Karine Manera
A5009518252- Dialysis and Renal Disease Management
- Health Systems, Economic Evaluations, Quality of Life
- Delphi Technique in Research
- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Adolescent and Pediatric Healthcare
- Health disparities and outcomes
- Genetic and Kidney Cyst Diseases
- Renal Transplantation Outcomes and Treatments
- Patient-Provider Communication in Healthcare
- Mental Health and Patient Involvement
- Organ Donation and Transplantation
- Geriatric Care and Nursing Homes
- Pregnancy and Medication Impact
- Physical Activity and Health
- Cystic Fibrosis Research Advances
- Central Venous Catheters and Hemodialysis
- Prenatal Screening and Diagnostics
- Healthcare cost, quality, practices
- Climate Change and Health Impacts
- Family Caregiving in Mental Illness
- Renal and Vascular Pathologies
- Health Policy Implementation Science
- Renal Diseases and Glomerulopathies
- Family and Patient Care in Intensive Care Units
Children's Hospital at Westmead
2017-2025
The University of Sydney
2017-2025
Sydney Local Health District
2018-2025
Westmead Hospital
2017-2023
Swinburne University of Technology
2022
Kidney Research UK
2018-2020
Princess Alexandra Hospital
2020
Mackay Memorial Hospital
2020
Taipei Medical University-Shuang Ho Hospital
2020
RELX Group (United States)
2020
The absence of accepted patient-centered outcomes in research can limit shared decision-making peritoneal dialysis (PD), particularly because PD-related treatments be associated with mortality, technique failure, and complications that impair quality life. We aimed to identify patient caregiver priorities for PD, describe the reasons their choices.
Abstract Loneliness and social isolation, experienced more long-term, has been shown to increase mortality lead poorer health outcomes in specific cohorts. However, it is unclear what the prevalence of chronic loneliness isolation is, which demographic groups are most at risk reporting forms. A psychometrically validated classification system was used identify people who met criteria for episodic using Household Income Labour Dynamics Australia (HILDA) survey waves 14–18. The (overall 34%;...
In Brief Background Inconsistencies in outcome reporting and frequent omission of patient-centered outcomes can diminish the value trials treatment decision making. We identified critically important domains kidney transplantation based on shared priorities patients/caregivers health professionals. Methods a 3-round Delphi survey, professionals rated importance for 9-point Likert scale provided comments. During rounds 2 3, participants rerated after reviewing their own score, distribution...
Abstract Background While peritoneal dialysis (PD) can offer patients more independence and flexibility compared with in-center hemodialysis, managing the ongoing technically demanding regimen impose a burden on caregivers. Patient empowerment strengthen capacity for self-management improve treatment outcomes. We aimed to describe patients’ caregivers’ perspectives meaning role of patient in PD. Methods Adult receiving PD (n = 81) their caregivers 45), purposively sampled from nine units...
The outcomes reported in trials coronavirus disease 2019 are extremely heterogeneous and of uncertain patient relevance, limiting their applicability for clinical decision-making. aim this workshop was to establish a core set people with suspected or confirmed 2019.
OBJECTIVES: Respiratory failure, multiple organ shortness of breath, recovery, and mortality have been identified as critically important core outcomes by more than 9300 patients, health professionals, the public from 111 countries in global coronavirus disease 2019 outcome set initiative. The aim this project was to establish measures for these domains trials 2019. DESIGN: Three online consensus workshops were convened four respiratory recovery. SETTING: International. PATIENTS: About 130...
Background Worldwide, approximately 11% of patients on dialysis receive peritoneal (PD). Whilst PD may offer more autonomy to compared with hemodialysis, patient and caregiver burnout, technique failure, peritonitis remain major challenges the success PD. Improvements in care outcomes are likely be mediated by randomized trials innovative therapies, but will limited if measured reported not important for clinicians. The aim Standardised Outcomes Nephrology-Peritoneal Dialysis (SONG-PD) study...
Abstract Background Patients with chronic kidney disease (CKD) receiving replacement therapy have an increased risk of having poor social participation and connections, which are associated health outcomes. This may be exacerbated in people from minority or disadvantaged groups, including culturally linguistically diverse populations, who face multiple disadvantages. We aimed to describe the perspectives on connections among patients Arab backgrounds therapy. Methods Semi-structured...
Background. Kidney transplantation confers substantial survival and quality of life benefits for many patients with end-stage kidney disease compared dialysis, but complications side effects immunosuppression can impair participation in daily activities. Life is a critically important patient-reported outcome transplant recipients infrequently inconsistently measured trials. We convened consensus workshop on establishing an measure use all trials transplantation. Methods. Twenty-five (43%)...
Comprehensive evaluations are required to safeguard voluntarism and minimize harm living kidney donors. This process is lengthy, invasive, emotionally challenging, with up one fifth of potential donors opting out. We aimed describe donors' experiences the evaluation process.We conducted 14 focus groups involving 123 who completed donation from three transplant centers (Australia Canada). Transcripts were analyzed thematically.We identified six themes reflecting evaluation. The that related...