A5038517405- Sex and Gender in Healthcare
- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Biomedical and Engineering Education
- Gender Roles and Identity Studies
- Obesity and Health Practices
- Persona Design and Applications
- Behavioral Health and Interventions
- Mobile Health and mHealth Applications
- Diversity and Career in Medicine
- Innovative Approaches in Technology and Social Development
- Cancer survivorship and care
- Health Systems, Economic Evaluations, Quality of Life
- Parkinson's Disease Mechanisms and Treatments
- Neurobiology of Language and Bilingualism
- Focus Groups and Qualitative Methods
- Nutrition, Genetics, and Disease
- Health Policy Implementation Science
- Autism Spectrum Disorder Research
- Impact of Technology on Adolescents
- LGBTQ Health, Identity, and Policy
- Digital Mental Health Interventions
Radboud University Nijmegen
2020-2024
Radboud University Medical Center
2020-2024
Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors childhood, adolescence and young (CAYA) cancer. Barriers to implementation include lack time, knowledge, personnel funding. Sustainable solutions are urgently needed address needs CAYA cancer improve quality life reduce burden late effects on survivors, health care systems society. The European Union-funded PanCareFollowUp project, initiated by Pan-European Network Care Survivors after...
Background Non-motor symptoms of Parkinson’s disease (PD) are highly prevalent and heterogenic. Previous studies aimed to gain more insight on this heterogeneity by investigating age gender differences in non-motor symptom severity, but findings were inconsistent. Furthermore, besides examining the single effects gender, interaction between them relation functioning has -as far as we know- not been investigated before. Objectives To investigate association identity well identity- with their...
The impact of sex and gender on disease incidence, progression, provision care has gained increasing attention in many areas medicine. Biological factors-sex-and sociocultural behavioral factors-gender-greatly health disease. While can modulate progression response to therapy, influence patient-provider communication, non-pharmacological management, need for assistance. Sex issues are especially relevant chronic progressive diseases, such as Parkinson's (PD), because affected patients...
There is a growing recognition that sex characteristics and gender-related aspects can have substantial impact on the health-related quality of life (HRQoL) persons with Parkinson's disease (PD). Gender multidimensional construct, including dynamic social norms relations influence health life. Even when gender investigated in field PD, it frequently conceptualized as identity while other dimensions, such roles or relations, are generally ignored. The aim this study was to explore several...
Abstract Background Digital health technologies (DHT) enable self-tracking of bio-behavioral states and pharmacotherapy outcomes in various diseases. However, the role gender, encompassing social roles, expectations, relations, is often overlooked their adoption use. This study addresses this issue for persons with Parkinson’s disease (PD), where DHT hold promise remote evaluations. Methods We conducted a cross-sectional survey Netherlands, assessing impact gender identity, relations on...
In recent years, interest in sex characteristics and gender dimensions of Parkinson's disease (PD) has increased. Yet, much remains to be understood about how gender-related aspects specifically impact the illness experiences care persons living with PD.The purpose this study was explore salience provision preferences people PD.A descriptive qualitative including semi-structured life story interviews conducted men women PD Netherlands. Between September 2020 February 2021, forty (20 20...
Traditional medical practice has suffered from male bias, which can lead to sub-optimal treatment options for female patients and increase the incidence of severe side-effects in this population. Mobile health applications, mHealth apps, represent one essential component shift towards consumer-centered self-administered individualized health. To prevent sex-specific bias it is important that trials consider sex gender when developing apps. We evaluated inclusion reporting at all levels...
Abstract Background Childhood cancer survivors face high risks of adverse late health effects. Long‐term follow‐up care for childhood is crucial to improve their and quality life. However, implementation remains a challenge. To support high‐quality long‐term care, we explored expected barriers facilitators establishing this among healthcare providers from four European clinics. Methods A qualitative study was conducted using focus groups comprising 30 in total. The semi‐structured interview...
Integration of sex and gender into health research is best practice for designing conducting equitable, rigorous scientific research. Many evidence-based resources exist to support researchers in this endeavour, but such often remain underutilized as they are difficult find, not publicly accessible, or specific a particular phase, context, population. The development evaluation repository was deemed important create an accessible platform promoting sex- gender-integration research.A rapid...
BackgroundGender dimensions are progressively recognised as a relevant social determinant of health in people with Parkinson's disease (PD). However, little is known about the impact gender norms and stereotypes on illness experiences men women PD what they consider important focal points for gender-sensitive care.MethodsWe conducted two equity-centred design (ECD) sessions December 7, 2022 8, 2022, at Radboud University Medical Centre Netherlands. This participatory multi-method approach...