A5015195064- Ethics in Clinical Research
- BRCA gene mutations in cancer
- Radiomics and Machine Learning in Medical Imaging
- CRISPR and Genetic Engineering
- Climate Change Communication and Perception
- AI in cancer detection
- Participatory Visual Research Methods
- Effects of Radiation Exposure
- Health Policy Implementation Science
- Prenatal Screening and Diagnostics
- Race, Genetics, and Society
- Radiology practices and education
- Medical Imaging Techniques and Applications
- Elbow and Forearm Trauma Treatment
- Radiation Dose and Imaging
- Patient Dignity and Privacy
- Advanced Radiotherapy Techniques
- Health Systems, Economic Evaluations, Quality of Life
- Ethics and Legal Issues in Pediatric Healthcare
- Biomedical Ethics and Regulation
- Privacy-Preserving Technologies in Data
- Genomics and Rare Diseases
- Ethics in medical practice
- Lung Cancer Diagnosis and Treatment
- COVID-19 and Mental Health
University of Suffolk
2017-2024
Wellcome Connecting Science
2018-2024
University of Cambridge
2018-2024
University of Exeter
2023
Analyzing genomic data across populations is central to understanding the role of genetic factors in health and disease. Successful sharing relies on public support, which requires attention whether people around world are willing donate their that then subsequently shared with others for research. However, studies such perceptions geographically limited do not enable comparison. This paper presents results from a very large survey attitudes toward sharing. Data 36,268 individuals 22...
Abstract Trust may be important in shaping public attitudes to genetics and intentions participate genomics research big data initiatives. As such, we examined trust sharing among the general public. A cross-sectional online survey collected responses from representative publics USA, Canada, UK Australia ( n = 8967). Participants were most likely their medical doctor less other entities named. Company researchers least trusted. Low, Variable High classes defined using latent class analysis....
Abstract Background Public trust is central to the collection of genomic and health data sustainability research. To merit trust, those involved in collecting sharing need demonstrate they are trustworthy. However, it unclear what measures most likely this. Methods We analyse ‘Your DNA, Your Say’ online survey public perspectives on including responses from 36,268 individuals across 22 low-, middle- high-income countries, gathered 15 languages. examine how participants perceived relative...
With the use of genetic technology, researchers have potential to inform medical diagnoses and treatment in actionable ways. Accurate variant interpretation is a necessary condition for utility technology unfold. This relies on ability access large genomic datasets so that comparisons can be made between variants interest. only successful if DNA data are donated by numbers people 'research', including clinical, non-profit for-profit research initiatives, order accessed scientists clinicians...
Abstract Public acceptance is critical for sharing of genomic data at scale. This paper examines how pertains to the perceived similarities and differences between DNA other forms personal data. It explores perceptions representative publics from USA, Canada, UK Australia ( n = 8967) towards donation health Fifty-two percent this public held ‘exceptionalist’ views about genetics (i.e., believed different or ‘special’ compared types medical information). group was more likely be familiar with...
<ns3:p>As detailed in its flagship report, Genome UK, the UK government recognises vital role that broad public engagement across whole populations plays field of genomics. However, there is limited evidence about how to do this at scale. Most audiences not feel actively connected science, are often unsure relevance their lives and rarely talk family friends it; we term dis-connection a ‘disengaged audience’. We use narrative review explore: (i) attitudes towards genetics genomics what may...
The aim of this study was to determine how attitudes toward the return genomic research results vary internationally.We analyzed "Your DNA, Your Say" online survey public perspectives on data sharing including responses from 36,268 individuals across 22 low-, middle-, and high-income countries, these were gathered in 15 languages. We participants responded when asked whether (RoR) would motivate their decision donate DNA or health data. examined variation countries compared other with those...
The way we "talk" about genetics plays a vital role in whether public audiences feel at ease having conversations it. Our research explored there was any difference between "what say" and people hear" when providing information to community groups who are known be missing from genomics datasets. We conducted 16 focus with 100 members of the British had limited familiarity self-identified as belonging communities Black African, Caribbean, Pakistani ancestry well various ancestral heritage...
Abstract The legal duty to protect patient confidentiality is common knowledge amongst healthcare professionals. However, what may not be widely known, that this always absolute. In the United Kingdom, both General Medical Council governing practice of all doctors, as well many other professional codes recognise that, under certain circumstances, it appropriate break confidentiality. This arises when there a wider health others, and risk non-disclosure outweighs potential harm from breaking...
<ns4:p>As detailed in its flagship report, Genome UK, the UK government recognises vital role that broad public engagement across whole populations plays field of genomics. However, there is limited evidence about how to do this at scale, particularly for audiences who are not especially interested science, unsure relevance their lives or feel disengaged from it. We use a narrative review explore: (i) attitudes towards genetics and genomics what may influence reluctance engage with these...