology clinic at a community-based teaching hospital in Burlington, Massachusetts. Methodologic Approach: A grounded theory approach was used. Data collected via individual interviews participants. Findings: An overarching theme of preserving oneself face uncertainty...
To explore gender differences in bladder cancer treatment decision making. .Secondary qualitative analysis of interview transcripts. .One multidisciplinary genitourinary oncology clinic (Dana-Farber Cancer Institute) and two urology clinics (Brigham Women's Hospital Beth Israel Deaconess Medical Center) Boston, MA. .As part the original study, 45 men 15 women with participated individual interviews. Participants were primarily Caucasian, most had at least some college education. .Word...
Evidence suggests that energy is a distinct symptom from fatigue in patients with cancer. The purpose of this paper to present the Multidimensional Model Energy Patients Cancer (MMEPC) based on emerging evidence and make recommendations for clinical practice future research. literature was reviewed determine various factors associated variations In addition, some model supported by studies general population other chronic conditions. Based review literature, specific concepts MMEPC include:...