A5026794760- Parkinson's Disease Mechanisms and Treatments
- Cerebral Palsy and Movement Disorders
- Health Systems, Economic Evaluations, Quality of Life
- Balance, Gait, and Falls Prevention
- Chronic Disease Management Strategies
- Neurological disorders and treatments
- Dysphagia Assessment and Management
- Parkinson's Disease and Spinal Disorders
- Voice and Speech Disorders
- Dementia and Cognitive Impairment Research
- Amyotrophic Lateral Sclerosis Research
- Botulinum Toxin and Related Neurological Disorders
- Autism Spectrum Disorder Research
- Restless Legs Syndrome Research
- Musculoskeletal pain and rehabilitation
- Genetic Neurodegenerative Diseases
- Assistive Technology in Communication and Mobility
- Muscle activation and electromyography studies
- Family Support in Illness
- Spine and Intervertebral Disc Pathology
- Mental Health and Patient Involvement
- Neurogenetic and Muscular Disorders Research
- Anesthesia and Pain Management
- Healthcare innovation and challenges
- Family and Disability Support Research
Radboud University Medical Center
2014-2024
Radboud University Nijmegen
2014-2024
Centre for Movement Disorders
2021
University Medical Center
2017-2021
Dutch Expert Centre for Screening
2021
Rode Kruis-Vlaanderen
2011
Netherlands Institute for Neuroscience
2009
Zorginstituut Nederland
2007
American Physical Therapy Association
2006
Background: Our health care system faces major threats as the number of people with multiple chronic conditions rises dramatically. Objective: To study use Online Health Communities (OHCs) a tool to facilitate high-quality and affordable for future generations. Methods: OHCs are Internet-based platforms that unite either group patients, professionals, or mixture both. Members interact using modern communication technologies such blogs, chats, forums, wikis. We illustrate ParkinsonNet,...
Cognitive-behavioral factors are considered important in the development of chronic disability and pain patients with low back pain. In a prospective cohort study 277 undergoing surgery for lumbosacral radicular syndrome, predictive value preoperatively measured cognitive-behavioral (fear movement/(re)injury, passive coping, negative outcome expectancies) intensity at 6 weeks months after was investigated, taking into account effect possible confounding variables. Higher levels were found to...
Abstract Falls are common in patients with Huntington's disease, but the incidence, falling circumstances and contributing factors have never been examined. We recorded falls 45 early to midstage disease patients, both retrospectively (12 months) prospectively (3 months). Fall rates were related relevant baseline measures, including Unified Disease Rating Scale (UHDRS) quantitative measures of balance (using angular velocity sensors) gait a pressure‐sensitive walkway). Balance compared...
Optimal management in expert centers for Parkinson's disease (PD) usually involves pharmacological and non-pharmacological interventions, delivered by a multidisciplinary approach. However, there is no guideline specifying how this model should be organized. Consequently, the nature of care varies widely.
Providing informal care for a person with Parkinson's disease (PD) can be demanding process affecting several dimensions of caregiver's life and potentially causing caregiver burden. Despite the emerging literature on burden in people PD, little is known about inter-relationship between quantitative qualitative findings. Filling this knowledge gap will provide more holistic approach to develop design innovations aiming at reducing or even preventing This study aimed characterize determinants...
The quality and efficiency of allied health care in Parkinson's disease (PD) must be improved. We have developed the ParkinsonNet concept: a professional regional network within catchment area hospitals. aims to: (1) improve PD-specific expertise among personnel, by training selected number therapists according to evidence-based guidelines; (2) enhance accuracy referrals neurologists; (3) boost patient volumes per therapist, stimulating preferred referral therapists; (4) stimulate...
ParkinsonNet, a low-cost innovation to optimize care for patients with Parkinson disease, was developed in 2004 as network of physical therapists several regions the Netherlands. Since that time, has achieved full national reach, 70 regional networks and around 3,000 specifically trained professionals from 12 disciplines. Key elements include empowerment who are highly specialized by education consultation, integrated multidisciplinary teams better address manage disease. Studies have found...
Abstract We retrospectively and prospectively assessed the frequency characteristics of falls in patients with degenerative cerebellar ataxias. The results show that occur very frequently ataxias these are serious often lead to injuries or a fear falling. Clinicians should be aware this problem ataxia try prevent falls. © 2005 Movement Disorder Society
Abstract There is evidence for the efficacy of allied health care in Parkinson's disease (PD). However, barriers exist that hamper implementation into daily practice. We conducted a survey to investigate: (1) what extent PD patients currently utilize relevant problems core areas and (2) level PD‐specific expertise among professionals. Questionnaires were sent 260 297 Referral rates 63% physical therapy, 9% occupational 14% speech therapy. with can potentially be alleviated by input from...
Drooling is an incapacitating feature of Parkinson's disease. Better pathophysiological insights are needed to improve treatment. In this study, we tested the hypothesis that cause drooling multifactorial. We examined 15 patients with disease distinct diurnal saliva loss ("droolers") and without complaints ("nondroolers"). evaluated all factors could potentially contribute drooling: swallowing capacity (maximum volume), functional (assessed dysphagia subscale Therapy Outcome Measures for...
Objectives To determine the prevalence of nonmotor symptoms ( NMS ) in nursing home NH residents with P arkinson's disease PD and to establish association quality life. Design Cross‐sectional. Setting Nursing homes southeast N etherlands. Participants a M ini‐ ental S tate E xamination score 18 or greater (N = 73; mean age 78.7, duration 10 years, mainly H oehn Y ahr Stages 4 (38%) 5 (49%)) underwent detailed examination . Measurements Validated instruments for ‐related were used examine The...