A5046455192- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Patient-Provider Communication in Healthcare
- Childhood Cancer Survivors' Quality of Life
- Patient Dignity and Privacy
- Family Support in Illness
- Family and Patient Care in Intensive Care Units
- Healthcare professionals’ stress and burnout
- Occupational and environmental lung diseases
- Gastric Cancer Management and Outcomes
- Economic and Financial Impacts of Cancer
- Global Cancer Incidence and Screening
- Health Systems, Economic Evaluations, Quality of Life
- Interpreting and Communication in Healthcare
- Humor Studies and Applications
- Geriatric Care and Nursing Homes
- Pain Management and Opioid Use
- Social Media in Health Education
- Dietary Effects on Health
- Employee Welfare and Language Studies
- Lung Cancer Diagnosis and Treatment
- Musculoskeletal pain and rehabilitation
- Narrative Theory and Analysis
- Esophageal Cancer Research and Treatment
- Acute Lymphoblastic Leukemia research
Netherlands Comprehensive Cancer Organisation
2017-2025
University of Groningen
2023
Nederlandse Vereniging voor Kindergeneeskunde
2021-2023
Bohn Stafleu van Loghum (Netherlands)
2021-2022
University of the Witwatersrand
2020
Amsterdam Public Health
2014-2015
Amsterdam UMC Location Vrije Universiteit Amsterdam
2015
Abstract Background Patients' preferences and expectations should be taken into account in treatment decision making the last phase of life. Shared ( SDM ) is regarded as a way to give patient central role making. Little known about how used clinical practice advanced cancer care. Objective To examine whether steps can recognized second‐ third‐line chemotherapy. Methods Fourteen patients were followed over time using face‐to‐face in‐depth interviews observations patients' out‐clinic visits....
Purpose Patients are often encouraged to participate in treatment decision-making. Most studies on this subject focus choosing between different curative types. In the last phase of life decisions differ as they put more emphasis weighing quantity against quality life, such whether or not start aimed at prolongation but with possibility side effects. This study obtain insight into cancer patients' preferences and reasons for preferred role decision-making end life. Methods 28 advanced...
Cancer threatens the social well-being of patients and their informal caregivers. Social life is even more profoundly affected in advanced diseases, but research on consequences cancer scarce. This study aims to explore as experienced by Seven focus groups seven in-depth semi-structured interviews with (n = 18) suffering from caregivers 15) were conducted. Audiotapes transcribed verbatim open coded using a thematic analysis approach. categorized three themes: "social engagement," identity,"...
Abstract Purpose Relatives are often involved in caregiving for patients with advanced cancer and carry a heavy burden. Self-care resilience might be beneficial to enhance their wellbeing burden-bearing capacity. This study assessed the engagement self-care relatives of its association caregiver Methods analyzed baseline data eQuiPe study, prospective longitudinal, multicenter, observational on quality care life which (Self-care Practices Scale), (Connor-Davidson Resilience burden (Zarit...
ContextEvidence-based guidance for oncologists on how to communicate prognosis is scarce.ObjectivesTo investigate the effects of prognostic communication strategies (prognostic disclosure vs. unpredictability non-disclosure; standard and best-case standard, best- worst-case survival scenarios; numerical word-based estimates) perceptions, treatment decision-making end-of-life anticipation in advanced cancer.MethodsThis experimental study used eight videos a scripted oncological consultation,...
Specialist palliative care teams (SPCTs) have significant benefits for patients with advanced disease or frailty, including improved quality of life, greater satisfaction care, and less potentially inappropriate at the end life. Experienced SPCTs are recognised to higher referral rates compared novice teams. The aim this study was assess development hospital-wide integration specialist (PC) in Dutch hospitals between 2014 2020. Three cross-sectional surveys were conducted 2015, 2018 2021....
Abstract Background Palliative care is becoming increasingly important because the number of patients with an incurable disease growing and their survival improving. Previous research tells us that early palliative has potential to improve quality life (QoL) in advanced cancer relatives. According limited on Netherlands, relatives find current suboptimal. The aim eQuiPe study understand experienced (QoC) QoL further care. Methods A prospective longitudinal observational cohort conducted...
Abstract Objective To assess the degree of openness communication about illness and death between patients with advanced cancer their relatives during last three months patient’s life, its association relatives’ characteristics bereavement distress. Methods We used data from bereaved prospective, longitudinal, multicenter, observational eQuipe study. Univariate multivariable linear regression analyses were to (measured using validated Caregivers’ Communication Illness Death scale), a priori...
Specialist palliative care teams (SPCTs) in hospitals improve quality of life and satisfaction with for patients advanced disease. However, referrals to SPCTs are often limited. To identify areas improvement SPCTs' service penetration, we explored the characteristics level integration programmes Dutch assessed relation between these specialist referral rates.We performed a secondary analysis national cross-sectional survey conducted among Netherlands from March through May 2018. For this...
To gain insight into the perceived emotional impact of providing palliative care among nursing assistants in Dutch homes, their strategies coping with this and associated needs.Exploratory qualitative study.In 2022, 17 semistructured interviews working homes were conducted. Participants recruited via personal networks social media. Interviews open-coded by three independent researchers following thematic analysis approach.Three themes emerged regarding elements that contribute to homes:...
Abstract Background. In cancer care, difficult decisions concerning advanced treatment need to be made, weighing possible life prolongation against harmful side effects. Treatment is frequently started, showing the explore how are made. Little known about perspectives of physicians on sharing decision making with patients. This qualitative study aimed describe medical specialists decision-making process patients glioblastoma starting new treatment. Methods. Qualitative interviews were held...
Patients with a rare cancer often face delays in their diagnostic and treatment trajectory, which may affect work. In this study, we explored experiences needs of: 1) patients regarding return to work (RTW) retention, 2) (health care) professionals (HCPs) work-related support of cancer, throughout disease trajectory.Semi-structured, in-depth interviews working-age (n = 16), HCPs 9) were conducted. During the interviews, predefined topic list was used. Interviews transcribed verbatim analysed...
Understanding the overuse and underuse of health-care services in end-of-life (EoL) phase for patients with lung cancer (LC) colorectal (CRC) is important, but knowledge limited. To help identify inappropriate care, we present utilization profiles hospital care at EoL LC (N = 25 553) CRC 14 911) Netherlands between 2013 2015. An administrative database containing all in-hospital activities was analyzed to investigate association number days spent emergency department (ED) or intensive unit...
The study aims to describe mechanisms that contribute the tendency towards continuing chemotherapy in patients with advanced cancer.The conducted qualitative observations of outpatient clinic visits 28 cancer (glioblastoma and metastatic colorectal cancer).We uncovered four daily oncology practice can cancer: (1) "presenting full therapy sets standard"--patients seemed base their justification for on "standard" maximum number cycles as presented by physician at start treatment; (2) "focus...
The purpose of this study is to describe and compare the relation between treatment aims, hospitalizations, hospital mortality for Dutch patients who died from lung, colorectal, breast, prostate, or pancreatic cancer. A follow-back was conducted within a sentinel network general practitioners (GPs), recorded end-of-life care 691 one abovementioned cancer types 2009 2015. Differences in by type were analyzed using multilevel analyses control clustering practices. Among all types, with...
Purpose Feedback sessions after audiology consultations predominantly involve information counseling or patient education, where the is informed about their hearing status and possible management options. Effective communication vital to ensure that impairment, recommendations, and/or options appropriately provided understood by patients needs expectations from session are met. This research note reports on an exploratory study sought describe in follow-up audiological within a context...