A5014080622- Childhood Cancer Survivors' Quality of Life
- Acute Lymphoblastic Leukemia research
- Adolescent and Pediatric Healthcare
- Family Support in Illness
- Hematopoietic Stem Cell Transplantation
- Wheat and Barley Genetics and Pathology
- Corneal Surgery and Treatments
- Reproductive Biology and Fertility
- Yeasts and Rust Fungi Studies
- Ocular Surface and Contact Lens
- Chronic Disease Management Strategies
- Ethics and Legal Issues in Pediatric Healthcare
- Hearing, Cochlea, Tinnitus, Genetics
- Cancer-related cognitive impairment studies
- Healthcare Policy and Management
- Thyroid Disorders and Treatments
- Chemotherapy-induced cardiotoxicity and mitigation
- Hormonal Regulation and Hypertension
- Assisted Reproductive Technology and Twin Pregnancy
- Hearing Loss and Rehabilitation
- Retinal Diseases and Treatments
- Thyroid Cancer Diagnosis and Treatment
- Head and Neck Anomalies
- Palliative Care and End-of-Life Issues
- Urological Disorders and Treatments
Louisiana State University Health Sciences Center New Orleans
2015-2025
Children's Hospital of New Orleans
2014-2025
Louisiana State University
2013-2025
Children's Medical Center
2023
St. Jude Children's Research Hospital
2015-2016
Nationwide Children's Hospital
2016
Emory University
2016
Fred Hutch Cancer Center
2016
Northwestern University
2016
University of California, Los Angeles
2015
To characterize psychological and neurocognitive function in long-term cancer survivors diagnosed during adolescence early young adulthood (AeYA).Six thousand one hundred ninety-two 390 siblings the Childhood Cancer Survivor Study completed Brief Symptom Inventory-18 a Neurocognitive Questionnaire. Treatment demographic predictors were examined, associations with social attainment (employment, education, living independently) evaluated. Logistic regression models used to compute odds ratios...
BACKGROUND The fertility of adolescent and young adult (AYA) patients with cancer can be threatened by treatments, but to the authors' knowledge little is known regarding extent which providers discuss this or recommend preservation, patient physician characteristics associated these interactions. METHODS Questionnaires from 459 AYA who were diagnosed between 2007 2008 recruited through 7 US population‐based registries analyzed using sex‐specific multivariable models. authors assessed not...
Purpose In the general population, psychological symptoms frequently co-occur; however, profiles of symptom comorbidities have not been examined among adolescent survivors childhood cancer. Patients and Methods Parents 3,893 5-year cancer who were treated between 1970 1999 assessed in adolescence (age 12 to 17 years) completed Behavior Problems Index. Age- sex-standardized z scores calculated for domains by using Childhood Cancer Survivor Study sibling cohort. Latent profile analysis...
Abstract Background Excess late mortality has been reported among pediatric cancer survivors, but there is a need to further establish risk profiles for non‐cancer death and examine cause‐specific survivors of young adult cancers. Procedures In nationwide record linkage study in Finland, we identified 9,245 5‐year diagnosed before age 35 treated between 1966 1999, followed them endpoints from 1971 2008. Standardized ratios (SMRs) 95% confidence intervals (95% CIs) were calculated compare the...
The Children's Oncology Group (COG) Diversity and Health Disparities Committee's (DHDC's) mission is to guarantee the highest standard of care for children adolescents young adults (AYA) with cancer regardless ethnic, racial, gender, or socioeconomic background. We strive identify address issues disparity within existing scientific structure COG support research across improve survival by ensuring equitable access COG-sponsored clinical trials. are committed advance COG-led identifying...
PURPOSE Cancer-related financial hardship is associated with poor quality of life, risk household material hardship, and psychological distress for families affected by pediatric cancer. Current processes on screening navigation across the National Cancer Institute Community Oncology Research Program (NCORP) network remain unknown. METHODS Financial services among NCORP practices were assessed using two survey items from 2022 Landscape Assessment Survey. Practices answering yes to providing...
Background: Urethral stricture disease is a common urological issue with complex management. Graft urethroplasty effective for penile and bulbar urethral strictures. Various grafts, including buccal mucosa, are used repair stulas like epispadias, hypospadias, rectovesical stulas. To Aim: assess donor site morbidity in mucosal graft disease. Ev Objectives: aluate early complications (bleeding, pain, swelling, diet resumption, wound concerns) late (numbness, infection, mouth opening issues,...
Abstract Background: Existing comorbidity indices were not developed for adolescent and young adults (AYA) 15 to 39 years of age. The aim this study was assess impact comorbidities on health care service needs status among AYA cancer survivors using the newly HOPE index in comparison with existing indices. Methods: Data comorbid conditions obtained from medical records a survey survivors. Prevalence based index. Charlson NCI compared. Multivariable logistic regression used. Results: Of 485...
Little is known about the risk of post-COVID-19 multisystem inflammatory syndrome in children (MIS-C) setting childhood cancer.
Adolescents and young adults (AYAs, 15-39 years) with cancer experience disparities in care outcomes compared older/younger patients. AYAs receive from medical pediatric oncologists, however, little is known about the extent of training fellows receive. This needs assessment evaluating current AYA oncology (AYA-O) education fellowship programs to identify knowledge gaps for curricular development.
Abstract Pneumocystis pneumonia (PCP) is a serious complication of chemotherapy‐induced immunosuppression. Trimethoprim‐sulfamethoxazole (TMP‐SMZ) given twice daily, 3 days every week considered the best form prophylaxis for PCP. We evaluated PCP in all children up to 18 years age undergoing cancer chemotherapy over 2‐year period. Four were diagnosed with 24 months. Two 12 on intravenous pentamidine, 1 143 TMP‐SMZ and 36 dapsone developed Intravenous pentamidine may not be as effective...