A5035751057- Microscopic Colitis
- Eosinophilic Esophagitis
- Adolescent and Pediatric Healthcare
- Inflammatory Bowel Disease
- Childhood Cancer Survivors' Quality of Life
- Autoimmune and Inflammatory Disorders Research
- Pregnancy and Medication Impact
- Health, psychology, and well-being
- Interprofessional Education and Collaboration
- Sex and Gender in Healthcare
- Empathy and Medical Education
- Pediatric Pain Management Techniques
- Reproductive System and Pregnancy
- Mental Health and Patient Involvement
Boston Children's Hospital
2024
Harvard University
2024
University of North Carolina at Chapel Hill
2021-2024
Adolescents with inflammatory bowel disease (IBD) are at an increased risk of anxiety and depression compared to peers, but availability mental health services in IBD clinics does not meet patients’ needs, use primary care for screening is low. This study provides qualitative data regarding adolescent caregiver perspectives on addressing IBD. Interviews were conducted adolescents caregivers Interview transcripts coded analyzed prominent themes. Thirteen fourteen interviewed. Three themes...
Active inflammatory bowel disease (IBD) increases the risk of pregnancy complications and contraceptive side effects, use may impact clinical course IBD. Although young people are at elevated for unintended pregnancy, those with IBD receive minimal disease-specific guidance. We characterized perspectives preferences on contraception reproductive health counseling from
Abstract Background Patient and Family Advisory Councils (PFACs) are an emerging mechanism to integrate patient family voices into healthcare. One such PFAC is the Council (PAC) of ImproveCareNow (ICN) network, a learning health system dedicated advancing care individuals with pediatric inflammatory bowel disease (IBD). Using quality improvement techniques co‐production, PAC has made great strides in developing novel patient‐led resources. Methods This paper, written by patients providers...
Explanatory models are culturally informed representations of illness that convey understandings the etiology and expected course disease. Substantial research has explored lay explanatory models, but examining physicians’ clinical can also provide insight into patients’ because physicians a foundational source authoritative knowledge shapes concepts This study characterized used by pediatric gastroenterologists when explaining inflammatory bowel disease (IBD) to children. We conducted...
Crohn's disease (CD) is a lifelong inflammatory bowel that can severely impact quality of life. Many questionnaires exist to assess life for patients with CD, but some these were developed without qualitative data from or include only limited symptoms. Patient-Reported Impact Symptoms in CD provides an innovative and patient-centered framework assessing soliciting patient interviews, using this guide cross-sectional study. Their findings should inform how clinicians conversations their regarding
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Patient Advisory Council, ImproveCareNow, Cincinnati, OH, USA Correspondence: Catalina Berenblum. E-mail: [email protected].