A5018542554- Esophageal and GI Pathology
- Tracheal and airway disorders
- Congenital Diaphragmatic Hernia Studies
- Gastroesophageal reflux and treatments
- Clinical Nutrition and Gastroenterology
- Congenital Anomalies and Fetal Surgery
- Adolescent and Pediatric Healthcare
- Intraperitoneal and Appendiceal Malignancies
- Intestinal Malrotation and Obstruction Disorders
- Appendicitis Diagnosis and Management
- Vascular Anomalies and Treatments
- Urological Disorders and Treatments
- Family and Patient Care in Intensive Care Units
- Foreign Body Medical Cases
- Childhood Cancer Survivors' Quality of Life
- Metabolism and Genetic Disorders
- Abdominal Surgery and Complications
- Phonocardiography and Auscultation Techniques
- Pediatric Hepatobiliary Diseases and Treatments
- Anesthesia and Neurotoxicity Research
Uppsala University
2012-2025
Uppsala University Hospital
2017-2024
Akademiska Barnsjukhuset
2022
Schulman, Ronca & Bucuvalas
2019
American College of Surgeons
2016
Newborn infants with short bowel syndrome (SBS) represent a high-risk group of developing intestinal failure-associated liver disease (IFALD), which may be fatal. However, have great capacity for growth and adaptation if IFALD can prevented or reversed. A major contributing factor to the soybean oil-based intravenous lipid emulsions used since introduction parenteral nutrition (PN) 40 years ago.This retrospective study compares outcome in 20 neonates SBS treated fish oil (Omegaven)...
Abstract Background In 10–15% of children with esophageal atresia (EA) delayed reconstruction (DREA) is necessary due to long-gap EA and/or prematurity/low birth weight. They represent a patient subgroup high risk complications. We aimed evaluate postoperative morbidity and health-related quality life (HRQOL) in Swedish national cohort DREA. Methods Postoperative morbidity, age-specific generic HRQOL (PedsQL ™ 4.0) condition-specific (The EA-QOL questionnaires) DREA were compared who had...
Background: The support for treatment of uncomplicated appendicitis with non-operative management as opposed to surgery has been building in the literature. We conducted a randomized trial compare failure rates.Methods: pragmatic multicenter, parallel-group, unmasked, non-inferiority, completed at 11 children's hospitals across globe. used non-inferiority design margin 20%, and 1:1 allocation while stratifying by sex, institution duration symptoms (≥ 48 hours verses <48 hours). Patients were...
Abstract Aim Our knowledge of the perceptions that children with severe congenital malformations have their health, treatment and how to improve hospital care is limited. This study focused on patients vertebral defects, anal atresia, cardiac tracheo‐oesophageal fistula, renal anomalies limb abnormalities (VACTERL). Methods We interviewed 10 aged five eight years VACTERL association who were treated in a Swedish tertiary paediatric surgical centre, using computer‐assisted technique called In...
Aim Knowledge is scarce regarding mothers' and fathers' experiences of being a parent child with VACTERL association—a complex malformation. The aim the study was to describe association. Method Semi-structured interviews were performed ten mothers nine fathers face-to-face or by telephone analyzed using Qualitative content analysis. Results parents described crisis reactions at discovery malformations in their child. Involvement care reported from initial hospital admission until actively...
Current knowledge of transitional care from the perspective individuals with congenital malformations is scarce. Their viewpoints are required for development follow-up programs and corresponding to patients’ needs. The study aimed describe expectations, concerns, experiences in conjunction transfer adult health among adolescents, young adults, adults VACTERL association, (i.e. vertebral defects, anorectal (ARM), cardiac defects (CHD), esophageal atresia (EA), renal, limb abnormalities)....
Studies on neurodevelopmental outcomes in individuals with congenital anomalies who undergo neonatal surgery are scarce and have reported contradictory findings based small study groups. The condition VACTERL association includes at least three malformations: vertebral anomalies, anorectal malformations, cardiac defects, tracheoesophageal fistula or without esophageal atresia, renal limb deformities. Most of these patients during their first days life. Neurodevelopmental disorders include a...
Abstract Purpose VACTERL association is a rare and complex condition of congenital malformations, often requiring repeated surgery entailing various physical sequelae. Due to scarcity knowledge, the study aim was investigate self-reported health-related quality life (HRQoL), anxiety, depression self-concept in children adolescents with anxiety their parents. Methods Patients aged 8–17 years parents were recruited from three four Swedish paediatric surgical centres during 2015–2019. The...
Knowledge on the neurodevelopmental and physical function in children with vertebral defects, anorectal malformations, cardiac tracheo-oesophageal fistula, renal limb malformations (VACTERL) is scarce. We evaluated Swedish preschool VACTERL identified whether they would need extra support school.From 2015 to 2017, we recruited aged 5-7 association from paediatric surgical centre at University Children's Hospital Uppsala. Neurodevelopmental was assessed by age-appropriate intelligence visual...
Abstract Background Children with complicated gastrointestinal conditions are dependent on follow up by tertiary care specialists throughout childhood to prevent and treat complications. In Sweden, paediatric surgical- intestinal rehabilitation centres centralised which means that many patients guardians have travel long distances access referral centres. Our centre has developed a model of shared video conferences for our the patient attending together responsible professionals at local...
Children with long-gap esophageal atresia (LGEA) risk living aerodigestive morbidity and mental health difficulties. No previous study has investigated their experiences of schooling, despite the importance schools in children's development, learning social relationships. We aimed to describe schooling children LGEA Sweden comparison EA who had primary anastomosis.Children aged 3-17 were recruited nationwide Sweden. One parent completed a survey on child's school-based supports (according...
Summary Knowledge of neurodevelopmental disorders such as attention deficit/hyperactivity disorder (ADHD), autism spectrum (ASD) and intellectual disability (ID) in patients with esophageal atresia (EA) is scarce. The aims this study were to investigate the prevalence risk ADHD, ASD ID individuals EA. Data obtained from four longitudinal population-based registries Sweden analyzed using Cox proportional hazards regression. Patients EA born 1973–2018 included together five controls for each...
Abstract Background: Children with long-gap esophageal atresia (LGEA) risk living aerodigestive morbidity and mental health difficulties. No previous study has investigated their experiences of schooling, despite the importance schools in children’s development, learning social relationships. We aimed to describe schooling children LGEA Sweden. Method: Twenty-six aged 3-17 were recruited nationwide One parent completed a survey on child’s school-based supports (according definitions from...
Abstract Background In 10-15% of children with esophageal atresia (EA) delayed reconstruction (DREA) is necessary due to long-gap EA and/or prematurity/low birth weight. They represent a patient subgroup high risk complications. We aimed evaluate postoperative morbidity and health-related quality life (HRQOL) in Swedish national cohort DREA. Methods Postoperative morbidity, age-specific generic HRQOL (PedsQL TM 4.0) condition-specific (The EA-QOL questionnaires) DREA were compared who had...