A5063417464- Congenital Heart Disease Studies
- Cardiovascular Issues in Pregnancy
- Cardiac Structural Anomalies and Repair
- Cardiovascular Effects of Exercise
- Cardiac Valve Diseases and Treatments
- Pulmonary Hypertension Research and Treatments
- Cardiovascular Function and Risk Factors
- Cardiac pacing and defibrillation studies
- Cardiac Arrhythmias and Treatments
- Coronary Artery Anomalies
- Cardiovascular and Diving-Related Complications
- Congenital Diaphragmatic Hernia Studies
- High Altitude and Hypoxia
- Cardiovascular and exercise physiology
- Vascular anomalies and interventions
- Infective Endocarditis Diagnosis and Management
- Heart Failure Treatment and Management
- Transplantation: Methods and Outcomes
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Tracheal and airway disorders
- Childhood Cancer Survivors' Quality of Life
- Adolescent and Pediatric Healthcare
- Traumatic Brain Injury Research
- LGBTQ Health, Identity, and Policy
- Cardiac, Anesthesia and Surgical Outcomes
Children's Hospital Colorado
2018-2025
University of Colorado Denver
2018-2025
University of Colorado Hospital
2020-2024
University of Colorado Anschutz Medical Campus
2022-2024
University of Colorado Health
2024
University of California, San Francisco
2024
Jacobs (United States)
2015-2023
Steadman Clinic
2023
Medical College of Wisconsin
2015-2022
Children's Hospital of Wisconsin
2015-2022
Objective Patients after Fontan operation for complex congenital heart disease (CHD) have decreased exercise capacity and report reduced health-related quality of life (HRQOL). Studies suggest hospital-based cardiac physical activity programs can improve HRQOL in patients with CHD; however, these variable adherence rates. The impact a home-based program survivors is unclear. This pilot study evaluated the safety, feasibility, benefits an innovative on patients. Methods A total 14 children,...
There is significant interest in NO pathway modulators, specifically type 5 phosphodiesterase inhibitors (PDE5is), to treat patients with a Fontan circulation. Trials, however, have had mixed results. The relationship between the and clinical status circulation knowledge gap. We performed targeted metabolomic analysis using liquid chromatography coupled mass spectrometry quantify plasma metabolite concentrations from 2 well-characterized populations of circulation: Boston Adult Congenital...
Abstract Introduction: Cardiac rehabilitation programmes for paediatric patients with congenital heart disease (CHD) have been shown to promote emotional and physical health without any associated adverse events. While prior studies demonstrated the effectiveness of these types interventions, there has limited research into how inclusion psychological interventions as part programme impacts parent-reported patient-reported quality life. Materials methods: Patients between ages 7 24 years CHD...
Abstract Myocardial deformation analysis by cardiac MRI (CMR) yielding global circumferential and longitudinal strain (GCS GLS) is an increasingly utilized method to accurately quantify systolic function predict clinical events in patients with Fontan circulation. The purpose of this study was use principal component (PCA) investigate myocardial temporal patterns derived from strain–time curves learn about latent features beyond peak values. We conducted the specific attention dominant...
As health care outcomes improve the priority for those living with adult congenital heart disease have changed to a more holistic focus on quality of life and well-being. Although has embraced this, there are still areas where is deficit in advice, allyship, advocacy. One these deficits area sexual A healthy myriad physical psychosocial benefits. However, individuals may significant barriers achieving well-being this aspect their lives. These potential solutions outlined paper.
Transgender and gender diverse (TGD) individuals long-term survivors with adult congenital heart disease (ACHD) are both growing populations specialized needs. No studies assess temporal trends or evaluate the care of TGD ACHD.
In the US, there are more than 1.5 million adults living with congenital heart disease (CHD). The Congenital Heart Initiative (CHI) is a digital, online, patient-empowered registry that was created to advance multicenter research and improve clinical care by gathering patient-reported outcomes (PROs) in CHD. To report initial findings of PROs for CHD from first 3 years CHI. CHI launched nationally on December 7, 2020, as an observational cohort (survey) study. Data were collected virtually...
The Fontan circulation is characterized as a nonpulsatile flow propagation without pressure-generating ventricle. However, through the still exhibits oscillatory waves result of pressure changes generated by systemic single Identification discrete patterns circuit may be important to understand ventricle performance. Ninety-seven patients with underwent phase-contrast MRI right pulmonary artery, yielding subject-specific waveforms. Principal component (PC) analysis was performed on...
Introduction: Patients after Fontan operation for complex congenital heart disease (CHD) have reduced exercise capacity and health-related quality of life (HRQOL). Studies suggest hospital-based cardiac rehabilitation programs can improve HRQOL in patients with CHD; however, these variable adherence rates. The impact a home-based program survivors is unclear. This pilot study evaluated the safety, feasibility, benefits an innovative physical activity on patients. Methods: A total 14...
There is a paucity of literature evaluating the impact and barriers to participation in cardiac rehabilitation (CR) adult congenital heart disease population. The aims this study were evaluate CR on physical activity health-related quality life, as well post-operative population.Patients ≥18 yr age seen Wisconsin Adult Congenital Heart Disease Program post-open sternotomy surgery from 2010-2015 eligible for inclusion. Subjects mailed novel survey validated EuroQOL-5D 3L health questionnaire....