A5000687889- Cancer survivorship and care
- Breast Cancer Treatment Studies
- Global Cancer Incidence and Screening
- Breast Implant and Reconstruction
- Cancer-related cognitive impairment studies
- Cancer Treatment and Pharmacology
- Glioma Diagnosis and Treatment
- Cancer Risks and Factors
- Patient-Provider Communication in Healthcare
- Childhood Cancer Survivors' Quality of Life
- Palliative Care and End-of-Life Issues
- Delphi Technique in Research
- Economic and Financial Impacts of Cancer
- Clinical practice guidelines implementation
- Brain Metastases and Treatment
- Dementia and Cognitive Impairment Research
- Cancer Diagnosis and Treatment
- Reconstructive Surgery and Microvascular Techniques
- Electronic Health Records Systems
- Multiple Myeloma Research and Treatments
- Digital Imaging in Medicine
- Breast Lesions and Carcinomas
- Patient Satisfaction in Healthcare
- Primary Care and Health Outcomes
- Advanced Breast Cancer Therapies
The Netherlands Cancer Institute
2021-2025
University of Lausanne
2025
Tilburg University
2025
Oncode Institute
2024-2025
Innsbruck Medical University
2023
Netherlands Comprehensive Cancer Organisation
2017-2022
University of Twente
2017-2021
Erasmus MC Cancer Institute
2020
Medisch Spectrum Twente
2020
Ziekenhuis Groep Twente
2020
Abstract Purpose In breast cancer patients, treatment-related health symptoms can occur that may affect their health-related quality of life (HRQoL). This study aimed to determine the impact on HRQoL in patients up 5 years after diagnosis. Methods Females surgically treated for early-stage diagnosed between 2012 and 2016 ( n = 876) were selected from Netherlands Cancer Registry invited a survey about current (‘Symptoms Perceptions questionnaire’, SaP) (‘EORTC-QLQ-C30’). From latter,...
Background Research into the clustering of symptoms may improve understanding underlying mechanisms that affect survivors' symptom burden. This study applied network analyses in a balanced sample cancer survivors to 1) explore and 2) assess differences between types, treatment regimens, short‐term long‐term survivors. Methods used cross‐sectional survey data, collected 2008 2018, from population‐based Patient Reported Outcomes Following Initial Treatment Long Term Evaluation Survivorship...
Background: Differences in quality-of-life outcomes after different surgical breast cancer treatment options, including reconstruction, are relevant for counseling individual patients clinical decision-making, and (societal) evaluations such as cost-effectiveness analyses. However, current literature shows contradictory results, because of use patient-reported outcome measures study designs with limited patient numbers. The authors set out to improve this evidence using a large,...
The European Organisation for Research and Treatment of Cancer (EORTC) quality life core questionnaire (QLQ-C30) is a validated widely-used Patient-Reported Outcome Measure measuring the health-related (HRQoL) cancer patients. To facilitate interpretation results obtained in studies using EORTC QLQ-C30, we generated normative data Dutch general population, stratified by age sex.Dutch participants were selected from larger cross-sectional online panel research study collecting QLQ-C30...
Abstract Purpose For patients living with metastatic breast cancer (MBC), achieving best possible health-related quality of life, along maximizing survival, is vital. Yet, we have no systemic way to determine if achieve these goals. A Core Outcome Set (COS) that allows standardized measurement outcomes important patients, but also promotes discussing during clinical encounters, long overdue. Methods An international expert group (EG) patient advocates, researchers, medical specialists, nurse...
Implementation of patient-reported outcome measures (PROMs) in clinical practice is challenging. We believe effective communication key to realizing the benefits PROMs. Communication processes for PROMs typically involve (1) health care professionals (HCPs) inviting patients complete PROMs, (2) completing (3) HCPs and interpreting resulting outcomes (PROs), (4) using PROs management. Yet, around remains underexplored. Importantly, differ their skills, knowledge, preferences, motivations as...
Using patient reported-outcome measures (PROMs) in routine care has significant potential to benefit patients with cancer, but it is unclear how widely they are used practice. We conducted a cross-sectional survey (November 2023-April 2024) among healthcare professionals (HCPs) the European Organisation for Research and Treatment of Cancer (EORTC). Descriptive statistics chi-square tests assessed PROM use patterns, regional differences, barriers. Binary regression models compared barriers...
Postmastectomy immediate breast reconstruction (IBR) may improve the quality of life (QoL) cancer patients. Guidelines recommend to discuss option IBR with all patients undergoing mastectomy. However, substantial hospital variation in IBR-rates was previously observed Netherlands, influenced by patient, tumour and factors clinicians' believes. Information provision about have a positive effect on receiving therefore QoL. This study investigated patient-reported QoL treated mastectomy without...
Background The use of software to monitor patient-reported outcome measures (PROMs) can improve outcomes for patients with cancer receiving anticancer therapy; however, evidence from applications used in routine clinical practice is lacking. Objective We aimed investigate adherence and patient perceptions a weekly, web-based PROM symptom monitoring program Multiple Myeloma. Moreover, we capture how alerts prompted by the system influenced care. Methods conducted single-center longitudinal...
Abstract Background Studies have demonstrated worse breast cancer-specific mortality with older age, despite an increasing risk of dying from other causes due to comorbidity (competing mortality). However, findings on the association between age and recurrence are inconsistent. The aim this study was assess incidences locoregional distant by taking competing into account. Materials Methods Patients surgically treated for nonmetastasized cancer 2003 2009 were selected Netherlands Cancer...