A5072432656- Dementia and Cognitive Impairment Research
- Mental Health and Patient Involvement
- Health, psychology, and well-being
- Technology Use by Older Adults
- Health, Environment, Cognitive Aging
- Health disparities and outcomes
- Patient Dignity and Privacy
- Geriatric Care and Nursing Homes
- Patient-Provider Communication in Healthcare
- Bullying, Victimization, and Aggression
- Mental Health and Psychiatry
- Palliative Care and End-of-Life Issues
- Ethics in Clinical Research
- Interprofessional Education and Collaboration
- Educational Innovations and Technology
- Health Policy Implementation Science
- Health Systems, Economic Evaluations, Quality of Life
- Chronic Disease Management Strategies
- Machine Learning in Healthcare
- Ethics in medical practice
- Aging and Gerontology Research
- Intergenerational Family Dynamics and Caregiving
- Wireless Body Area Networks
- Context-Aware Activity Recognition Systems
- Cultural and political discourse analysis
Alzheimer Europe
2016-2025
University of Concepción
2023
Paul Scherrer Institute
2023
Background: Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group health care professionals recently proposed reformulating static WHO definition towards dynamic one based on ability physically, mentally socially adapt self-manage. This paper is result collaborative action INTERDEM Social Health Taskforce operationalize this new concept for dementia, more specifically social domain, formulate directions research...
Abstract Background Enabling people with dementia to ‘live well’ is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed promote well-being are often derived from symptom-focused, loss/deficit approach, or broad quality life concepts. A pan-European working group called on the development an alternative asset/strengths-based conceptual framework dementia. This paper takes forward this recommendation by developing...
Background: Advance care planning has been defined in an international consensus paper, supported by the European Association for Palliative Care. There are concerns that this definition may not apply to dementia. Moreover, it is informed input from people with Aim: To gather perspective of Working Group People Dementia and their supporters on how advance develop recommendations changes definition. Design: An in-depth qualitative study was conducted, analysing online focus groups interviews...
Timely diagnosis of dementia is recommended in national strategies. To what extent it occurring across Europe, factors are associated with it, and the impact on carers emotions quality diagnostic disclosure?Survey family recruited through 5 Alzheimer's associations (Czech Republic, Finland, Italy, Netherlands, Scotland). One thousand four hundred nine participated, 84% completing online. Fifty-two percent were adult children, 37% spouses, median age 57. Most (83%) female.Nearly half (47%)...
Background: Alzheimer's Disease (AD) impairs the ability to carry out daily activities, reduces independence and quality of life increases caregiver burden. Our understanding functional decline has traditionally relied on reports by family caregivers, which are subjective vulnerable recall bias. The Internet Things (IoT) wearable sensor technologies promise provide objective, affordable, reliable means for monitoring function. However, human factors its acceptance relatively unexplored....
In clinical trials which target pathophysiological mechanisms associated with Alzheimer’s disease, research participants who are recruited based on biomarker test results should be informed about their increased risk of developing dementia. This paper presents the a qualitative focus group study attitudes and concerns toward learning information biomarker-based status among healthy in United Kingdom Spain people dementia supporters/caregivers from countries represented European Working Group...
Informed consent is a critical ethical requirement in research, ensuring the protection of participants' rights and promoting their wellbeing autonomy. In dementia this process becomes particularly complex due to cognitive impairments fluctuating capacity. While substantial work has been done address these challenges, much literature on informed research shaped by perspectives researchers healthcare professionals, with less focus those lived experience. This paper provides an overview people...
Abstract Biomedical research aimed at the development of therapies for chronic and late‐onset conditions increasingly concentrates on early treatment symptom‐less disease. This broad trend is evidenced in prominent shifts contemporary dementia research. Revised diagnostic criteria new approaches to clinical trials propose a focus earlier stages disease prompt concerns about implications communicating test results associated with risk developing when no effective treatments are available....
Abstract Background Prognostic studies in the context of Alzheimer's disease (AD) mainly predicted time to dementia. However, it is questionable whether onset dementia most relevant outcome along AD trajectory from perspective patients and their care partners. Therefore, we aimed identify outcomes viewpoint Methods We used a two‐step, mixed‐methods approach. As first step conducted four focus groups Netherlands elicit comprehensive list considered important by ( n = 12) partners 14)...
Clinical research with remote monitoring technologies (RMTs) has multiple advantages over standard paper-pencil tests, but also raises several ethical concerns. While studies have addressed the issue of governance big data in clinical from legal or perspectives, viewpoint local ethics committee (REC) members is underrepresented current literature. The aim this study therefore to find which specific challenges are raised by RECs context a large European on all syndromic stages Alzheimer's...
Social activities are important for health and act as a driver of cognitive reserve during aging. In this perspective paper, we describe challenges outline future (research) endeavors to establish better operationalization social in multidomain interventions prevent dementia.
Abstract Background The Finnish Geriatric Intervention Study to Prevent Cognitive Impairment and Disability (FINGER) multimodal lifestyle intervention yielded cognitive other health benefits in older adults at risk of decline. two-year multinational randomized controlled LETHE trial evaluates the feasibility a digitally supported, adapted FINGER among at-risk adults. Technology is used complement in-person activities, streamline delivery, personalize recommendations, collect digital...
This study was designed to advance our understanding of how feelings empowerment in people living with dementia still residing at home can be promoted. We conducted qualitative interviews 12 participants mild-to-moderate stages Germany and Spain as part a European on mindful design for dementia. A thematic content analysis performed elicit the key features experience reported by interviewees. Three overarching categories were identified: first category ‘experiencing changes personal life...
Abstract Background The European Association for Palliative Care (EAPC) defines advance care planning (ACP) as a process enabling individuals with decisional capacity to define goals and preferences future medical treatment care, discuss these family health‐care providers, record review them if appropriate. There are concerns that this other definitions may not apply ACP in the context of dementia. needs people dementia differ from those diseases. Furthermore, current informed by input...
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Abstract Background The Finnish Geriatric Intervention Study to Prevent Cognitive Impairment and Disability (FINGER) multimodal lifestyle intervention yielded cognitive other health benefits in older adults at risk of decline. two‐year multinational randomized controlled LETHE trial evaluates the feasibility a digitally supported, adapted FINGER among at‐risk adults. Technology is used complement in‐person activities, for delivery, personalize recommendations, collect digital biomarkers....
Abstract Background Recent developments in physiological and digital biomarkers provide an opportunity to shift the first diagnostic steps home‐setting, thus allowing earlier detection treatment of Alzheimer’s disease (AD). Blood‐based, magnetic resonance imaging, electrophysiological, microbiome have shown great promise call for evaluation their accuracy, feasibility safety primary care community. The aim PREDICTOM is develop test accuracy artificial intelligence (AI) driven screening...
Although cyberbullying is a growing problem in school coexistence, it not yet included initial teacher training, which why was necessary to implement module on the Educational Orientation program of Los Angeles Campus University Concepcion, Chile. The emphasis placed prevention and coping through media socioemotional skills. article describes analysis didactic implementation sample students 4th 5th year education careers qualitative action research approach, carried out during 2020 2021....