A5074090272- Cystic Fibrosis Research Advances
- Stroke Rehabilitation and Recovery
- Acute Ischemic Stroke Management
- Pediatric health and respiratory diseases
- Tracheal and airway disorders
- Respiratory viral infections research
- Childhood Cancer Survivors' Quality of Life
- Clinical practice guidelines implementation
- Neonatal Respiratory Health Research
- Traumatic Brain Injury and Neurovascular Disturbances
- Breastfeeding Practices and Influences
- Child Nutrition and Feeding Issues
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Frailty in Older Adults
- Health Systems, Economic Evaluations, Quality of Life
- Intensive Care Unit Cognitive Disorders
- Health Policy Implementation Science
- Long-Term Effects of COVID-19
- Healthcare Systems and Practices
- Palliative Care and End-of-Life Issues
- Food Security and Health in Diverse Populations
Lung Foundation Australia
2018-2022
Metro South Health
2021-2022
Queensland Health
2022
Cerebral Palsy Alliance
2017
The University of Queensland
2017
Background and Purpose: Conditions associated with frailty are common in people experiencing stroke may explain differences outcomes. We assessed associations between a published, generic risk score, derived from administrative data, patient outcomes following stroke/transient ischemic attack; its accuracy for predicting mortality compared other measures of clinical status using coded data. Methods: Patient-level data the Australian Stroke Clinical Registry (2009–2013) were linked hospital...
Background and Purpose— We aimed to evaluate the effectiveness of an intervention improve triage, treatment, transfer for patients with acute stroke admitted emergency department (ED). Methods— A pragmatic, blinded, multicenter, parallel group, cluster randomized controlled trial was conducted between July 2013 September 2016 in 26 Australian EDs units tPA (tissue-type plasminogen activator) protocols. Hospitals, stratified by state volume, were 1:1 or usual care independent statistician....
Objective Provision of a discharge care plan and prevention therapies is often suboptimal. Our objective was to design pilot test an interdisciplinary, organisational intervention improve using stroke as the case study mixed-methods, controlled before–after observational design. Setting Acute public hospitals in Queensland, Australia (n=15). The 15 were ranked against benchmark based on composite outcome three processes. Clinicians from ‘top-ranked’ hospital participated focus group elicit...
Organizational context is one factor influencing the translation of evidence into practice, but data pertaining to patients with acute stroke are limited. We aimed determine associations organizational in relation four important evidence-based care processes. This was a mixed methods cross-sectional study. Among 19 hospitals Queensland, Australia, survey conducted perceptions clinicians about their work using Alberta Context Tool (ACT), validated measure covering 10 concepts context, and...
Introduction Primary ciliary dyskinesia (PCD) is a rare, progressive, inherited ciliopathic disorder, which incurable and frequently complicated by the development of bronchiectasis. There are few randomised controlled trials (RCTs) involving children adults with PCD thus evidence efficacy for interventions usually extrapolated from people cystic fibrosis. Our planned RCT seeks to address some these unmet needs employing currently prescribed (but unapproved long-term use in PCD) macrolide...
The use of external facilitation within the context multicomponent quality improvement interventions (mQI) is growing. We aimed to evaluate influence for improving acute stroke care. Clinicians from hospitals participating in mQI (Queensland, Australia) as part Stroke123 study were supported by facilitators a single, on-site workshop review hospital performance against eight clinical processes care (PoCs) collected Australian Stroke Clinical Registry (AuSCR) and develop an action plan....
<h3>Introduction</h3> The prevalence of bronchiectasis in New Zealand (NZ) is higher than comparable countries (180/100,000 population)<sup>1</sup>; the burden and severity disease are incompletely understood. Bronchiectasis registries such as EMBARC (>14,000 participants) Australian Registry (ABR, 1360 have improved understanding identified future research priorities. aim NZ (NZBR) to contribute aetiology management, both internationally. It closely aligned with ABR supported by Lung...
<b>Background:</b> The characteristics of patients with bronchiectasis in Australia have not been well described. Through recruitment to the Australian Bronchiectasis Registry (ABR), we recently described a cohort from two tertiary centres Sydney. <b>Aim:</b> To compare and patterns care cohorts three Sydney, Milan Dundee. <b>Methods:</b> 270 eligible (bronchiectasis on CT, symptoms, no CF) were recruited ABR 2 Sydney compared enrolled EMBARC Milan, Italy (N=452) Dundee, UK (N=362)....
<b>Introduction:</b> The paucity of longitudinal data pertaining to Australians with bronchiectasis prompted the development Australian Bronchiectasis Registry(ABR). <b>Aims:</b> aim was apply a staged approach and rollout ABR focus on long-term sustainability. <b>Methods:</b> collection platform developed in partnership European Multicentre Audit Research Collaboration(EMBARC). Multisite ethics approval were obtained for linkage healthcare pharmaceutical utilisation data. Patient enrolment...
<b>Introduction:</b> Pulmonary rehabilitation is recommended for people with bronchiectasis, but the content an educational program not directed towards this condition. The goal of qualitative study was to identify needs bronchiectasis in a pulmonary setting. <b>Methods:</b> A registered on Australian Bronchiectasis Registry using individual semi-structured interviews undertaken. Transcripts were coded independently by two investigators and themes developed through consensus. <b>Results:</b>...
Bronchiectasis is reported to be more frequent in females. There have been no large studies examining the impact of biological sex on disease characteristics, aetiology, severity, quality life or management. Patients were prospectively enrolled from 2015 -2018 3 linked bronchiectasis registries Australia, Europe and India. Disease information was collected, including (QoL-B). Analyses conducted cross-sectionally using baseline data. 13859 patients included 29 countries. 57.6% female. The...
Background: Non-cystic fibrosis (CF) bronchiectasis is a significant but often under-recognised cause of respiratory morbidity in children. Current understanding the risk factors leading to development, and subsequent exacerbations non-CF limited. Exacerbations requiring hospitalisation are associated with more rapid decline lung function. Our study aimed identify for severe children bronchiectasis. Methods materials: The Australian Bronchiectasis Registry (ABR) secure web-enabled database...