Elena Portacolone

ORCID: 0000-0003-2311-3836
Publications
Citations
Views
---
Saved
---
About
Contact & Profiles
Research Areas
  • Dementia and Cognitive Impairment Research
  • Health disparities and outcomes
  • Geriatric Care and Nursing Homes
  • Migration, Aging, and Tourism Studies
  • Aging and Gerontology Research
  • Ethics in Clinical Research
  • Employment and Welfare Studies
  • Mental Health and Psychiatry
  • Migration, Health and Trauma
  • Urban, Neighborhood, and Segregation Studies
  • COVID-19 and Mental Health
  • Vaccine Coverage and Hesitancy
  • Intergenerational Family Dynamics and Caregiving
  • COVID-19 epidemiological studies
  • Housing, Finance, and Neoliberalism
  • Patient Dignity and Privacy
  • Global Health Care Issues
  • Ethics and Social Impacts of AI
  • Health Systems, Economic Evaluations, Quality of Life
  • Technology Use by Older Adults
  • Palliative Care and End-of-Life Issues
  • Neuroethics, Human Enhancement, Biomedical Innovations
  • Health and Well-being Studies
  • Food Security and Health in Diverse Populations
  • Patient-Provider Communication in Healthcare

University of California, San Francisco
2016-2025

Institute on Aging
2015-2025

Lee University
2023

University of California, Berkeley
2013-2023

University of California System
2018

To examine the lived experience of older adults living alone with cognitive impairment to better understand their needs and concerns. Based on our previous work suggesting that often a sense precarity, we were interested in exploring this construct diagnosis impairment. The notion precarity points uncertainty deriving from coping cumulative pressures while trying preserve independence.This is qualitative study 12 aged 65 Six participants had Alzheimer's disease; 6 mild Participants'...

10.1093/geront/gnx193 article EN The Gerontologist 2017-11-02

Even before the COVID-19 pandemic, older adults with cognitive impairment living alone (an estimated 4.3 million individuals in United States) were at high risk for negative health outcomes. There is an urgent need to learn how this population managing during pandemic. This a qualitative study of 24 aged 55 and from diverse racial/ethnic backgrounds. Participants' lived experiences pandemic elicited via 59 ethnographic interviews conducted over phone either English, Spanish, or Cantonese....

10.1093/geront/gnaa201 article EN other-oa The Gerontologist 2020-12-16

Abstract Introduction This perspective paper addresses the US Hispanic/Latino (herein, Latino) experience with regards to a significant public health concern—the underrepresentation of Latino persons in Alzheimer's disease and related dementias (AD/ADRD) clinical trials. individuals are at increased risk for AD/ADRD, higher burden, low receipt care services. We present novel theoretical framework—the Micro‐Meso‐Macro Framework Diversifying AD/ADRD Trial Recruitment—which considers...

10.1002/trc2.12389 article EN cc-by-nc Alzheimer s & Dementia Translational Research & Clinical Interventions 2023-04-01

ABSTRACT Remaining at home in older age is generally considered a sign of independence and therefore an important achievement. More than five million Americans aged over 75 years live alone, number that destined to increase thanks advances longevity. Living alone can allow the expression one's preferences, but it also bring out hardships hardly visible outsiders, especially individualistic society such as United States America rewards self-sufficiency. According sociologist Rose, neo-liberal...

10.1017/s0144686x10001169 article EN Ageing and Society 2011-05-16

The aim of this study was to examine the factors contributing social isolation older residents a high-crime neighborhood through in-depth examination their lived experiences. A deeper understanding can allow policymakers and health care providers create policies programs alleviate these vulnerable understudied individuals. Participants were recruited support Housing Authority Police Fire Departments Richmond, California, town with rate. Fifty-nine ethnographic interviews conducted 20...

10.1093/geront/gnw268 article EN The Gerontologist 2017-02-16

Despite evidence that Hispanic/Latino populations are 1.5 times more likely than non-Latino Whites to develop Alzheimer's disease and related dementias (ADRD), Latinos underrepresented in clinical trials testing treatments for ADRD. Data needed on facilitators of ADRD trial participation Latinos. We leveraged in-depth qualitative methods elucidate barriers participating a large diverse sample Latinos; provide timely actionable strategies accelerate representation ADRD.Data were collected...

10.1002/trc2.12331 article EN cc-by-nc-nd Alzheimer s & Dementia Translational Research & Clinical Interventions 2022-01-01

Importance The potential role of living alone in either facilitating or hampering access to and use services for older adults with cognitive impairment is largely unknown. Specifically, it critical understand directly from health care social professionals how creates barriers the supportive racially ethnically diverse patients impairment. Objective To identify by investigating professionals’ perceptions caring such who live comparison counterparts others. Design, Setting, Participants This...

10.1001/jamanetworkopen.2023.29913 article EN cc-by-nc-nd JAMA Network Open 2023-08-18

One third of older adults with cognitive impairment live alone and are at high risk for poor health outcomes. Little is known about how who experience the process receiving a diagnosis mild (MCI) or Alzheimer's disease (AD).The aim this study was to understand effects meanings MCI AD on lived living alone.This qualitative age 65 over impairment. Participants' experiences were elicited through ethnographic interviews participant observation in their homes. Using content analysis approach,...

10.3233/jad-170723 article EN Journal of Alzheimer s Disease 2018-01-23

Abstract Introduction There is limited research on difficulties with activities of daily living (I/ADLs) among older adults alone cognitive impairment, including differences by race/ethnicity. Methods For U.S. Health and Retirement Study (2000–2014) participants aged 55+ impairment (4,666 individuals; 9,091 observations), we evaluated I/ADL difficulty help. Results Among 4.3 million an estimated 46% reported difficulty; 72% not receiving help I/ADL. Women more than men. Compared to white...

10.1002/alz.12102 article EN Alzheimer s & Dementia 2020-06-26

Black/African American populations are un­derrepresented as participants in dementia research. A major barrier to participation of African older adults research is a tendency distrust institutions owing both historical and contemporary racism. Building on the Ford framework, objective our study was examine factors that influence participa­tion among caregivers, with an emphasis understanding related trust. Data were collected during January 2019 March 2020 from 10 focus groups (n=91), 5...

10.18865/ed.30.s2.719 article EN Ethnicity & Disease 2020-11-19

Long-term evidence for the effectiveness and cost-effectiveness of collaborative dementia care management (CDCM) is lacking.

10.1001/jamanetworkopen.2024.19282 article EN cc-by-nc-nd JAMA Network Open 2024-07-05

Despite ethical claims that civic societies should foster intergenerational integration, age-segregation is a widespread yet understudied phenomenon. The purpose of this study was to understand the reasons led community-dwelling older Americans relocate into senior housing. Qualitative data were collected through participant observation and ethnographic interviews with 47 adults living alone in San Francisco, California. Half participants lived housing for seniors, other half conventional...

10.1177/0733464814538118 article EN Journal of Applied Gerontology 2014-09-02

Objective To examine the effects of COVID-19 pandemic among Latino communities, with an emphasis on understanding barriers and facilitators to vaccine intention prior development vaccine. Methods Qualitative data were collected between April June 2020 from 3 focus groups adults (n = 21) interviews administrators community-based organizations serving communities 12) in urban (Los Angeles) rural (Fresno) California, supplemented by Community Advisory Board input May 2021to elucidate findings....

10.1371/journal.pone.0272627 article EN cc-by PLoS ONE 2022-11-15

The number of older adults living alone in Western societies has steadily increased. Despite this trend, little is known about the overall experience population. In article, I examine condition old age urban America by drawing upon two years participant observation and ethnographic interviews with Americans alone, as well observation. Findings contribute to literature on inequality, particular attention theory cumulative disadvantage over life course. First reveal reasons that make a unique...

10.1177/0891241614528709 article EN Journal of Contemporary Ethnography 2014-04-21

Abstract Background More than one‐fourth of older adults with cognitive impairment (CI) live alone; these individuals often lack support for medication management and face a high risk adverse drug events. We characterized the frequency types high‐risk medications used by CI living alone and, context, compared patterns those in others. Methods This was cross‐sectional study National Health Aging Trends Study (NHATS) data Medicare claims (2015–2017). ascertained status from NHATS use Part D...

10.1111/jgs.19108 article EN Journal of the American Geriatrics Society 2024-07-26

(1) Background: A United States national policy advisory group (PAG) was convened to identify barriers and facilitators expand formal long-term services support (LTSS) for people living alone with cognitive impairment (PLACI), a focus on equitable access among diverse older adults. The PAG’s insights will inform the research activities of Living Alone Cognitive Impairment Project, which is aimed at ensuring treatment PLACI. (2) Methods: PAG identified providing effective culturally relevant...

10.3390/ijerph19106021 article EN International Journal of Environmental Research and Public Health 2022-05-16

Between 2018 and 2019, multiple clinical trials ended earlier than planned, resulting in calls to improve communication with support for participants their study partners ("dyads"). The multidisciplinary Participant Follow-Up Improvement Research Studies Trials (Participant FIRST) Work Group met throughout 2021. Its goals were identify best practices communicating supporting dyads affected by early trial stoppage. FIRST identified 17 key recommendations spanning the pre-trial, mid-trial,...

10.1002/alz.12732 article EN Alzheimer s & Dementia 2022-08-02

Black/African Americans are receiving COVID-19 vaccines at much lower rates than whites. However, research is still evolving that explains why these vaccination lower. The aim of this study was to examine the effects pandemic among older Americans, with an emphasis on trust and vaccine intention prior development.Data were collected between July September 2020 from 8 virtual focus groups in Detroit, MI San Francisco Bay Area, CA 33 African 11 caregivers cognitive impairment, supplemented by...

10.1016/j.ssmqr.2023.100230 article EN cc-by SSM - Qualitative Research in Health 2023-02-04

Abstract Aging is remarkably unequal. Who survives to grow old in America and the circumstances they face once there reflect durable racial, socioeconomic, gender inequalities that structure our lives from birth. Yet within field of social stratification mainstream sociology proper, examinations rapidly growing population older Americans are often relegated a “gerontological” periphery. This essay posits failure place aging as core concern inequality missed opportunity. We argue for...

10.1111/soc4.12450 article EN Sociology Compass 2017-03-01
Coming Soon ...