A5074906545- Healthcare Policy and Management
- Mental Health and Patient Involvement
- Adolescent and Pediatric Healthcare
- Child and Adolescent Health
- Family and Patient Care in Intensive Care Units
- Childhood Cancer Survivors' Quality of Life
- Patient-Provider Communication in Healthcare
- COVID-19 and Mental Health
- COVID-19 and healthcare impacts
- Respiratory Support and Mechanisms
- Health Policy Implementation Science
- Geriatric Care and Nursing Homes
- Healthcare cost, quality, practices
- Ethics and Legal Issues in Pediatric Healthcare
- Intensive Care Unit Cognitive Disorders
- Interprofessional Education and Collaboration
- Interpreting and Communication in Healthcare
- Information Systems Theories and Implementation
- Family and Disability Support Research
- Healthcare innovation and challenges
- Hospital Admissions and Outcomes
- Health Systems, Economic Evaluations, Quality of Life
- Respiratory viral infections research
- Emergency and Acute Care Studies
- Language, Discourse, Communication Strategies
University of Toronto
2016-2025
Hospital for Sick Children
2020-2025
SickKids Foundation
2020-2025
Institute for Clinical Evaluative Sciences
2021-2025
Research Network (United States)
2024
Public Health Ontario
2024
Institute for Work & Health
2023
Women's College Hospital
2023
Walsh University
2022
Royal Devon & Exeter NHS Foundation Trust
2020-2021
KEY POINTS As of June 21, 6982 individuals in Canada aged 19 years and younger, hereafter referred to as children young people, had tested positive for severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, leading 98 hospital admissions 20 intensive care admissions, but
Importance The COVID-19 pandemic resulted in multiple socially restrictive public health measures and reported negative mental impacts youths. Few studies have evaluated incidence rates by sex, region, social determinants across an entire population. Objective To estimate the of hospitalizations for conditions, stratified determinants, children adolescents (hereinafter referred to as youths ) young adults comparing prepandemic pandemic-prevalent periods. Design, Setting, Participants This...
Abstract Background Descriptions of the COVID-19 pandemic’s indirect consequences on children are emerging. We aimed to describe impacts pandemic with medical complexity (CMC) and their families. Methods A one-time survey Canadian paediatricians using Paediatric Surveillance Program (CPSP) was conducted in Spring 2021. Results total 784 responded survey, 70% ( n = 540) providing care CMC. Sixty-seven (12.4%) reported an adverse health outcome due a pandemic-related disruption healthcare...
<h3>Importance</h3> Identifying conditions that could be prioritized for research based on health care system burden is important developing a agenda the of hospitalized children. However, existing prioritization studies are decades old or do not include data from both pediatric and general hospitals. <h3>Objective</h3> To assess prevalence, cost, variation in cost hospitalizations at all hospitals Ontario, Canada, with aim identifying future research. <h3>Design, Setting, Participants</h3>...
BACKGROUND/OBJECTIVES Patients who use a language other than English (LOE) for health care communication are at increased risk of experiencing adverse events and worse outcomes. The objectives this research (1) to understand the lived experience families speak LOEs around hospitalization their child (2) perspectives patients on opportunities improve experiences during hospitalization. METHODS This study is grounded in patient- family-informed research. We designed qualitative involving...
<h3>Importance</h3> The research agenda in pediatric hospital medicine has seldom considered the perspectives of young people, parents and caregivers, health care professionals. Their may be useful identifying questions on topics for research. <h3>Objective</h3> To prioritize unanswered from parents/caregivers, <h3>Design, Setting, Participants</h3> Between August 4, 2020, 19, 2021, two online surveys a virtual workshop were conducted, using modified Delphi technique nominal group technique....
Hospitalizations for eating disorders rose dramatically during the COVID-19 pandemic. Public health restrictions, or stringency, are believed to have played a role in exacerbating disorders. Few studies of pandemic extended period when public stringency restrictions were lifted.
Background: Efforts to involve parents and families in all aspects of research, from initiating the question through dissemination knowledge exchange, are increasing.While social media as a method for health communication has shown numerous benefits, including increasing accessibility, interactions with others, access care information, little work been published on use enhance research partnerships.Objective: Our objective was describe development evaluation Web-based advisory community,...
Patient and family engagement has become a widely accepted approach in health care research. We recognize that research conducted partnership with people relevant lived experience can substantially improve the quality of lead to meaningful outcomes. Despite benefits patient-researcher collaboration, teams sometimes face challenges answering questions how patient partners should be compensated, due limited guidance lack infrastructure for acknowledging partner contributions. In this paper, we...
The idea that actions of people, organizations or governments may lead to Unintended Consequences (UICs) is not new. In health, UICs have been reported as a result various interventions including quality improvement initiatives, health information technology implementation, and knowledge translation, especially those involving translation broad policies (evidence-based medicine patient-centred care) system level into actionable items tools. While some unintended consequences cannot be...
BACKGROUND AND OBJECTIVE In Canada and the United States, ∼1 in 5 children live poverty, contributing to poor health outcomes. Families with chronic illness may experience additional financial stress related hospitalization. This study aimed capture experiences of needs supports among caregivers a child admitted tertiary care pediatric hospital inform hospital-based services reduce families. METHODS We recruited general inpatient ward an academic center using purposive sampling no exclusion...
Engaging patients and family members as partners in research studies has become a widespread practice healthcare. However, relatively little been documented about what happens after the study ends. For example, is patient engagement embedded wider infrastructure of organizations, if so how? What are long-term effects engaging parents on teams culture how conducted? This seeks to address these two gaps by examining built over time at CanChild Centre for Childhood Disability Research McMaster...
KEY POINTS The Long-Term In-Home Ventilator Engagement (LIVE) program is a new virtual care program, rolled out during the coronavirus disease 2019 (COVID-19) pandemic to enable specialized centres provide support people using home mechanical ventilation (HMV). At present, 251 patients
The Canadian Institutes for Health Research launched a national 'Strategy Patient-Oriented Research' (SPOR) in 2011. Patient-oriented research is defined as continuum of that engages patients partners, focuses on patient-identified priorities, and improves patient outcomes. Capacity development core element SPOR. Barriers to patient-oriented include unfamiliarity with the process families methods family engagement researchers.
Shared decision-making (SDM), a collaborative approach to reach decisional agreement, has been advocated as an ideal model of in the medical encounter. Frameworks for SDM have developed largely from clinical context competent adult patient facing single problem, presented with multiple treatment options informed by solid base evidence. It is difficult apply this pediatric setting and children complexity (CMC), specifically since parents CMC often face myriad interconnected decisions minimal...
Background Clinical management of ventilator-assisted individuals (VAIs) was challenged by social distancing rules during the COVID-19 pandemic. In May 2020, Long-Term In-Home Ventilator Engagement (LIVE) Program launched in Ontario, Canada to provide intensive digital care case VAIs. The purpose this qualitative study explore acceptability LIVE hosted via a platform pandemic from diverse perspectives. Methods We conducted descriptive (May 2020–April 2021) comprising semi-structured...
Severe respiratory disease declined during the COVID-19 pandemic, partially due to decreased circulation of pathogens. However, outcomes children with higher risk have not been described using population-based data.
<h3>Background:</h3> Patient and family engagement is thought to improve the quality relevance of child health research. We developed evaluated usability Engagement 101, an e-learning module designed strengthen patient-oriented research readiness care professionals, researchers, trainees other stakeholders. <h3>Methods:</h3> The development 101 was co-led by a parent researcher overseen diverse multistake-holder steering committee. refined using mixed-methods testing approach with 2...