A5013336749- Ethics in Clinical Research
- Biomedical Ethics and Regulation
- Climate Change Communication and Perception
- Risk Perception and Management
- BRCA gene mutations in cancer
- Diabetes Management and Education
- Organ Donation and Transplantation
- CRISPR and Genetic Engineering
- Education Systems and Policy
- Behavioral Health and Interventions
- Ethics in medical practice
- Genetically Modified Organisms Research
- Diabetes, Cardiovascular Risks, and Lipoproteins
- Educational Strategies and Epistemologies
- Pluripotent Stem Cells Research
- Epilepsy research and treatment
- Environmental Education and Sustainability
- Cultural Differences and Values
- Social and Intergroup Psychology
- Education, Achievement, and Giftedness
- Health Systems, Economic Evaluations, Quality of Life
- Reproductive Health and Technologies
- Chronic Disease Management Strategies
- Neuroethics, Human Enhancement, Biomedical Innovations
- Migration, Health and Trauma
Swinburne University of Technology
2014-2023
University of Tasmania
2014-2023
University of Leeds
2012
Sutton Hospital
1948
This research examined why the public may be less supportive of stem cell when conducted in a private compared to context. A representative sample ( n = 403) Australians who were exposed information relating privately funded scientists significantly likely approve than those presented with scenario working within publicly University 401) and control condition 404). Mediation analyses revealed that decrease approval was primarily associated tendency trusted their counterparts. Public trust...
To assess the Knowledge, Attitudes and Practice (KAP) amongst general community regarding type 2 diabetes mellitus (DM) in rural Bangladesh.Data was collected using cluster random sampling from 3104 adults residing a district Bangladesh. Participants underwent KAP questionnaire survey assessing diabetes, socio-demographic medical history. Descriptive, Chi-square regression analyses were performed.Participants aged between 30 89 years (M = 51, SD= 11.8) 65.5% female. The prevalence of found...
This research examined public opinion toward genetically modified plants and animals for food, how trust in organizations media coverage explained attitudes these organisms. Nationally representative samples ( N = 8821) over 10 years showed Australians were less positive compared to especially where was high. Structural equation modeling found that different organisms food significantly associated with higher scientists regulators (e.g. governments), lower watchdogs environmental movement)....
Analyzing genomic data across populations is central to understanding the role of genetic factors in health and disease. Successful sharing relies on public support, which requires attention whether people around world are willing donate their that then subsequently shared with others for research. However, studies such perceptions geographically limited do not enable comparison. This paper presents results from a very large survey attitudes toward sharing. Data 36,268 individuals 22...
Background To assess the awareness, attitudes, and practices associated with common eye diseases care utilization in a rural district of Bangladesh. Methods Data were collected using multilevel cluster random sampling technique from 3104 adults aged ≥30 years Banshgram union questionnaire assessing attitudes practice about diabetes diseases, educational attainment, socio-economic status, medical history. Results Participants between 30 89 mean (SD) age 51 (12) 65% female. The majority...
Abstract Trust may be important in shaping public attitudes to genetics and intentions participate genomics research big data initiatives. As such, we examined trust sharing among the general public. A cross-sectional online survey collected responses from representative publics USA, Canada, UK Australia ( n = 8967). Participants were most likely their medical doctor less other entities named. Company researchers least trusted. Low, Variable High classes defined using latent class analysis....
Abstract Background Public trust is central to the collection of genomic and health data sustainability research. To merit trust, those involved in collecting sharing need demonstrate they are trustworthy. However, it unclear what measures most likely this. Methods We analyse ‘Your DNA, Your Say’ online survey public perspectives on including responses from 36,268 individuals across 22 low-, middle- high-income countries, gathered 15 languages. examine how participants perceived relative...
The success of human population biobanks are dependent on the publics' willingness to participate. This research aimed determine those factors important in determining public's intention donate a biological sample publicly funded biobank, and allow that be linked with medical records.A national 1000 Australians was surveyed via telephonic interviews. Questions included reported likelihood respondents would participate biobank research, ratings trust biobanks, beliefs will lead improved...
<b><i>Objectives:</i></b> The necessity for biobanks to share their resources with third parties poses potential risks public trust and the intention participate in genetic research. We explore effects of data sharing type third-party access (public vs. private) on and, turn, biobank <b><i>Methods:</i></b> An experimental design was used assess a national sample 1,701 Australians via computer-assisted telephone interview....
Genome editing using clustered regularly interspersed short palindromic repeats (CRISPR) and CRISPR-associated proteins offers the potential to facilitate safe effective treatment of genetic diseases refractory other types intervention. Here, we identify some major challenges for clinicians, regulators, human research ethics committees in clinical translation CRISPR-mediated somatic cell therapy.
This research was supported by Australian Research Council Discovery Grant DP110100694 to DN, DC, CC and MO.
Background and Objective: New more efficient methods of gene editing have intensified the ethical legal issues associated with germlines. Yet no research has separated impact hereditary concern on public attitudes from moral concern. This compares these two concerns across five applications including, prevention human disease, animal research, animals for use food enhancement appearance. Methods: A sample 1004 Australians responded to either a telephone (n = 501; randomly selected) or online...
Abstract Background Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, facilitating funding biobanks. Globalisation networking biobanking may challenge this trust. Methods We report the results Australian study examining attitudes globalisation The used...
Biobanks are essential tools for facilitating biomedical research, because they provide collections of human tissue linked with personal information. There is still little understanding the underlying reasons why people participate in biobanking increasingly commercialised and internationalised research environment. This paper reports results an Australia-wide telephone survey. The analyses types obligations that members public may wish to see incorporated biobank benefit sharing...
Public trust is critical in any project requiring significant public support, both monetary terms and to encourage participation. The research community has widely recognized the centrality of trust, garnered through consultation, success large-scale epidemiology. This paper examines potential utility deliberative democracy methodology within health setting. A event was undertaken Tasmania, Australia, as part a wider program consultation regarding development Tasmanian Biobank. Twenty-five...
Understanding public priorities for biobanks is vital maximising utility and efficiency of genetic research maintaining respect donors. This directly assessed the relative importance place on different expectations biobanks. Quantitative qualitative results from a national sample 800 Australians revealed that majority attributed more to protecting privacy ethical conduct than new healthcare benefits, which was in turn viewed as important obtaining specific consent, benefit sharing,...
Abstract Public acceptance is critical for sharing of genomic data at scale. This paper examines how pertains to the perceived similarities and differences between DNA other forms personal data. It explores perceptions representative publics from USA, Canada, UK Australia ( n = 8967) towards donation health Fifty-two percent this public held ‘exceptionalist’ views about genetics (i.e., believed different or ‘special’ compared types medical information). group was more likely be familiar with...
Objective: To assess public perceptions of Australia's doctors, hospitals and health care systems. Design participants: A cross-sectional national telephone survey a random sample 800 Australian adults in August 2007. Main outcome measures: Ratings subjective trust providers, private hospitals, insurers Medicare; attitudinal ratings for the current system, Results: Australians reported high doctors (general practitioners more than specialists), low alternative practitioners, moderate...
This study was a randomised control trial with waiting group. It designed to evaluate the effectiveness of 6-month, group-based diabetes prevention programme, The Healthy Living Course and assess whether participation in programme led changes modifiable risk factors for type 2 among an already at-risk pre-diabetic population. Individuals designated at by their general practitioners (GPs) were screened using Oral Glucose Tolerance Test. Volunteers (N = 307) pre-diabetes assigned intervention...
This research examines the influence of commercialization on support for scientific research. It compares effects funding source with type organization public stem cell Using a national Australian telephone survey ( n = 1000), results reveal that drops significantly when is funded by private rather than interests, and even more so it conducted in company university. Respondents’ preference university was enhanced if they trusted universities, distrusted major companies believed would be...