A5102950757- Liver Disease Diagnosis and Treatment
- Multiple Myeloma Research and Treatments
- Liver Disease and Transplantation
- Organ Donation and Transplantation
- Organ Transplantation Techniques and Outcomes
- Neurological disorders and treatments
- Burn Injury Management and Outcomes
- Genetic Neurodegenerative Diseases
- Cancer Treatment and Pharmacology
- Infection Control in Healthcare
- Renal Transplantation Outcomes and Treatments
- Medication Adherence and Compliance
- Occupational Health and Safety Research
- Hepatocellular Carcinoma Treatment and Prognosis
- Parkinson's Disease Mechanisms and Treatments
- COVID-19 Clinical Research Studies
- Nutrition and Health in Aging
- Treatment of Major Depression
- Tryptophan and brain disorders
- Phytochemical compounds biological activities
- SARS-CoV-2 and COVID-19 Research
- Olfactory and Sensory Function Studies
- Healthcare Policy and Management
- Pancreatitis Pathology and Treatment
- Digital Mental Health Interventions
University Hospital Ayr
2023
NHS Ayrshire and Arran
2023
Aberdeen Royal Infirmary
2023
Queen Elizabeth University Hospital
2021-2022
New England Organ Bank
2022
Newcastle University
2021
Newcastle upon Tyne Hospitals NHS Foundation Trust
2021
NHS Greater Glasgow and Clyde
2021
PatientsLikeMe (United States)
2016-2019
Patients First
2018
Abstract Background Therapy choices in relapsed/refractory multiple myeloma (RRMM) should consider patient satisfaction with treatment, because it is associated adherence to therapy, health outcomes, and medical safety. The primary objective of this pilot cross-sectional observational study was ascertain factors patient-reported treatment RRMM. Patients Methods a self-reported diagnosis RRMM recruited from PatientsLikeMe, MyelomaCrowd, Facebook were administered an electronic survey that...
Abstract Background and Objectives: In 1998, the California Department of Health Services invited all healthcare facilities in (n = 2,532) to participate a statewide, voluntary sharps injury surveillance project The objectives were determine whether low-cost registry could be established maintained, evaluate circumstances surrounding injuries California. Results: Approximately 450 responded reported total 1,940 sharps-related from January 1998 through 2000. Injuries occurred variety workers...
Chorea is the hallmark motor feature of Huntington disease (HD) and can negatively impact daily functioning health-related quality life (HRQoL).The objective this study was to evaluate how chorea impacts HRQoL overall among HD patients participating on PatientsLikeMe website ( www.PatientsLikeMe.com ).A survey provided participants and/or their caregivers via (9 February 2017-22 March 2017), comprising multiple-choice open-ended questions designed assess functioning, importance treating...
This observational study identified attributes of patient-reported satisfaction with therapy for multiple myeloma (MM), described the treatment-related time burden and indirect costs, investigated effect administration route (oral vs. injectable) on these outcomes among patients newly diagnosed MM (NDMM) caregivers. Patients residing in USA a self-reported diagnosis NDMM were recruited from PatientsLikeMe, MyelomaCrowd, Facebook (16 December 2016 6 July 2017) to complete an electronic survey...
Abstract Aims To describe the distribution of biomarker scores Fibrosis‐4 (FIB4), nonalcoholic fatty liver disease (NAFLD) fibrosis score (NFS), and aspartate aminotransferase to platelet ratio index (APRI), associations between risk categories all‐cause mortality. Materials Methods This was a retrospective cohort study 12 589 patients, with follow‐up from January 2012 until November 2021. The cut‐off points used identify low were: FIB4 <1.3 if aged <65 years or <2.0 ≥65 years; NFS...
Aim: To compare pharmacogenetic test predictions with self-reported treatment experience and side effect tolerability among patients depression taking psychotherapeutic medications. Methods: Subjects completed a survey recalling medication effectiveness effects then underwent testing. Results: Our 15 gene panel predicted efficacy (p < 0.001) but did not predict = 0.70) in group of 352 patients. The reported corresponded 60% the time agreed 71% time. Conclusion: Pharmacogenetic testing may be...
This study set out to examine the association between deprivation and incidence of HCC survival following diagnosis in West Scotland.Data were gathered on patients from prospective Scotland regional database November 2014 August 2017. Patients included if they had a new HCC. Data taken Scottish Index Multiple Deprivation (SIMD) 2016.357 study. There was higher rate SIMD quintile 1 (most deprived) compared with 5 (least (8.4 vs 4.3 per 100,000, respectively, p < 0.0002). no difference stage...
Introduction: Donation after circulatory death (DCD) is rapidly increasing in the United States. Detailed data outlining process from referral to organ transplantation lacking. Project Aims: We sought quantify differences at each stage along donation pathway by donor type. Additionally, we examined factors associated with successful DCD utilization. Design: This program evaluation analyzed a single procurement organization 2018 assess demographic and clinical predictors of progression...
Abstract Objective: To evaluate the uptake of universal vitamin D supplementation during pregnancy, its effectiveness in preventing deficiency and factors associated with these. Design: The regional public health organisation Ayrshire, Scotland has a policy provision supplements (10 µg/d) to all pregnant women for duration their pregnancy. Pregnant this area were recruited at 12-week antenatal appointment. Blood samples collected 34-week appointments. account seasonal variation, two cohorts:...
Objective: To evaluate how chorea impacts health-related quality of life (HRQOL) and overall functioning among Huntington disease (HD) patients Background: HD is characterized by motor dysfunction, cognitive impairment, emotional-behavioral symptoms. As the hallmark feature HD, can interfere with daily functioning, negatively impact HRQOL, be associated social stigma. Design/Methods: A survey was provided to participants and/or their caregivers via PatientsLikeMe online portal...
<h3>Introduction</h3> Hepatocellular carcinoma (HCC) is rising in incidence both Scotland and the UK.<sup>1</sup> This study set out to examine whether there an association between deprivation of HCC survival following diagnosis West Scotland. <h3>Methods</h3> Data was collected on patients from prospectively regional database November 2014 August 2017. Patients were included if they had a new not previously diagnosed or treated elsewhere. taken Scottish Index Multiple Deprivation (SIMD)...