A5054998519- Patient-Provider Communication in Healthcare
- Palliative Care and End-of-Life Issues
- Empathy and Medical Education
- Pain Management and Placebo Effect
- Patient Dignity and Privacy
- Cancer survivorship and care
- Family Support in Illness
- Childhood Cancer Survivors' Quality of Life
- Clinical Reasoning and Diagnostic Skills
- Music Therapy and Health
- Family and Patient Care in Intensive Care Units
- BRCA gene mutations in cancer
- Health Literacy and Information Accessibility
- Attachment and Relationship Dynamics
- Pediatric Pain Management Techniques
- Language, Discourse, Communication Strategies
- Ethics and Legal Issues in Pediatric Healthcare
- Patient Satisfaction in Healthcare
- Media Influence and Health
- Optimism, Hope, and Well-being
- Infant Development and Preterm Care
- Healthcare Decision-Making and Restraints
- Innovations in Medical Education
- Amyotrophic Lateral Sclerosis Research
- T-cell and Retrovirus Studies
Leiden University
2019-2025
Erasmus University Rotterdam
2022-2023
Delft University of Technology
2022-2023
Netherlands Institute for Health Services Research
2012-2020
Czech Academy of Sciences, Institute of Psychology
2020
OLVG
2019
Utrecht University
2013-2018
University Medical Center Utrecht
2018
King's College London
2014-2017
Cicely Saunders International
2014-2017
We set up a pilot-study to investigate main and interaction effects of nocebo-alleviating information clinician-expressed empathy delivered via standardized information-video on breast cancer patients' psychological side effect outcomes during chemotherapy. Additionally, we aimed reflect the feasibility intervention (acceptability, practicality integration) inform future - follow-up studies. Using clinical proof-of-principle randomized controlled trial, female patients undergoing...
The diagnosis of incurable cancer may evoke physiological arousal in patients. Physiological can negatively impact patients' recall information provided the medical consultation. We aim to investigate whether clinicians' affective communication during a bad news consultation will decrease and improve recall.Healthy women (N=50), acting as analogue patients, were randomly assigned watch one out two versions scripted video-vignette which clinician's differed: standard vs. communication....
Patients' recall of provided information during bad news consultations is poor. According to the attentional narrowing hypothesis, emotional arousal caused by might be responsible for this hampered processing. Because affective communication has proven effective in tempering patients' reactions, current study used an experimental design explore whether physician's decreases anxiety and uncertainty improves recall.Two scripted video-vignettes a consultation were which verbal was manipulated...
When discussing the transition to palliative care for patients with breast cancer, oncologists have find a balance between giving explicit information while not overwhelming and being realistic remaining hopeful. It is unclear whether prefer more or less prognostic information, reassuring that they will be abandoned may provide hope. We assessed effect of reassurance about nonabandonment at care.An experimental 2 × study was used. Four scripted videos bad news conversation were created...
ContextEvidence-based guidance for oncologists on how to communicate prognosis is scarce.ObjectivesTo investigate the effects of prognostic communication strategies (prognostic disclosure vs. unpredictability non-disclosure; standard and best-case standard, best- worst-case survival scenarios; numerical word-based estimates) perceptions, treatment decision-making end-of-life anticipation in advanced cancer.MethodsThis experimental study used eight videos a scripted oncological consultation,...
Patients affected by progressive long-term neurological conditions might benefit from specialist palliative care involvement. However, little is known on how neurology and services interact. This study aimed to map the current level of connections integration between these services. The mapping exercise was conducted in eight centres with United Kingdom. data were provided respective teams. Questions focused on: i) catchment population served; ii) service provision staffing; iii)...
Background: Empathy is a cornerstone of effective communication. However, clinicians' and patients' perceptions clinician-expressed empathy might differ. The independent patients clinicians on in advanced cancer consultations the associations these with patient outcomes are unknown. Objective: We assessed (1) clinician-(self-)expressed (2) between affective outcomes. Methods: This observational study included data from 41 breast setting. Postconsultation, were assessed, as well pre–post...
Experimental studies using vignettes investigate the impact of healthcare professional or patient/client characteristics, communication, and/or other behaviors on outcomes. To ensure methodological rigor and quality, guidance is needed for systematic reporting such studies. We describe development Guideline RepOrting Vignette Experiments (GROVE). A steering group comprising experts in vignette research oversaw guideline an iterative expert-driven approach. The process included reviewing...
Clinicians request guidance to aid the routine use and interpretation of Patient Reported Outcome Measures (PROMs), but tools are lacking. We aimed develop a Clinical Decision Support Tool (CDST) focused on information needs, family anxiety, depression, breathlessness (measured using Palliative care Scale (POS)) related PROM implementation guidance. drafted recommendations based findings from systematic literature searches. In modified online Delphi study, 38 experts 12 countries with...
Experimental studies have found that clinician-expressed empathy improves patients' information recall in (advanced) cancer consultations. It remains unclear, however, whether these results are generalizable to clinical care and, if so, what the underlying mechanism is. We aimed i) determine relationship between and advanced breast consultations; ii) test is mediated by a decrease anxiety.Forty-one consultations oncologists female patients with were audio recorded. Patients'...
Objectives Evaluations of new services for palliative care in non-cancer conditions are few. OPTCARE Neuro is a multicentre trial evaluating the effectiveness short-term integrated (SIPC) progressive long-term neurological conditions. Here, we present survey results describing current levels collaboration between neurology and exploring views professionals towards SIPC service. Methods Neurology teams from six UK sites (London, Nottingham, Liverpool, Cardiff, Brighton Chertsey) were...
Background Many complaints in medicine and advanced illnesses are about communication. Little is known which specific communications harm. This study explored the perspectives of patients with cancer potentially harmful communication behaviors by oncologists helpful alternatives. Methods An online survey design was used that based on literature scoping patient/clinician/researcher input. Patients (n = 74) reflected potential harmfulness 19 situations. They were asked whether they perceived...
Even though antithrombotic therapy has probably little or even negative effects on the well-being of people with cancer during their last year life, deprescribing at end life is rare in practice. It often continued until death, possibly resulting excess bleeding, an increased disease burden and higher healthcare costs.The SERENITY consortium comprises researchers clinicians from eight European countries specialties different clinical fields, epidemiology psychology. will use a comprehensive...
Abstract Objective To assess the degree of openness communication about illness and death between patients with advanced cancer their relatives during last three months patient’s life, its association relatives’ characteristics bereavement distress. Methods We used data from bereaved prospective, longitudinal, multicenter, observational eQuipe study. Univariate multivariable linear regression analyses were to (measured using validated Caregivers’ Communication Illness Death scale), a priori...
Background: Information provision about prognosis, treatments, and side-effects is important in advanced cancer, yet also associated with impaired patient well-being. To counter potential detrimental effects, communication strategies based on placebo nocebo effect mechanisms might be promising to apply daily practice. This study aimed provide more insight into how often oncologists use expectancy empathy expressions consultations patients breast cancer. Methods: Forty-five between were...
To alleviate anti-cancer treatment burden in advanced breast cancer, patient-clinician communication strategies based on nocebo-effect mechanisms are promising. We assessed distinct/combined effects psychological outcomes (e.g. anxiety; main outcome) and side-effect expectations of (1) nocebo information about the (non)pharmacological origin side effects, (2) clinician-expressed empathy through reassurance continuing support. Furthermore, we explored whether were mediated by decreased...