A5034596784- Mental Health and Patient Involvement
- Health Policy Implementation Science
- Interprofessional Education and Collaboration
- Rheumatoid Arthritis Research and Therapies
- Primary Care and Health Outcomes
- Clinical practice guidelines implementation
- Health Systems, Economic Evaluations, Quality of Life
- Chronic Disease Management Strategies
- Musculoskeletal pain and rehabilitation
- Autoimmune and Inflammatory Disorders Research
- Healthcare Systems and Practices
- Healthcare cost, quality, practices
- SARS-CoV-2 and COVID-19 Research
- Biosimilars and Bioanalytical Methods
- Statistical Methods in Clinical Trials
- Global Health Workforce Issues
- Wikis in Education and Collaboration
- Cancer Immunotherapy and Biomarkers
- Vaccine Coverage and Hesitancy
- Diabetes Management and Education
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Health Sciences Research and Education
- Healthcare Systems and Technology
- Telemedicine and Telehealth Implementation
- Pregnancy and Medication Impact
Canadian Arthritis Patient Alliance
2016-2024
University of New Brunswick
2024
Digital Research Alliance of Canada
2023
Deleted Institution
2023
National Institute of Neurological Disorders and Stroke
2023
Studies have highlighted common challenges and barriers to patient engagement in research, but most were based on partners' or academic researchers' experiences. A better understanding of how both groups differentially experience their partnership could help identify strategies improve collaboration research.This study aimed describe compare experiences research.Based a participatory approach, descriptive qualitative was conducted with partners researchers who are involved the PriCARE...
Introduction: Case management (CM) is an effective integrated model of care for patients with chronic conditions and complex needs, given the focus on improving patient engagement in healthcare self-management skills. While CM often leads to positive outcomes, little known about factors which promote or hinder implementation. Objective: This study seeks examine facilitated hindered implementation a 12-month intervention primary clinics individuals report outcomes from perspective patients,...
This is the introductory paper in a collection of four papers on Strategy for Patient-Oriented Research (SPOR) Evidence Alliance, pan-Canadian research initiative that was funded by Canadian Institutes Health September 2017. Here, we introduce SPOR enterprise Canada, provide rationale creation information mandate and approach, describe how Alliance adds to health ecosystem Canada beyond.
We were tasked by Canada’s COVID-19 Immunity Task Force to describe severe adverse events (SAE) associated with emergency department (ED) visits and/or hospitalizations in immune-mediated inflammatory diseases (IMID). At 8 Canadian centres, data collected from adults rheumatoid arthritis (RA), axial spondyloarthritis (AxS), systemic lupus (SLE), psoriatic (PsA) and bowel disease (IBD). administered questionnaires, analyzing SAEs experienced within 31 days following SARS-CoV-2 vaccination....
Objective To develop best practice statements for the provision of virtual care in adult and pediatric rheumatology Canadian Rheumatology Association’s (CRA) Telehealth Working Group (TWG). Methods Four members TWG representing adult, pediatric, university-based, community practices defined scope project. A rapid literature review existing systematic reviews, policy documents, published abstracts on topic was conducted between April May 2021. The informed a candidate set 7 supporting...
Case management is one of the most frequently performed interventions to mitigate negative effects high healthcare use on patients, primary care providers and system. Reviews have addressed factors influencing case (CMI) implementation reported common themes related manager role activities, collaboration with other providers, CMI training relationships patients. However, heterogeneity settings in which been implemented may impair transferability findings. Moreover, underlying first steps...
Abstract Background In the past decade, patient-oriented research (POR) has been at forefront of healthcare in Canada because it potential to make more meaningful and relevant patient needs. Despite this growing emphasis on expectation conduct POR, there is limited guidance about how apply POR practice. To address capacity building need, Knowledge Translation (KT) Program partners co-designed, delivered, evaluated Partners Research (PiR), a 2-month online course for patients researchers...
The Evidence Alliance (EA) is a Canada-wide multi-stakeholder organization providing national-level support in knowledge synthesis, clinical practice guidelines development, and translation. With mandate to deliver the best available evidence inform health policy improve patient care, EA involves patients their caregivers its governance, research priority setting conduct, capacity building. To reflect on experiences of involvement first three years, conducted self-study with 17 actively...
The Strategy for Patient Oriented Research (SPOR) Evidence Alliance is a research initiative in Canada whose mission to promote the synthesis, dissemination, and integration of results into health care public decision-making clinical practice. aim this paper ( i) outline governance committee structure SPOR Alliance, ii) procedures patient system decision-maker engagement, iii) present capacity-building strategy members. includes following six standing committees: International Advisory...
Patients and other stakeholders are increasingly engaging as partners in research, although how they perceive such experiences, particularly over the long term, is not well understood.To characterize participants from a nondialysis chronic kidney disease (CKD) research priority-setting project conducted 2 years previously perceived significance of their involvement.Qualitative descriptive study with semi-structured, individual interviews.Participants resided across Canada.Eligible included...
Patients and stakeholders are increasingly engaging in health research to help address evidence-practice gaps improve health-care delivery. We previously engaged patients, caregivers, providers (HCPs) policymakers identifying priorities for chronic kidney disease (CKD) research.We aimed explore participants' views on the prioritization process 2 years after exercise took place.In this qualitative descriptive study, individual interviews were conducted analysed using an inductive, thematic...
Therapeutic product development, licensing and reimbursement may seem a well-oiled machine, but continuing high attrition rates, regulatory refusals, patients' access issues suggest otherwise; despite serious efforts, gaps persist between stakeholders' stated evidence requirements actual supplied. Evidentiary deficiencies and/or human tendencies resulting in avoidable inefficiencies might be further reduced with fresh institutional cultures/mindsets, combined context-adaptable practices...
Introduction Case management (CM) is among the most studied effective models of integrated care for people with complex needs. The goal this study to scale up and assess CM in primary healthcare Methods analysis research questions are: (1) which mechanisms contribute successful scale-up needs healthcare?; (2) how do contextual factors within organisations these mechanisms? (3) what are relationships between actors, factors, outcomes when scaling-up healthcare? We will conduct a mixed methods...
We were tasked by Canada’s COVID-19 Immunity Task Force to describe severe adverse events (SAEs) associated with emergency department (ED) visits and/or hospitalizations in individuals immune-mediated inflammatory diseases (IMIDs). At eight Canadian centres, data collected from adults rheumatoid arthritis (RA), axial spondyloarthritis (AxS), systemic lupus (SLE), psoriatic (PsA), and bowel disease (IBD). administered questionnaires, analyzing SAEs experienced within 31 days following...
<title>Abstract</title> <bold>Background</bold>: We compared time to first remission and prevalence of sustained in participants with rheumatoid arthritis (RA) initiating etanercept biosimilar (ETA-B) or originator (ETA-O). <bold>Methods: </bold>We studied etanercept-naive RA from three Canadian prospective cohorts who initiated ETA-B ETA-O (Jan/2015-May/2022). Disease was determined using disease activity scales. Sustained defined as at least two consecutive visits within the 12 months...
<h3>Background</h3> In 2001, the Arthritis Society in Canada created a Canadian Patient Bill of Rights with multiple stakeholders<sup>1</sup>. subsequent 15 years, landscape arthritis and its care has changed dramatically. A patient-led driven not for profit organization, Alliance (CAPA), wished to provide patients healthcare providers new tool that reflected this evolution – Charter (Charter)<sup>2</sup>. The was enable conversation, better partnership, improved patient outcomes. CAPA...
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<h3>Context:</h3> Case management (CM) is an effective intervention for patients with chronic conditions and complex care needs. While CM often leads to positive outcomes, it has rarely been implemented in primary Canada, little known of the factors which promote or hinder implementation. <h3>Objective:</h3> To identify facilitated hindered implementation from perspective nurse case managers, clinic managers providers. <h3>Study Design Analysis:</h3> A secondary analysis qualitative data...
<h3>Context:</h3> Growing evidence suggests that case management (CM) is an effective intervention to improve the care of patients with chronic conditions and complex needs who are at risk for poorer health outcomes. While positive outcomes have been associated CM in a range settings variety patient populations, less known about CMs potential when implemented Canadian primary needs. <h3>Objective:</h3> To identify limitations program Study design: Secondary data analysis realist evaluation...
<h3>Context:</h3> PriCARE is a patient-oriented research program to implement and assess case management (CM) for patients with complex care needs that traditional primary services cannot address. This initiative spans five jurisdictions including anglophone francophone representation, as well First Nation community, engaged public patient partners. <h3>Objective:</h3> To highlight how partners participated in each step of the work on this team, specifically recruitment. <h3>Study...