- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- Family Support in Illness
- Childhood Cancer Survivors' Quality of Life
- Patient-Provider Communication in Healthcare
- Grief, Bereavement, and Mental Health
- Patient Dignity and Privacy
- Religion, Spirituality, and Psychology
- Cancer-related cognitive impairment studies
- Attachment and Relationship Dynamics
- Economic and Financial Impacts of Cancer
- Sexual function and dysfunction studies
- Family and Patient Care in Intensive Care Units
- Migration, Health and Trauma
- Chronic Disease Management Strategies
- Psychometric Methodologies and Testing
Netherlands Comprehensive Cancer Organisation
2018-2025
Canisius-Wilhelmina Ziekenhuis
2025
Nederlandse Vereniging voor Kindergeneeskunde
2021-2023
Tilburg University
2021-2023
Libra Revalidatie & Audiologie
2021-2022
Cancer threatens the social well-being of patients and their informal caregivers. Social life is even more profoundly affected in advanced diseases, but research on consequences cancer scarce. This study aims to explore as experienced by Seven focus groups seven in-depth semi-structured interviews with (n = 18) suffering from caregivers 15) were conducted. Audiotapes transcribed verbatim open coded using a thematic analysis approach. categorized three themes: "social engagement," identity,"...
Abstract Purpose Relatives are often involved in caregiving for patients with advanced cancer and carry a heavy burden. Self-care resilience might be beneficial to enhance their wellbeing burden-bearing capacity. This study assessed the engagement self-care relatives of its association caregiver Methods analyzed baseline data eQuiPe study, prospective longitudinal, multicenter, observational on quality care life which (Self-care Practices Scale), (Connor-Davidson Resilience burden (Zarit...
Background: Patients with advanced cancer often have emotional problems such as inadequate coping, fear of new metastases, or the prospect enduring physical suffering. Some will need professional support to cope these problems. Accurately identifying patients requires a thorough understanding their characteristics.
Abstract Background Palliative care is becoming increasingly important because the number of patients with an incurable disease growing and their survival improving. Previous research tells us that early palliative has potential to improve quality life (QoL) in advanced cancer relatives. According limited on Netherlands, relatives find current suboptimal. The aim eQuiPe study understand experienced (QoC) QoL further care. Methods A prospective longitudinal observational cohort conducted...
Abstract To take cancer survivorship research to the next level, it’s important gain insight in trajectories of changing patient-reported outcomes and impaired recovery after cancer. This is needed as number survivors increasing a large proportion confronted with health treatment. Mechanistic can facilitate development personalized risk-stratified follow-up care tailored interventions promote healthy survivorship. We describe how these be studied by taking recently extended Dutch...
BACKGROUND Threatening illness perceptions (IPs) have been associated with poorer health outcomes. However, to the authors' knowledge, it remains unclear whether threatening IPs that are consistent disease severity equally harmful. The aim of current study was to: 1) identify subgroups cancer survivors based on and prognosis; 2) assess health‐related quality life (HRQOL) survival these subgroups. METHODS authors used survey data from population‐based Patient Reported Outcomes Following...
Objectives The care needs of patients with advanced cancer and their relatives change throughout the disease trajectory. This study focused on care-related problems relatives. was done from perspective centres for information support. Methods cross-sectional used data eQuiPe study: an observational cohort in which 40 Dutch hospitals participated. All adult a diagnosis metastasised tumour were eligible. Measures included patients’ relatives’ needs, assessed by short version Problems Needs...
How patients and their partners cope with advanced cancer as a couple, may impact emotional functioning (EF). The aim of this study was to assess dyadic coping (DC) couples confronted its association EF.Actor-partner interdependence models were used analyze baseline data 566 facing participating in an observational on quality care life. Measures included the DC Inventory European Organization for Research Treatment Cancer life questionnaire (EOQLQ-C30).Negative (mean 86-88) most often common...
Relatives of patients with advanced cancer often have many caring responsibilities. Not everyone may sufficient knowledge, skills, and confidence-also known as caregiver activation-to provide such care. We assessed activation in relatives its association their personal characteristics own well-being.A cross-sectional study among cancer. Measures included (C-PAM), resilience, self-care, burden, depressive symptoms, quality life, social well-being. The C-PAM distinguishes four levels...
Abstract Objective Although the Dutch Functional Assessment of Chronic Illness Therapy—Spiritual Well‐Being 12 Item Scale (FACIT‐Sp‐12) has been used in several studies, no study assessed measurement properties translation. The aim this was to perform an item‐reduction analysis, confirmatory factor analysis (CFA), test reliability, and convergent validity. Methods From baseline data a cohort on experienced quality care life (eQuiPe study), 400 advanced cancer patients without missing values...
The death of a loved one is considered as the most stressful life events. During COVID-19 pandemic, grief processes are potentially affected by measures such social distancing and self-quarantine.The aim this study was to give insight in impact pandemic on quality life, support, self-care bereaved relatives people with advanced cancer order evaluate whether care for during should be improved.A cross-sectional analysis using data from prospective, longitudinal, multicenter, observational...
Cancer and its treatment can severely affect sexual health. It is unknown how this may relate to the feelings of closeness between patients their partners.To assess association health in relationship couples coping with advanced cancer.This study was part a prospective multicentre longitudinal observational cohort on experienced quality care life cancer relatives (eQuiPe).Baseline data regarding people partners.Out 566 dyads, 14 were same-sex couples. Especially male partners showed an...
Objective: The aim of this study is to explore the essential aspects health care according patients with advanced cancer and their informal caregivers by using a dyadic approach. Methods: Seven focus groups 7 in-depth semi-structured interviews were conducted. Patients recruited between January 2017 June in 6 Dutch hospitals. All audiotaped, transcribed verbatim, open coded thematic analysis For Atlas.ti was used. Results: There congruence mentioned caregiver. Two quality arose: "relation"...
Abstract Purpose Advance Care Planning (ACP) is positively associated with the quality of care, but its impact on emotional functioning ambiguous. This study investigated association between perceptions ACP involvement and in patients advanced cancer. Methods analyzed baseline data 1,001 eQuiPe study, a prospective, longitudinal, multicenter, observational care life cancer Netherlands. Patients metastatic solid were asked to participate November 2017 January 2020. Patients’ measured by three...
Abstract Purpose We aimed to investigate measurement invariance (MI) in the European Organisation for research and treatment of cancer quality life questionnaire core 30 (EORTC QLQ-C30) a heterogeneous sample patients with cancer. Methods Data from 12 studies within PROFILES registry were used secondary analyses ( n = 7007). tested MI by successive restrictions on thresholds, loadings, intercepts across subgroups based primary sites, age, sex, time since diagnosis, stage, using multigroup...
3 Background: Previous studies on experienced quality of care and life have not addressed the reciprocal relation between patients their relatives. For first time we were able to include almost 700 couples (patient – relative) in a palliative oncological context. This study aims assess emotional functioning (EF) with advanced cancer relatives, including by using dyadic approach. Methods: A prospective multicentre observational among recruited from 40 hospitals Netherlands or self-enrolled...
The death of a loved one is considered to be the most stressful all life events. However, impact bereavement on quality varies between individuals. aim our study was assess emotional functioning (EF), which domain life, bereaved relatives after their and its associated factors.A prospective, longitudinal, multicenter, observational care patients with advanced cancer conducted (eQuiPe). association EF during following factors investigated: gender, type relationship, educational level,...