A5059282752- Health, Medicine and Society
- Cerebral Palsy and Movement Disorders
- Family and Disability Support Research
- Down syndrome and intellectual disability research
- Healthcare Systems and Practices
- Electrolyte and hormonal disorders
- Chronic Disease Management Strategies
- Adolescent and Pediatric Healthcare
- Hepatitis Viruses Studies and Epidemiology
- Child and Adolescent Health
- Social Policies and Family
- Musculoskeletal pain and rehabilitation
- Liver Disease Diagnosis and Treatment
- Reproductive System and Pregnancy
- Ectopic Pregnancy Diagnosis and Management
- Burkholderia infections and melioidosis
- Electroconvulsive Therapy Studies
- Endoplasmic Reticulum Stress and Disease
- Leptospirosis research and findings
- Disability Education and Employment
- Cystic Fibrosis Research Advances
- Intensive Care Unit Cognitive Disorders
- Trauma Management and Diagnosis
- Hepatitis B Virus Studies
- Spinal Cord Injury Research
Aix-Marseille Université
2020-2025
Assistance Publique Hôpitaux de Marseille
2020-2024
Hôpital de la Timone
2021-2024
Faculty of Public Health
2024
Public Health Laboratory
2024
Inserm
2021
Economic History Society
2014
Centre Hospitalo-Universitaire Dr Benbadis Constantine
2011
Hôpital Charles-Nicolle
2006-2008
Abstract Background The care organization of persons with profound intellectual and multiple disabilities (PIMD) varies by country according to the health system. This study used a large sample French individuals severe PIMD/polyhandicap assess: 1) adequacy setting over 5-year period 2) consumption. Methods longitudinal data from EVALuation PoLyHandicap (EVAL-PLH) cohort who were receiving managed in specialized centres residential facilities. Two assessments performed: wave 1 (T1) 2015–2016...
ABSTRACT Background Advancements in medicine have increased the life expectancy of people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores extent to which experiences older may differ from younger parents. Method participants were included French EVAL‐PLH cohort. Psychological status, quality coping compared between (i) youngest persons (< 20 years) versus oldest...
Background Overcrowded housing, as well inadequate sanitary conditions, contribute to making homeless people particularly vulnerable the SARS-CoV-2 infection. We aimed assess seroprevalence of infection among experiencing homelessness on a large city-wide scale in Marseille, France, taking into account different types accommodation. Methods A consortium outreach teams 48 locations including streets, slums, squats, emergency or transitional shelters and drop-in centres participated inclusion...
Polyuria-polydipsia syndrome (PPS) is a common presentation in children but the differential diagnosis rests on burdensome water deprivation tests. The aims of this study were to determine copeptin threshold distinguish patients with central diabetes insipidus from those primary polydipsia and estimate normal range concentrations children.Single-centre retrospective descriptive study.Two hundred seventy-eight aged 2 months 18 years who consulted for PPS (N = 40) or other reasons (control...
Abstract Polyhandicap is characterized by a combination of profound intellectual disability and serious motor deficit, resulting in the extreme restriction autonomy communication. The aim EVAL-PLH (EVALuation PoLyHandicap) study to identify impact socioeconomic, environmental, epidemiological determinants on health status persons with polyhandicap daily lives their caregivers. prospective cohort study. involved severe (who were cared for at reeducation centers, residential facilities, one...
Abstract Background In recent decades, progress has been made in the care of people with polyhandicap/profound intellectual and multiple disabilities (PIMD) through a better understanding pathophysiology development new management rehabilitation strategies adapted to these extreme pathologies. Although there is lack knowledge about health status oldest people, natural course life polyhandicap/PIMD would consequently allow optimisation preventive curative strategies. Few robust data on...
Abstract Introduction Parents of persons with profound intellectual and multiple disabilities (PIMD) play a major often lifelong role in the care support their child. A better understanding parents' perspectives regarding experiences parenting child PIMD is essential to them more effectively. Although this topic has been explored extensively Anglo‐Saxon Northern European countries, little known about experience these parents highly institutionalized context such as that France. Objective We...
Abstract Background The healthcare pathway of persons with complex developmental disabilities differs by country, depending both on the specificities associated system and related societal views. In 2017, French National Organization Solidarity for Autonomy entrusted to a group experts specific mission analyze three European experiences. Specific Aim aim this article is report similarities differences in pathways between France two other countries, Italy Norway. countries present different...
Abstract Introduction The heterozygous condition for β‐thalassemia mutation associated with an extra functional α‐globin gene can produce a Thalassemia Intermedia (TI) phenotype. This genotype is the second in frequency French Registry NaThalY that prospectively collects laboratory and clinical data. Materials Methods present report analyses transfusion needs, iron overload (ferritin, hepatic cardiac concentrations), complication rates 45 patients included presenting β 0 or + ‐thalassemia...
Background Profound intellectual multiple disabilities or polyhandicap (PLH) is defined as a combination of profound mental retardation and serious motor deficits resulting in extreme dependence. Support for these patients multidisciplinary, complex, time-consuming. Thus, institutional health care workers (HCWs) face specific working conditions: frequent physical tasks, distressed families, restricted feedback. Objectives We aimed to identify determinants quality life (QoL) HCWs study...