A5066296535- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Acute Lymphoblastic Leukemia research
- Adolescent and Pediatric Healthcare
- Palliative Care and End-of-Life Issues
- Family and Disability Support Research
- Public Administration and Political Analysis
- Law and Political Science
- Ethics and Legal Issues in Pediatric Healthcare
- European and International Law Studies
- Fungal Infections and Studies
- COVID-19 and Mental Health
- Spinal Cord Injury Research
- Ear and Head Tumors
- Neonatal Respiratory Health Research
- Cancer survivorship and care
- Histiocytic Disorders and Treatments
- Optimism, Hope, and Well-being
- Misinformation and Its Impacts
- Brain Metastases and Treatment
- Hearing, Cochlea, Tinnitus, Genetics
- BRCA gene mutations in cancer
- Vascular Malformations and Hemangiomas
- Family and Patient Care in Intensive Care Units
- Dialysis and Renal Disease Management
University of Lucerne
2015-2025
Danish Cancer Society
2018-2024
Institute of Social and Preventive Medicine
2020-2024
University of Bern
2020-2024
Swiss Paraplegic Research
2015
Health-related quality of life (HRQOL) is an important concept to describe well-being the general population and persons with diseases. The short form-36 (SF-36) a widely used questionnaire assessing self-reported HRQOL in eight health domains. aims this study were provide normative data for SF-36 version 2 (SF-36v2) all language regions Switzerland weighting coefficients calculate two summary measures physical mental health.A random representative (regarding age, sex, region) sample people...
Childhood cancer and its treatment can cause damage to the musculoskeletal system. We aimed determine incidence prevalence of health conditions (MSHC) in survivors, investigate differences by cancer-related characteristics.
Abstract Purpose Having a child with cancer can profoundly impact parents’ health-related quality of life (HRQOL). However, there is lack knowledge about the long-term effects childhood on well-being. The current study aimed to (1) describe HRQOL parents survivors (CCS) and compare it that from general population in Switzerland, (2) investigate sociodemographic cancer-related determinants lower CCS. Methods In this cross-sectional study, total 751 CCS (mean time since diagnosis = 23.7 years,...
Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors childhood, adolescence and young (CAYA) cancer. Barriers to implementation include lack time, knowledge, personnel funding. Sustainable solutions are urgently needed address needs CAYA cancer improve quality life reduce burden late effects on survivors, health care systems society. The European Union-funded PanCareFollowUp project, initiated by Pan-European Network Care Survivors after...
Background Taking care of children diagnosed with cancer affects parents' professional life. The impact in the long-term however, is not clear. We aimed to compare employment situation parents childhood survivors control general population, and identify clinical socio-demographic factors associated parental employment. Methods As part Swiss Childhood Cancer Survivor Study, we sent a questionnaire aged 5–15 years, who survived ≥5 years after diagnosis. Information on population came from...
Psychological distress is an important and frequent health problem. The Brief Symptom Inventory (BSI) allows screening for psychological in clinical, general research populations. We aimed to provide normative data the BSI BSI-18 Swiss population: 1) present psychometric properties, 2) develop a T-standardization validate it using clinical sample, 3) describe population 4) compare means T-standardized scores of different German norm Using cross-sectional study design, we invited...
Abstract Background Taking care of children diagnosed with cancer affects parents’ professional life and may place the family at risk‐of‐poverty. We aimed to (i) compare household income risk‐of‐poverty parents childhood survivors (CCS) general population, (ii) identify sociodemographic cancer‐related factors associated Methods As part Swiss Childhood Cancer Survivor Study, we sent a questionnaire CCS aged 5–15 years, who survived ≥5 years after diagnosis. Information on population came from...
Knowledge on former diagnosis, treatment and survivorship is important for adolescent young adult cancer survivors (AYACS) to make informed healthcare decisions. We aimed (a) describe the information AYACS reported have received, (b) identify current needs survivors' preferred format of communication, (c) examine associations between cancer-related/socio-demographic characteristics, psychological distress health-related quality life (HRQoL). identified (16-25 years at diagnosis; ≥5 since...
Evaluating the Effects: A Contribution to Quality of Legislation Get access Luzius Mader Search for other works by this author on: Oxford Academic Google Scholar Statute Law Review, Volume 22, Issue 2, 2001, Pages 119–131, https://doi.org/10.1093/slr/22.2.119 Published: 01 August 2001
Abstract Background Hearing loss is a potential side effect from childhood cancer treatment. We described the severity of hearing assessed by audiometry in representative national cohort survivors (CCS) and identified clinical risk factors. Procedure included all CCS Swiss Childhood Cancer Registry who were diagnosed ≤18 age treated with platinum‐based chemotherapy between 1990 2014. extracted audiograms, treatment‐related information, demographic data medical records. Two reviewers...
Abstract Socioeconomic differences in overall survival from childhood cancer have been shown previously, but the underlying mechanisms remain unclear. We aimed to investigate if social inequalities were seen already for early mortality settings with universal healthcare. From national registers, all children diagnosed at ages 0–19 years, during 1991–2014, Sweden and Denmark, identified, information on parental characteristics was collected. estimated odds ratios (OR) 95% confidence intervals...
Childhood cancer affects the whole family and can have a lasting impact on parents of childhood survivors (CCS). We aimed to (1) describe parents' perspective currently experienced disadvantages their support needs during treatment, after today; (2) identify characteristics associated with needs; (3) use existing services.In this population-based study, we identified CCS (diagnosed ≤16 years age, ≥5 since diagnosis, aged ≥20 at study) through Swiss Cancer Registry (SCCR). Parents completed...
Background Childhood cancer is a devastating experience for the family. The objective of current study was to assess impact having child with on parental separation, divorce, and future family planning among families residing in Denmark. Methods authors conducted nationwide cohort using Danish registry data. Parents children diagnosed between 1982 2014 (7066 12,418 case parents) were matched 10 comparison parents cancer‐free per parent (69,993 125,014 parents). We used discrete‐time Cox...
Abstract Background Cancer and its treatment may impair the body image of childhood cancer survivors during adolescence. We compared between adolescent their siblings, determined whether survivors’ is associated with socio‐demographic characteristics, clinical characteristics chronic health conditions. Procedure As part nationwide Swiss Childhood Survivor Study, we sent questionnaires to adolescents (aged 16–19 years), who survived >5 years after having been diagnosed 1989 2010. Siblings...