A5051828530- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Adolescent and Pediatric Healthcare
- Acute Lymphoblastic Leukemia research
- Cancer survivorship and care
- Cancer-related cognitive impairment studies
- Epigenetics and DNA Methylation
- Health Systems, Economic Evaluations, Quality of Life
- Family and Disability Support Research
- Asthma and respiratory diseases
- Child and Adolescent Psychosocial and Emotional Development
- Economic and Financial Impacts of Cancer
- Behavioral Health and Interventions
- Healthcare Policy and Management
- Infant Development and Preterm Care
- Patient-Provider Communication in Healthcare
- Smoking Behavior and Cessation
- Optimism, Hope, and Well-being
- Mental Health Research Topics
- Ethics and Legal Issues in Pediatric Healthcare
- HIV/AIDS Research and Interventions
- Pediatric Pain Management Techniques
- Cancer Treatment and Pharmacology
- Glioma Diagnosis and Treatment
St. Jude Children's Research Hospital
2016-2025
Rutgers, The State University of New Jersey
2025
University of Florida
2008-2021
University of North Carolina at Chapel Hill
2019
Valparaiso University
2019
Texas A&M Health Science Center
2019
University of Tennessee Health Science Center
2018
Johns Hopkins University
2005-2016
Henry M. Jackson Foundation
2016
Armed Forces Research Institute of Medical Science
2016
The aim of this study was to develop the Transition Readiness Assessment Questionnaire (TRAQ), a measure readiness for transition from pediatric adult healthcare youth with special health care needs (YSHCN).We administered TRAQ 192 YSHCN aged 16-26 years in three primary diagnostic categories, conducted factor analysis, and assessed differences scores by age, gender, race, diagnosis type.Factor analysis identified two domains high internal consistency: Skills Self-Management Self-Advocacy....
OBJECTIVE. Emerging evidence about optimal youth development highlights the importance of both reducing negative behavior and promoting positive behavior. In our study we tested a contextual model derived from youth-development theory by examining association family, school, community risk promotive factors, with several outcome indices adolescent development. METHODS. A sample 42305 adolescents aged 11 to 17 (51% girls) was drawn 2003 National Survey Children's Health. item composites were...
We investigated the association between prevalence of symptoms and health-related quality life (HRQOL) in adult survivors childhood cancer enrolled St Jude Lifetime Cohort study.
Associations between modifiable chronic health conditions (CHCs), social determinants of health, and late mortality (defined as death occurring ≥5 years after diagnosis) in childhood cancer survivors are unknown.To explore associations CHCs within the context health.This longitudinal cohort study used data from 9440 individuals who were eligible to participate St Jude Lifetime Cohort (SJLIFE), a retrospective with prospective clinical follow-up that was initiated 2007 characterize outcomes...
Background. Patients cite "forgetting" as a reason for nonadherence to highly active antiretroviral therapy (HAART). We measured the effect of memory-prompting device on adherence HAART in memory-intact and memory-impaired human immunodeficiency virus (HIV)-infected subjects.Methods. The study was prospective, randomized, controlled trial involving 64 HIV-infected adults. intervention Disease Management Assistance System (DMAS) device, combined with monthly counseling. Control subjects...
Abstract Objective To link pediatric health-related quality of life (HRQOL) and health conditions by establishing clinically meaningful cutoff scores for an HRQOL instrument, the Pediatric Quality Life Inventory (PedsQL). Methods We conducted telephone interviews with 1745 parents whose children were between 2 18 years old enrolled in Florida KidCare program Children's Medical Services Network 2006. Two anchors, Children Special Health Care Needs (CSHCN) Screener Clinical Risk Groups (CRGs),...
Objectives. To compare different approaches to address ceiling effects when predicting EQ‐5D index scores from the 10 subscales of MOS‐HIV Health Survey. Study Design. Data were collected an HIV treatment trial. Statistical methods included ordinary least squares (OLS) regression, censored absolute deviations (CLAD) approach, a standard two‐part model (TPM), TPM with log‐transformed index, and latent class (LCM). Predictive accuracy was evaluated using percentage error ( R 1 ) squared 2...
This article presents the use of an ant colony optimization (ACO) algorithm for development short forms scales. An example 22-item form is developed Diabetes-39 scale, a quality-of-life scale diabetes patients, using sample 265 patients. A simulation study comparing performance ACO and traditionally used methods item selection also presented. It shown that outperforms largest factor loadings maximum test information methods. The results demonstrate capabilities creating short-form
Abstract Background Little is known about factors contributing to children’s asthma control status and health-related quality of life (HRQoL). The study objectives were assess the relationship between asthma-specific HRQoL in asthmatic children, examine extent which parental health literacy, perceived self-efficacy with patient-physician interaction, satisfaction shared decision-making (SDM) contribute HRQoL. Methods This cross-sectional utilized data collected from a sample children (n =...
Abstract Background Financial hardship among survivors of pediatric cancer has been understudied. We investigated determinants and consequences financial adult childhood cancer. Methods hardship, determinants, were examined in 2811 long-term (mean age at evaluation = 31.8 years, years postdiagnosis 23.6) through the baseline survey clinical evaluation. was measured by material, psychological, coping/behavioral domains. Outcomes included health life insurance affordability, retirement...
Purpose Beyond survival, achieving independence is a primary goal for adult survivors of pediatric CNS tumors. However, the prevalence and risk factors failure to achieve independence, assessed with multiple concurrent indicators, have not been examined. Patients Methods Functional social was in 306 (astrocytoma [n = 130], medulloblastoma 77], ependymoma 36], other 63]; median current age, 25.3 years [range, 18.9 53.1 years]; time since diagnosis, 16.8 10.6 41.8 years]). Six observed...
To compare associations of symptom prevalence, chronic conditions, and health-related quality life (HRQOL) between cancer survivors non-cancer individuals using the U.S. National Health Interview Survey.