A5089149181- Cancer survivorship and care
- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Family Support in Illness
- Patient-Provider Communication in Healthcare
- Global Cancer Incidence and Screening
- Patient Satisfaction in Healthcare
- Lung Cancer Diagnosis and Treatment
- Clinical practice guidelines implementation
- Economic and Financial Impacts of Cancer
- Health Systems, Economic Evaluations, Quality of Life
- Bladder and Urothelial Cancer Treatments
- Cancer-related cognitive impairment studies
- Adolescent and Pediatric Healthcare
- Lung Cancer Treatments and Mutations
- Digital Mental Health Interventions
- Electronic Health Records Systems
- Nausea and vomiting management
- Primary Care and Health Outcomes
- Acute Lymphoblastic Leukemia research
- Healthcare Systems and Technology
- Chronic Disease Management Strategies
- COVID-19 and healthcare impacts
- Endometrial and Cervical Cancer Treatments
- BRCA gene mutations in cancer
University of Leeds
2016-2025
St James's University Hospital
2011-2024
Secretaria de Planejamento e Gestão
2018
Southern California Institute of Architecture
2016
Engineering Arts (United States)
2016
Cancer Research UK
2011
University of Sheffield
2004-2009
Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice (eRAPID) is an online eHealth system for patients to self-report symptoms during cancer treatment. It provides automated severity-dependent advice guiding self-management or medical contact displays the reports in electronic records. This trial evaluated impact eRAPID on symptom control, healthcare use, self-efficacy, quality life (QOL) a population treated predominantly with curative intent.Patients...
Little is known about health-related quality of life (HRQOL) following treatment for bladder cancer (BC). To determine this, we undertook a cross-sectional survey covering 10% the English population. Participants 1–10 yr from diagnosis were identified through national registration data. A postal was administered containing generic HRQOL and BC-specific outcome measures. Findings compared with those general population other pelvic patients. Generic measured using five-level EQ-5D (EQ-5D-5L)...
S1 Using computerized adaptive testing Tim Croudace S2 Well-being: what is it, how does it compare to health and are the implications of using inform policy John Brazier O1 “Am I going get better?”—Using PROMs patients about likely benefit surgery Nils Gutacker, Andrew Street O2 Identifying Patient Reported Outcome Measures for an electronic Personal Health Record Dan Robotham, Samantha Waterman, Diana Rose, Safarina Satkunanathan, Til Wykes O3 Examining change process over time...
Abstract Background Diagnosis of a life‐threatening condition has been linked to post‐traumatic stress. However, only recently it acknowledged that positive outcomes including growth or benefit finding may also occur. The aim our study was extend previous work describing among survivors childhood cancer, by determining the contribution demographic and medical variables associations between child parent growth. Methods Survivors any cancer (leukaemia, central nervous system solid tumour; age...
Abstract Objective : Emotional distress (ED) is an under‐diagnosed problem in cancer patients and over the last decade a number of national guidelines have recommended assessment management model based on appropriate health professional response to hierarchy patient need. This study explores views professionals regarding their current roles responsibilities detection ED, use screening tools access expert psychological support. Methods Interviews with 23 were conducted [6 clinical nurse...
Modern cancer treatments have improved survival rates and changed the nature of care. The acute long-term physical psychosocial comorbidities associated with treatment place increasing demands on healthcare services to provide suitable models follow-up care for survivor population.Aim. We discuss value challenges incorporating patient-reported outcome measures (PROMs) eHealth interventions into routine draw our 15 years' experience developing electronic systems capturing data in oncology...
Abstract Background Advances in peri-operative care of surgical oncology patients result shorter hospital stays. Earlier discharge may bring benefits, but complications can occur while are recovering at home. Electronic patient-reported outcome (ePRO) systems enhance remote, real-time symptom monitoring and detection after discharge, thereby improving patient safety outcomes. Evidence the effectiveness ePRO is lacking. This pilot study evaluated feasibility a electronic system for following...
Patients undergoing major cancer surgery frequently require post-acute care for complications and adverse effects. Enhanced recovery after programmes mean that patients are increasingly discharged home earlier. Symptom/complication detection post-discharge is sub-optimal. Systematic patient monitoring following may be optimally achieved through routine electronic patient-reported outcome (ePRO) data capture. ePRO systems employ clinical algorithms to guide management of automatically alert...
Abstract Background Patient-reported outcome measures (PROMs) are increasingly being used as an assessment and monitoring tool in clinical practice. However, patient adherence to PROMs completions typically not well documented or explained published studies reports. Through a collaboration between the International Society for Quality-of-Life Research (ISOQOL) Patient Engagement QOL Clinical Practice Special Interest Groups (SIGs) case were collated platform explore how can be evaluated...
eRAPID (electronic patient self-Reporting of Adverse-events: Patient Information and aDvice) is an internet based system for patients to self-report symptoms side effects (adverse events or AE) cancer treatments. allows AE reporting from home reported data accessible via Electronic Records (EPR) use in routine care. The can generate alerts clinical teams severe provides advice on managing mild AEs. overall aims are improve the safe delivery treatments, enhance care standardise...
Since the launch of National Cancer Survivorship Initiative, there has been a surge interest surrounding value and organisation long-term follow-up care after cancer treatment. We report views 309 adult survivors (aged 18–45 years) on provision preferences for care. A total 207 completed questionnaires before routine consultant-led appointments 102 were recruited by post. Measures health status (including late effects, perceived vulnerability to effects quality life), reasons attending...
Evidence for the efficacy of late effects surveillance in adult cancer survivors is lacking and there little agreement among clinicians on appropriate follow-up care. We report views both experts general practitioners (GPs) long-term provision survivors, focussing 18–45 years age group. A total 421 (36% haematologists, 33% oncologists, 18% surgeons, 10% nurses, 2% other) 54 GPs responded to a structured online survey. Reasons care (clinical or supportive); advantages disadvantages primary...
BACKGROUNDThere is a lack of evidence regarding current screening practices for incipient ovarian failure in young women following gonadotoxic therapy and the most appropriate form estrogen replacement. This study examined (i) prevalence management (ii) quality-of-life implications early menopause (EM).
Objectives Electronic patient self-Reporting of Adverse-events: Patient Information and aDvice (eRAPID) is an online system developed to support care during cancer treatment by improving the detection management treatment-related symptoms. Patients can complete symptom reports from home receive severity-based self-management advice, including notifications contact hospital for severe data are available in electronic records staff review. Prior commencement a randomised controlled trial...
The COVID-19 pandemic has had a profound impact on every aspect of UK life in 2020. Health care systems have been radically reshaped at all levels to prepare for and manage coronavirus admissions whilst simultaneously trying limit wider infection. As consequence, cancer services experienced major disruptions across element routine pathways; screening programmes suspended, treatments halted face consultations severely restricted.1-3 In addition, many patients also advised socially isolate...
BackgroundLittle is known about contemporary lifestyle choices in patients with bladder cancer (BC). These include carcinogenic risk factors and could affect fitness to receive treatments.ObjectiveTo evaluate the BC patients.Design, setting, participantsSelf-reported surveys from participants diagnosed previous 10 yr captured smoking patterns, e-cigarette use, physical activity using GODIN Leisure-Time Exercise Questionnaire, long-term conditions (LTCs), relationship status,...
Background Cancer is treated using multiple modalities (e.g. surgery, radiotherapy and systemic therapies) frequently associated with adverse events that affect treatment delivery quality of life. Regular event reporting could improve care safety through timely detection management. Information technology provides a feasible monitoring model, but applied research needed. This programme developed evaluated an electronic system, called eRAPID, for cancer patients to remotely self-report...